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Post Info TOPIC: my experiences with x-linking
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Member

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Date: Tue Aug 29 5:28 AM, 2006
my experiences with x-linking
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Hi,
I had x-linking done on my left eye 1 week ago in Melbourne, Australia as a part of the clinical trial being conducted at the Eye and Ear Hospital. I have been really happy with the results so far. I have had no pain or discomfort and the epithelium has completly re-grown back and has healed very well. At my 1 week appointment I was told that my vision was almost back to my pre-treatment vision. I can drive and use a computer already.
I would recommend anyone that can get the treatment to do it. I will update my progress in the next few weeks.

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Member

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Date: Tue Aug 29 2:17 PM, 2006
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Which stage was your keratoconus when u did cross linking?? mild, moderate, advanced or severe??

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Phase Two

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Posts: 482
Date: Tue Aug 29 6:02 PM, 2006
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Eloiseryan, we have been expecting you! so a warm welcome to you! 


Please read through the threads here and you will gain comfort from the posts from others like yourself!


Please also write when you can ...we would like to hear everything you have to say... so please keep us informed as much as possible...


Best wishes to you and tell others about us... this site is for keratoconus treatment! ... not for bungled attemtps to correct vision through less than desirable methods they have been using for over 100 yearts!!


And before i forget ...congratulations you have done well!!!



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Member

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Date: Thu Aug 31 7:34 AM, 2006
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My keratoconus is moderate to advanced, in my left eye and moderate in my right eye.

-- Edited by eloiseryan at 07:35, 2006-08-31

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Phase Two

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Posts: 482
Date: Thu Aug 31 8:54 AM, 2006
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Eloiseryan, Did you at all need correction in the form of glasses or contacts before your x linking treatment... and also was your kc of the progressing kind, before the treatment?


Thanks for any input you can give, Eloiseryan.



-- Edited by QuintriX at 08:55, 2006-08-31

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Member

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Date: Thu Aug 31 11:59 PM, 2006
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Before I had the x-linking I was being managed with glasses but they were really not giving me adequate vision. I had tried many different contact lens fittings and could not get any RGP's that would fit properly despite having a great specialist. I was able to get some piggyback lenses that fit well and gave me fantastic vision. I was wearing lenses most of the time before the x-linking.
I will wait 6-8 weeks before I go back for another contact lens fitting.
My keratoconus was the progressive kind. To be eligible to enroll in the trial in Melbourne you have to show progression of your keratoconus so that if the progression is halted the can say that it was due to the x-linking and not just due to it stopping on its own.
I am still going really well and am so impressed with my recovery so far. I am still a little bit light sensitive at times but it is getting better. I have been back at work all week. I am a research nurse so I use a computer a lot and I have not found it to be a problem, I also do a lot of reading which has not been difficult at all.
I hope this helps someone else who might be considering having x-linking done. I will answer any questions anyone might have as quickly as possible.

-- Edited by eloiseryan at 00:05, 2006-09-01

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Executive

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Posts: 437
Date: Sat Sep 2 1:28 AM, 2006
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Hi Eloiseryan,
good to hear that! Important thing is that you can be quiet now for many years that lie ahead: the KC will not progress. This is the most important achievement that this technique provides us with.
Good recovery and best of luck!

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yarsky


Veteran Member

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Posts: 51
Date: Thu Sep 7 2:19 PM, 2006
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Dear Eloiseryan,


I'm happy to hear that everything went okay. I hope you can help me with the following questions:


How well did you see 2-3 days after the operation? Do you think you would be able to find your way around an airport or a train station (alone)?


Best regards, Jan



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