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Post Info TOPIC: infection after cross linking


Member

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Date: Sun Nov 18 4:36 AM, 2012
infection after cross linking
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i am new to this and all forums so please be patient with mesmile my 21 year old son had cross linking in both eyes 9th august and immediatly developed a very serious eye infection in his right eye discovered 3 days after procedure. they treated him for virus and bacterial infection after many tests and countless drops they said that he had virus in his nose strepha??? and that attacked the eye. he was in great pain and had to remain in a darkened room for over a month no tv no computer games etc. it eventually healed and he was told that it had left scarring kinnda like a shattered window pane and he would have to have a cornea transplant in the near future 6 months after being infection free. 3 months after the procedure and only few weeks after being free of the infection it has returned with a vengence. once again they have taken swabs and injections in the eye and treating him with zovirax (cold sore treatment) and antibiotic eye drops. its not healing and he wont go back to the hospital until his appointment date he feels like a nusiance. i know i cant get though to him.

i am worried sick he has gone from a vibrant lively young man to quite withdrawn in his room and only occassionaly socialising any advice comments feedback anything at all would be appreciated. many thanks for taking the to to read this. i am based in uk

 



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Deb


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Posts: 115
Date: Sun Nov 18 9:24 AM, 2012
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Sorry to hear of the relapsing infection. Unfortunately every treatment to the eye has a small risk of infectio, but not going for a treatment to avoid that risk, as your aware, has its own set of negatives, and you have been very unlikey with the way its gone so far for you.

Do you think the infection was not got rid of the first time round because your son should have been monitired and kept on the anti infection medicines for longer ?

Do you think there might be a possiblity the virus/bacterial infection was there undected before the treatment ? Which hospital is he going to ? Where did he have his crosslinking ? was his KC progressing ?

Do he get water into his eyes or rub them (and wore an eye shield for when he sleeps) while the healing from the crosslinking was going on ?

Follow the advice of your eye care provider closely in your sons current and future treatment, and if you wish to get a 2nd medical opinion or even a 3rd, this may help you feel more confident on the treatment plan to follow.

Best wishes

Debby



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Executive

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Posts: 155
Date: Sun Nov 18 12:57 PM, 2012
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Well this is rare or more precisely, very rare, and if it was the lack of precautions taken then you should find out about what should have been done. Keep in mind that you still do have options available as you have been adviced by the Dr.

When the time is right and a transplant is talked about again, ask if it could be a partial transplant and if laser surgery could be done afterwards (remember though, the answer you will get will depend on who you ask!)

You should see if you could/should get some counseling for your son.

Every good wish

Wayne



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Member

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Date: Sun Nov 18 7:44 PM, 2012
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we were very vigilant with the drops and everything after the procedure, he wore the pads and shields as he felt they offered him some relief from the pain he was prescribed co codomal which did not ease the pain he was in. he remained on the treatment until the hospital said that the infection had cleared up and they told him to stop taking them. to be honest it was his nan and myself who administered the drops every few hours as he was on approx 5 different ones. we wanted to ensure that it was done correctly and was vigilant about hygiene etc.  we had to actually write a rota some to be taken every 2 hours some every 3 hours and so forth we even gave the during the night he had five hour break during early hours of the morning the cross linking was carried out at liverpool st pauls by a cornea nurse and the doctor administered the first cut then she proceeded with the procedure of admisinstering the riboflavin etc.

rehabilitation officer came ut from bradbury fields (previously known as the liverpool blind support) to offer support and counselling but my son declined it hes a ''young man about town'  and would not consider the counselling

thank you for kindly responding. i initially took him for a 2nd opinion 2 weeks into the first infection in manchester and the doctor told me to carry on with the treatment at liverpool

yes the kerataconus was declining at rapid rate he was diagnosed 18 months before having the procedure.  the left eye has healed up okay



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Executive

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Posts: 152
Date: Mon Nov 19 12:35 AM, 2012
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Infection aside (and lets hope it clears up as soon as possible) it is still relatively early in the recovery and it still may be possible the scarring can fade away as the cells with in the cornea regenerate.

You may want to contact davidjory.co.uk he was the first to train and carry out Crosslinking in the UK

Best regards

Remo

 



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Member

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Posts: 8
Date: Tue Nov 20 6:04 AM, 2012
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i would like to thank you all for you repsonses and i have emailed david jory for advice once again thank you it stops us feeling so isolated


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Member

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Date: Sat Dec 1 6:20 AM, 2012
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I am absoloutley distraught the infection in my sons right eye seems to have spread into his left eye. they have prescribed more antibiotics for the left one as the right is trying to heal. i am now terrified that he is going to experience scarring in this left eye as well as the right. we have just come from the AnE eye dept and have to go back monday morning to see the professor.can anyone please help with advice.



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Executive

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Posts: 152
Date: Sat Dec 1 1:58 PM, 2012
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Did you ask how this infection may have spread ? Keep to your Drs advice, follow it closely.



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