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Post Info TOPIC: Need to Xlink - Heath


Executive

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Date: Fri Oct 13 1:31 PM, 2006
RE: Need to Xlink - Heath
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heath,
consider two options
1. You do first one eye, the worst, then, in 6 moths you do another one, the best. Which one is the best and which one is the worst? Well, two criterias. The stage and the rate of advancing. The most adavanced one usualy advances faster. So do it first if this is the case.
2. You do both eyes at a time.

In case 1, you may count to be absent for 2 weeks(monday-friday,monday-friday). All this time you will be a quasi-one-eyed human being. 1 week you must be out of work. The second one is optional, I think, for you can work with one eye. It may take longer time to switch on the other eye for you will not be able to use your lenses: corneal surface will be different.

In case 2, if you do not see well enough without lenses, it may take longer.
In any way, I opted for option 1 and did one eye at a time. I do not wear lenses. I see left 90%+/-10%  and right 30%+/-10% (another question is how do I see these 90% and 30% but this is another subject, which, besides, is not well described and taken care of here, for yes yoo may see 90% in many different ways). When I did the good eye I started working exactly 2 weeks post op. The haze is a problem during these two weeks. But after it goes away slowly.
I can imagine you would not wish to do one eye per time, to go twice in Europe. It is cheaper to go once and do both than go twice and do one per go. But that´s what I suggest you to do. Two times two weeks. That was how I used my vacations. You can see other experiences, of Valeri and Jan, for example. Valeri is in softwear also, I imagine. He did both at a time. He started working in two weeks post op. But I think 1) his eyes were better than yours 2) he was not alone.
So does it answear your question?

And one more thing. The longer you wait the more your weeker cornea becomes thinner. This is a rule with exceptions. And the thinner it becomes the less recomended cross-linking may be. Theoretically, if the central thickness is less than 400 µm the "normal" cross-linking is not possible. Probably exposure time could be set less than 30 minutes. But it is not yet calibrated. So as a rule, it is recommended only if your central corneal thickness is more than or about 400 µm.

So it's partialy for you to figure out the optimal management strategie fo your problem.

-- Edited by Yarsky at 16:24, 2006-10-14

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yarsky


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Date: Mon Oct 30 1:04 AM, 2006
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thanks for the valuable information yarsky.


I think i will go with both eyes and take a one month vacation coz its just no feasible to go twice to europe because its involves a lot of immigration as I work in the USA but am not a US icitizen and all that jazz ...


I gota reply from dortmund and they quoted 850 euros for both eyes and Dresded quoted a 1000 euros also they wanted to inspect if a transplant was needed or x linking will be done and recommended  5 days after surgery.


My question now is where should  I go, Dortmund or Dresden?


Money is not an issue with me.


Please help


~Heath



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Regards Heath


Executive

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Date: Mon Oct 30 1:16 PM, 2006
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Hi Heath,


Dortmund or Dresden? I do not know...I think both sides provide you with the best possible treatment. Dortmund is closer. Hotel is cheaper in Dresden. If you stay two weeks, it may be important. But international overatlantic flights probably are more frequent from Dortmund and nearby cities (Francfurt, Bonne) than from Berlin. I think, now it is logistics question for you. Ask Jan how did he manage with both eyes off and nobody by his side whe he was in Dresden. It is the most important issue, Dresden or Dortmund, for with both eyes done, imho, you'll need a guide...and sunglasses! Probably I exegerate and one is capable of doing all this alone.



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yarsky


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Date: Mon Oct 30 1:20 PM, 2006
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Hi Heath,


I don't think there is a huge difference between the treatment in Dresden and Dortmund. I mean, first of all the crosslinking treatment is not that complicated and secondly most European hospitals do follow very strict procedures. I was in Dresden because (1) they were the pioneers (I knew nothing about Dortmund then), (2) it is a University and not a private hospital (which means their main goal is to do research and not steal money from your pocket), and (3) Dresden is a very interesting town, historically and culturally.


If I knew I could save 150 euros in Dortmund I would probably go there instead because I’m a student and don’t have that much money. But I don’t regret my wonderful trip to Dresden (except from the pain of course ).


Best regards, Jan 



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Executive

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Date: Mon Oct 30 4:44 PM, 2006
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Hi Jan,


could you please clarify how did you manage to do things, with both of your eyes done, just after the treatment and several days after it? For me it is a mistery for one does not see a big thing...I think this is the most important management issue.


Thanks,


Y.


 



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yarsky


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Date: Mon Oct 30 5:29 PM, 2006
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To be honest, I was very naive and didn’t care much about the period after the treatment. I was so fed up with life that I made a choice between death or doing this treatment at all cost and alone. I choose life.


 


Before the treatment I made sure to figure out how public transportation works in Berlin and Dresden so I wouldn’t have to figure out where this tram was going and where this, this and this train is going. I made sure to memorize city maps, food stores, tram numbers, destinations, and timetables. Also, I did reservation on all flight and train tickets in advance (I memorized at what track the train would stop and so on).


 


I bought lots of food before the treatment so I wouldn’t have to go outdoors and buy it. The first couple of days after the treatment I was alone in my dark room, sleeping, eating and coping with the pain. In rare cases where I couldn’t help my self I relied on help from the owner of the guesthouse and the staff at the hospital.


 


I think the better your vision is before the treatment the more independent you are.


However, most important is:  Where there’s a will, there’s a way!


 


Best regards, Jan



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Date: Mon Oct 30 5:53 PM, 2006
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hey jan


 


your story is awesome.


I m goin to do it alone I guess.


 


Dresden ppl have come up with this


The timetable would be:
Nov 23, 9:30a.m. - preliminary examination
Nov 24 - surgery
Nov 27 - last checkup


Cost for preliminary exam 200 euro


and then 500 euro per eye makin it 1000 euros


In all 1200 euros and they want it in cash when i get there .


 


I have asked Dortmund also for an appointment and see if they are avlbl.


Hey jan how did u contact the guest house in Dresden for stay?


yarsky where did u live in dortmund?


I am plannin on getting there on the 17th do my prep and u know see the city n stuff for 5days and then leave on the 27th or 28th. do u guyz think tht shud be awrite?


~Heath


 



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Regards Heath


Executive

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Date: Mon Oct 30 7:51 PM, 2006
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Hi Heath,
I Dortmund I lived in a nearby hotel. The hospital is in the central part of the city. There are plenty of the hotels, you may find a modest one. In Dresden I lived in the guest house. Ask the person who manages the treatment to make a reservation for you, till the day you leave. The price was, if I remeber correctly, 45 per night. I payed all things in cash, both times. Jan did right: buy plenty of food AND water. Each day there is a check up. It is very important to show your eyes each day and do the drops, antibiotic ones and the ointment. It takes 4-5 days for the healing of the abrased epithelium.
Best,
Y.

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yarsky
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