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Post Info TOPIC: Both corneas crosslinked


Executive

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Posts: 437
Date: Sun Oct 29 9:40 PM, 2006
Both corneas crosslinked
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Hello,
so it's been 15 months since my right cornea crossliniking and about 7 months since the left.

The right is stable overall and shows a visual acuity in the range 20%-40% (with 10%-20% before cross-linking). Helas, I do not have Orbscan done before the cross-linking of the right. The left shows some more flattening, like 1-2 diopters, and the visual acuity of 80%-100% (with 70%-90% before crosslinking). Comparing with the Orbscan I did before the cross-linking, I do see the difference. I am very much satisfied. However, i regret I did not do cross-linking to my right cornea when it was only the begining of the KC: IMHO, the cross-linking is much more effective when it is done in early stages.

You may ask why do I give the ranges of visual acuity, not just one number. Well, while yielding the cornea much more rigid than before, the cross-linking does not change much the shape of the cornea. It changes it a little bit. And as I was a KC before I am a KC after it. And the vision of a KC is influenced, and if the stage is advanced the vision is determined by the abberations of the second order. And when a doctor asks "can you see this" and I say "yes" I'd prefer him to continue to ask "how do you see this?" and me to answer "I see this in multiple, diffused images, but I see that this is, for example, a "V"....That's why in different conditions I have an impression to see differently with my right eye. That's why I give ranges. In general, I think we need another scale for optical defects due to KC, more sophisticated, not just -5D or 10% or the like.

And two more conclusions: 1. do Orbscans before and after on the SAME machine (when you do the Orbscan open your eye as wide as you can) 2. do visit several doctors before and after and take all measurements with you to keep your own file and records and to have a robust conclusion.

What do I plan to do next? Next tuesday I'll go to the check up with my another doctor (I made two visits during last two weeks- one in Dortmund and another to one of my local doctors; these visits provided me with information above). I'll ask him a) to do all the measurments and to provide me with historical data of those measurments of my eyes b) to try to correct my right eye with glasses but only to half-correct: to half-correct the miopia and to half-correct the astigmatism, for I do not think full correction is possible with glasses (that's why I rgret I knew nothing about cross-linking 6 years ago and knew so little about the KC and its potential to harm ones eyes, ones life).



-- Edited by Yarsky at 21:45, 2006-10-29

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yarsky


Veteran Member

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Posts: 51
Date: Mon Oct 30 1:42 PM, 2006
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Good to hear about your results, Yarsky! Yeah, I guess we will have to live with multiple imaging no matter what treatment we get, annoying as it is.


Good luck with correcting your vision!


By the way, I donít think you should regret something that did not really exist 6 years ago. I mean, crosslinking was in its baby stage then and probably you wouldn't run the unknown risk linked to this new treatment. The good news is that there is a great chance your KC will not progress for at least 6 years now and also no side effects within this timeframe.


Jan



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Phase Two

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Posts: 484
Date: Wed Nov 1 8:41 PM, 2006
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Yarsky, Its impressive, and the time has gone so quickly! Its pretty good what has been acheived, to me the fact that you get around fine with-out glasses is good news from the start, and now, you have got MORE vision than before.


And as you say... when you get older you need your "near" sight... so having kc a little bit in one eye is pretty good going to help with that...


Yes, you will have the wounds to show that you have kc still... but who doesn't have wounds in this life... at least you can sit back and relax after all this time, when before this time you did not know when KC will progress again...


I think a very slow eye test to get refracted for Nikon glasses could be tired at some time in the future Yarsky (that's if at all you want to or need to), I think very very good Laser centers have eye tests that will help you get that correct number/s for your glasses, if you choose to, this is because they have all the right tests to test with contrast and glare in mind. Its not a routine thing they do, but if you ask around and offer money for this service, then you could be corrected very well with glasses, and the extra vision you have now will only give you even more vision with glasses, I feel... but you have to get it done right and by someone who is fully focused to help you get more correction... and not try to sell you a contact lens!


Anyway all the best buddy



-- Edited by QuintriX at 20:48, 2006-11-01

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Executive

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Posts: 437
Date: Wed Dec 19 6:49 PM, 2007
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A quick update. It's been 2.5 Y since the right eye and about 2Y since the left eye - were cross-linked. I do not need correction for the left eye, since before and after x_linking it is the same 8/10th of visual acuity. The right one was about 1/10 without correction before. Now it is about 3/10 th. BUT I use glasses that make it like 6-7/10. So I wear them, zero correction on the left and some astigmatism correction on the right. I think my story is a success story. I thank this site, namely: Quintrix, Valeri and Hary, for everything. And I thank Dr Kohlhaas, who was my guide. I just regret that neither I nor my doctors knew nothing about cross-linking in 2000, when my KC was discovered. If I did it in 2001, how much different my life could have been in the years that have passed....My doctors knew nothing because they were extremely bad informed and not at all risk-taking, to the point of being indifferent to my life, my fate. We naturally do believe that doctors are there to try the best for our sake, even if risks and uncertainty are involved. And I thank again Dr. Kohlhaas for being like that.

-- Edited by Yarsky at 18:55, 2007-12-19

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yarsky


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Posts: 39
Date: Wed Dec 19 10:48 PM, 2007
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Well done Yarsky. A success indeed. I thankfully did my crosslinking in my right eye before I let things get out of hand. Left hopefully will be done shortly. Now that crosslinking is the treatment for the foreseeable future, lets hope that doctors will advise their patients to have it done and stop and unnecessary sight loss.

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