All of us Vs Keratoconus

Members Login
Username 
 
Password 
    Remember Me  
Chatbox
Please log in to join the chat!
Post Info
TOPIC: My CXL + T-PRK experience in Canada


Veteran Member

Status: Offline
Posts: 59
Date: Tue Aug 5 9:40 PM, 2014
RE: My CXL + T-PRK experience in Canada
Permalink   
 


No, I haven't tried the preservative Bion tears, but I'm pretty sure it's the preservatives that caused me issues before, so I'd rather steer clear of it altogether. I think Target and Wal-Mart are around the same price for the Bion Tears, which yeah, is like $4 cheaper.

Being just a month out of surgery, there is still plenty of changes that will happen. That might be why your doctor doesn't seem too concerned - what you're going through will still be changing on a weekly basis. Glad to hear at least one eye is already doing well.

__________________


Veteran Member

Status: Offline
Posts: 59
Date: Mon Sep 15 5:29 PM, 2014
Permalink   
 

EIGHT MONTHS

So last week I had my appointment with Dr. Stein at Bochner. Leading up to this, in the previous 2 months, I haven't seen too much change. I think my light sensitivity might be just a bit better - if it's early in the morning or almost sun-down and it's very cloudy out, I can survive outside without sunglasses, but usually I still need them outside during the day regardless of weather. Dryness and ghosting seem at about the same level.

I got to the Bochner clinic about an hour and a half early and they were able to see me right away. They did the glaucoma test, the auto-refractor, and the pentocam test, and several minutes later, Dr. Stein saw me.

Similar to what another poster mentioned above, Dr. Stein, although very pleasant, was not interested in having prolonged conversations and I think I only spoke with him for a total of 2 minutes. He told me my right eye was much improved from before the surgery. I was able to take a glance at the pentocam results, and could see that my right eye on the chart looked fairly nice and uniform. My left eye though, not so much. I could see with the left eye that there were 2 red peaks right at the centre of my eye instead of just one, which would certainly explain why its ghosting is significantly worse than my right eye.

I quickly told him the issues I was having, and he prescribed me Restasis. The prescription had already been printed out and signed before I talked to him. He came across very optimistic about the results of Restasis, claiming that he's had patients read 5 lines better on the eye chart after being on it. He also proscribed me a steroid drop, Alrex, that apparently will help my eyes adjust to the Restasis. And that was it for the visit. Including waiting room, tests, and talking to Dr. Stein, I was in and out in 15 minutes or less. But at least I got what I was hoping for, and that's a Restasis prescription.

So now I've been on Restasis for a few days. The literature says that there won't be any results visible for 8 to 12 weeks, so I'm certainly not expecting anything to happen soon. I've read a lot of reports of eye burning and blurriness when taking the drops, but I'm not really having any problem with this right now. The literature for the drugs also mentions upping Omega 3's, so I've redoubled my efforts at eating Omega-3 rich foods and taking Omega-3 suppliments as well.

So now it's time to just wait and see. I'm feeling cautiously optimistic right now, and am just happy to have gotten to the point where I'm not obsessing all the time over how well my vision is doing and how things are changing. In a little over 2 months though I have a trip to the Caribbean planned, and am hoping the light sensitivity has dropped enough by then that being in a very sunny climate for a week will not bother my eyes too much. But if that's the worst thing I'm worrying about these days, things can't be too bad.

__________________


Senior Member

Status: Offline
Posts: 101
Date: Thu Sep 18 12:04 AM, 2014
Permalink   
 

They have "parted the waves" to let you get to the other side...thats the main thing...don't worry about the small puddles left behind!

Of course you still have Restasis to try and lenses and you have your trusty sunglasses!

Lots of people do wish they were in your boat! smile

Let us know how it goes



__________________


Veteran Member

Status: Offline
Posts: 59
Date: Wed Oct 15 5:09 PM, 2014
Permalink   
 

NINE MONTHS

I've now been on Restasis for 1 month, and I also just week had another appointment with my optometrist, so I thought I'd give you all an update.

I think my dry eyes is very, very slowly improving. There's no expectation that Restasis actually improves anything until you've been on it 8 weeks, so I don't think that's necessarily helped too much. I've also been giving myself a good strong dose of Omega 3s (and trying to limit Omega-6s, as they counteract the effect of Omega-3s). This has been through a combination of supplements and making a point of eating Omega-3 rich foods (Canola Oil, Omega-3 eggs, walnuts, etc.) I decided to stop the use of artificial tears altogether when I started on Restasis, so that I could more easily tell if things were improving. For the first few days I needed to use artificial drops in the evening still as my eyes were getting very uncomfortable, but now, even though my eyes do get pretty irritable in the evenings, I don't find I need the drops. Obviously the Restasis drops themselves provide a bit of lubrication, so I'm still giving my eyes some assistance, but I think things are improving.

I've had a quite noticeable improvement in light sensitivity. On really cloudy days (no blue sky visible) I can go out without sunglasses. It's been nice to see some progress there. It's possible that it is just the steroid drops doing it though. I've been off the steroid drops for a little less than a week, so if it was just those drops, I should know within the next few days as they completely wear off. But I think there has been some real improvement.

