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Post Info TOPIC: Diagnosed with KC 2 years ago

Date: Fri May 15 2:27 AM, 2015
Diagnosed with KC 2 years ago

Hello everyone

I was diagnosed with KC when I was 35 (now 37). I was going for routine lasik consult when they found out I had KC in my left eye. I was told by the ophthalmologist it was nothing to worry about and he didn't recommend follow up visits. 

Two years later I was going for optometry appointment to get a glasses Rx when I was diagnosed with lattice degeneration. I saw a different ophthalmologist the next day and fortunately the lattice was very mild and will be followed up every six months. I spoke to him about my KC as well and he agreed with the first ophthalmologist's opinion. 

He said it would be very difficult to get perfect vision correction in the left eye due to the way the cornea was shaped; I had varying Rx with distance and near vision. My Rx has not changed much at all through out the years. 

I was advised that specialized contact lenses would be the best option. I am curious if anyone else has gone this route? 

Thank you very much. Best- Jason. 


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Posts: 99
Date: Fri May 15 3:14 AM, 2015

Medical contact lenses of various kinds are available and adjusting to them vary a lot as well. It is well worth visiting an eye Dr who can carrys out CXL if required, and on the detection of progression. Keep your KC monitored.


Veteran Member

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Date: Wed May 20 7:33 PM, 2015

Are they doing topography of your eyes on a regular basis? That is the only way that I know of for tracking the progress of your keratoconus (KC). You are approaching the age where KC usually stops progressing. One of the few benefits of everything stiffening up as you get older. If you get good vision with glasses, then you don't really need to worry about the more complex solutions to improving vision with KC. On the other hand, you might want to try conventional soft contact lenses if you haven't already. If you have mild KC, which it sounds like you do, a soft contact lens can sometimes mask the slight corneal irregularity. I would try a stiffer lens like the Air Optix Night & Day if you want to try soft contact lenses. The AON&D is available in a toric lens if needed. I second the opinion on seeing someone who does CXL (corneal cross-linking) as they will also be more familiar with KC than those who don't. If you decide to go for contact lens fitting, try to find the most experienced fitter for irregular corneas that you can. Even though it sounds like your case will be simple, by KC standards, those who don't do KC fittings regularly won't know about all the options and the many tricks for fitting KC patients.

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