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Post Info TOPIC: crosslinking good eye


Phase Two

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Date: Fri Apr 14 3:57 PM, 2006
RE: crosslinking good eye
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After what Dr Lombadri explained (in the German meeting) in that UV was used by Prof. Fyodorov in the early 80's to flatten myopic eyes. I asked two Dr's about UV and the use of it in corneas.


Two London based Dr's, each independantly having experiance with X linking told me that the UV could possibly be directly involved in the flattening effect seen with crosslinking, as well as the links causing this effect as well (not that it make's a differance this bit of info. as every element in the "original" x linking compliments each other... i'll explain this later in this post). Also they was saying that the amount of UV used is like having a two week holiday in Australia!


Now... I know most people will get at least a little bit of regression after crosslinking (the first factor being to stop kc) ... and we know that the use of the B2 (over other compounds) has been cleverly choosen (which i think is the key to x linking)


So any "tightening"/strenghtening of the cornea fibers with the use of UV can only be done with the use of B2 as it works so well with UV to create strong links, links that last over a long time, is non-toxic,  and which catches the UV... compared to a lot of other compounds tested for all those years before x linking was approved. As you know the, scratch. the B2 and the UV, all works exactly where it is need (in the cornea and no where else)


And so all the elements put together is very clever as together they all compliment each other very well...


BTW thats a great bit your wrote about going shopping through the streets of Paris so soon!  



-- Edited by QuintriX at 19:30, 2006-04-14

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Executive

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Date: Fri Apr 14 8:07 PM, 2006
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Hi,
yea, we'll see, iin a couple of months i'll do the pach test. I agree with what you say, just trying to get down to the physics of the procedure

Anyway, monday I go to work

I do not need the lens anymore

The haze slowly goes away

Now the timing thing. I think one needs 10 days to the x_linking:
4 days; the eye is closed

5th day: the epithelium is closed, one may look fro time to time with the eye, still good to use ointments

6th day: still photosensitive, but less, one may stop ointments and put refreshing drops.

7th-10th days: haze is still there, but comes away progressively, one can see details, etc....



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yarsky


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Date: Fri Apr 14 10:51 PM, 2006
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Just in case: at the front page there is an excelent, excelent presentation of Doctor Eberhard Spoerl of the corneal cross-linking methode and it's back-ground. Anyone who has interest in questions raised here should read it. Some of these questions are unswered there (location of the link, for example).

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yarsky


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Date: Sun Apr 16 11:59 PM, 2006
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So 12ve days after. Haze is there. But can do things without the lens on the worst eye. However put it in to see a movie. Need to put refreshing dropes.

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yarsky


Phase Two

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Date: Mon Apr 17 1:33 AM, 2006
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I think you are nearer the end of your escape!


Thank you very much Yarsky for everything you do to pass on your wisdom to us. You have worked out in fine detail your plan of action, one which suited you after you done your homework, which has helped others out by an unmeasurable amount!


For the fore-see-able future you can forget about your kc as you have taken care of it as much as one can.


The furthest stats there is shows about a decade of stopping kc has been done with x linking... but no one can see in to the future and so know when the effect may or may not go (more time needs to laps for that to happen)


...AND TO NOTE: it does not take people to die at a rip old age with their vision intact, who had done x linking as a teenager, for X linking to go more mainstream!!!!!!!! NOT AT ALL!!! 


Anyway, stopping kc for a decade or so is very good indeed (if indeed it is a decade... as its been said it could stop kc for decades!) particularly when the treatment can be repeated if need be... and in many cases about a decade is more than enough to cancel out the progressive part of kc, and also its a way to forget about your kc getting worse for about a decade!


 ... tell me... how great is that? ... how many people can say that? and how many people wish they could be in that situation where they can forget about their kc getting worse for that lenght of time? 



-- Edited by QuintriX at 01:36, 2006-04-17

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Executive

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Date: Mon Apr 17 11:36 PM, 2006
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hi,

no questionnning about that! But you see, I do not think I can forrget about my KC for my bad eye , you know, is -9 or -10 in miopia plus astigmatism. So even with x_linking done as a reinforcement, I will not see any better....Today for exemple I was seeing worse than yesterday...bad day for the bad eye... If I knew about x_linking 5 years ago I would probably spare myself from that ...but so it is...

Now if yo wish, it looks as a teutonic movement happens now wrt to the KC...What I mean is that if I were a member of the Nobel Price comittee I would put smth on the list

-- Edited by Yarsky at 00:12, 2006-04-19

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yarsky


Phase Two

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Date: Thu Apr 20 3:30 AM, 2006
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Yes i do think a Nobel peace prize is on order! ...because the "old school" are "dragging their feet" (going slow and causing resistance), when there is no need to... all they need to do is put one foot in front of the other and get a move on!... like the forward thinking Doctors we have been very very lucky to have met! ...in this god forgotten eye illness!


I spent the after noon meeting and talking to some very classy eye specialists (i think they are the best in the UK, at least), and i must say that they have a very keen interest in KC (after anyone talks to me, who has not).


Anyway with their help i managed to get to the 20/20 line on the eye test chart by using all sorts of eye tests and methods and then someone else repeated all the tests again with a machine that comes down from the ceiling! (this I have never seen this before, used anywhere!)


So the moral of the story is that when there is great interest between patient and Doctor... when the Doctor loves their work enough to care and go all out... then what seemed impossible... is possible!


I think once your ready Yarsky... get another refraction done on your worst eye... with the irregularity of the cornea getting more regular after x linking... you will have better glasses correction, if not more regression... and not forgetting that just a slight regression on your better eye would mean that glasses are not needed... i mean you don't need glasses now... so things can only get better i think in that depatment...


I was talking about all this today... i mentioned you and Chris's case BTW.


On another note, I have a very very good chance i could get out of glasses if i treat my better eye with x linking... and also i have a very good chance that I could get my worst eye more regualar... at the moment i wear my glasses on and off depending what is needed... thats not bad considering i was told that i needed to use contact lenses...


So, I think that there are specialist who will go the extra mile for you... i think the search is to find such specialst... its a big wide world out there... so the chances are high! ...if you look further, search harder, and not settle for second best...


So yes... i think in about six months... get refracted... before then the brain is still getting used to the changes that are happening... and progression as we know it, has been stopped!



-- Edited by QuintriX at 13:11, 2006-04-20

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Executive

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Date: Thu Apr 27 11:16 PM, 2006
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Hi,
it's been 23 days since the procedure.
The haze is realy minor. In a month it'll be fully gone, I believe. I'm fully active as before. "No lens on the bad eye" mode since, actualy two weeks.
So all's just fine

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yarsky
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