My appointment with my optometrist had low and high points. When I first arrived, the assistant tried to use the tonometer on me (the device that blows an annoying puff of air on your eye to measure fluid pressure in your eye). She kept getting an error, and kept trying again and again. I tried to explain that the test probably wasn't necessary (as I'm such a regular customer and have had it done multiple times this year already) but she insisted, and it took about 30 attempts per eye to finally get readings. With my eyes already dry, this was really annoying and irritating. When I mentioned this to my eye doctor, he told me that having Keratoconus and a bumpy eye surface will make the test much harder, and they should only try it once or twice and then give up.

But onto the high point of my visit. Over the previous few days, I'd noticed it was getting a bit harder to read the computer screen - I was increasing the font more and more often than usual when reading websites. And at the appointment, I found out why - the shape of my left eye has changed quite a bit. We were trying to find where I was at, prescription-wise, and doing my left eye, adjusting the lenses etc., and when reading a line, had to ask my doctor, "Wait a second, does that say '30' beside the line I'm reading?" He answered, "Yes, that's the 20/30 line." He swapped the machine back to my current prescription, and I could hardly even tell there were letters on the screen, let alone read them. I didn't even try 20/25, but since I could read the "30" (which was much smaller than the text) I'm guessing I could have read at least some of the 20/25 letters, which would have put my left eye close to my right eye! So after several months of no change in my left eye, it's all of a sudden taken a big leap forward, and it's corrected vision is now at least 2 lines better than it was before.

Also, my doctor mentioned that my corneal haze is finally starting to really fade - apparently last visit he had figured that the haze I had left was going to be permanent (something he never told me, but I guess I'm glad he didn't.)

So I'm quite excited by that news. He didn't give me a new prescription yet - we're going to see if it changes more over the next 3 months, especially since the Restasis will have kicked in by then and things may change even more.

So overall, this has been possibly the most positive stage of the journey yet - dryness has had a mild improvement, light sensitivity has had a noticeable improvement, and my one eye's visual acuity has had a big jump after I thought everything was settled.

__________________


Executive

Status: Offline
Posts: 153
Date: Fri Oct 17 7:50 PM, 2014
Permalink   
 

I hope your recovery continues even more than whats been achieved !!!



__________________


Veteran Member

Status: Offline
Posts: 59
Date: Sat Oct 18 12:25 PM, 2014
Permalink   
 

Remo wrote:

I hope your recovery continues even more than whats been achieved !!!


 

I hope so too!  After several months of no progress, it felt great to get some good news and to see some actual progress again.



__________________


Veteran Member

Status: Offline
Posts: 59
Date: Sun Nov 16 12:31 AM, 2014
Permalink   
 

TEN MONTHS

I've now been on the Restasis for two months. This is when it starts to be possible for me to notice improvements, and I think I have. I haven't really noticed visual accuity improvements or ghosting going away, but my eyes definitely do not feel nearly as dry as they did. So I think the Restasis, in combination of upping my Omega-3s, has really started to improve things.

My visual accuity (with glasses on), over the first couple weeks since my Optometrist appointment a month ago, continued to degrade, and now has seemed to level off again. I believe this to be a good thing - my eyes have still been settling, and my prescription is changing. I'm hoping that in my next optometrist appointment in january, I can get a new pair of glasses and have noticeably improved vision (it could already be improved somewhat noticeably at the last appointment, but we held off to wait for my eyes to settle even more.)

As far as light sensitivity goes, once I got off the steroid drops that Dr. Stein had me take for the first few weeks with the Restasis, my light sensitivity got worse again for a couple weeks. But the last couple weeks, along with the dryness, have seen quite noticable improvements. I can now go outside without sunglasses on a mostly cloudy day.

So, mostly good news again. Of course, I thought recovery from this surgery would be done by 6 months, and now 10 months in, the recovery is ongoing. Not the greatest results, but I'm happy to see my recovery didn't just stop where it was at, at 6 months!

Feeling pretty optimistic overall.



-- Edited by jgcpalmer on Sunday 16th of November 2014 12:32:15 AM

__________________


Executive

Status: Offline
Posts: 155
Date: Mon Dec 1 1:30 AM, 2014
Permalink   
 

jgcpalmer,

Reading back your tread...to when you first started it and how now with hindsight, it can be seen that the advice given by a members may have seemed like an over estimate, and it could no way take up to a year for things to settle down, and that the recovery takes its time and that visual improvements could well continue for a good year or so.

Many have and do suffered much worse due to the lack of treatment or even the right treatment. There is a solution, which is going to be a personal battle to undertake, to reach their personal visual goal, and as KC is very much different for each patient.

Its an absolutely amazing blog you have got here, it should be in the newspapers! smile

Its a wealth of information for those who fall in to KC.furious

Wayne

 



__________________
«First  <  17 8 9 10 1113  >  Last»  | Page of 13  sorted by
 
Quick Reply

Please log in to post quick replies.

Post to Digg Post to Del.icio.us

www.kcfreedom.org

Knowledge Works