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Post Info TOPIC: My Keratoconus


Senior Member

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Posts: 107
Date: Wed Feb 1 10:29 AM, 2006
RE: My Keratoconus
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 it was not a wrong fitting of sclerals (kishore you asked me yesterday in the message), i would consider it as a trial fitting , a learning phase for my eye  to get adjusted  and used to scleral lenses , a last resort for my eyes before graft .


in the pair which they gave me in november end  the fitter got to know the modifications which were actually needed by my eyes , the lenses were also monitored by a senior doctor  i have absolutely no doubts about the treatment and guidance that i am getting from this eye institute 
   the doctors have instructed me now not to travel alone in the journey , being alone i had to wear and take off my scleral  lenses  tlme and again when i change trains ,not a good idea , it is quiet  inhygenic in indian trains  without getting my hands dirty, this was responsible for the allergy that i had  ,


i need to reach my destination at least 24hours before the scheduled appointment and have a good sleep


.
i need to stay in hyderabad for atleast one week after they dispense me with new sclerals so that my doctor can see the fitting, effect etc  after  2-3 days of  prolonged wear of 10-12 hours just in case any more modification is required


these things i learnt from my past experience and others should take advantage to be more cautious even when you are wearing rgp's on a journey disinfect your hands before touching your eye


 


 





-- Edited by Vikram at 07:22, 2006-03-22

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Senior Member

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Posts: 107
Date: Thu Mar 16 8:32 AM, 2006
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the change boston foundation has done for my eyes in the lenses received on 6th march is  making me wear the sclerals for a longer period , the fit is more comfortable , am not finding any stinging feeling as i used to earlier


the lenses have been designed in such a way that at three points there are pressure releasing grooves  where unneeded pressure in the centre gets released ( no fenestrations)


 



-- Edited by Vikram at 07:25, 2006-03-22

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Senior Member

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Date: Wed Mar 22 7:33 AM, 2006
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i have  been called by the hospital on 2nd april for a final  inspection by the fitter for  my right eye scleral .  the eye in which they made customised changes  for my globus cone  



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Senior Member

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Posts: 107
Date: Tue Jul 11 2:13 PM, 2006
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thanks god we've recieved  monsoon showers  yesterday much relieved from soaring heat with which my eyes could not cope with . the weartime also needed to be cut short.but nothing doing on weekend nights when i wear for more than 12 hours but abstain wearing them on sundays , just for wearing in the evenings for a few hours  for taking my family out


the swift market activity is shortened due to holidays and rains means i can be free to write more  , summer holidays are about to be over for schools


     



-- Edited by Vikram at 14:38, 2006-07-11

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Newbie

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Posts: 1
Date: Wed Jan 10 12:11 AM, 2007
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Hi Vikram ,


Where in North India are you from ?



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Dinesh


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Posts: 107
Date: Thu Jan 11 9:41 AM, 2007
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hi dinesh

i am always available on the id i have posted you.

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Senior Member

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Posts: 107
Date: Tue Aug 12 8:44 AM, 2008
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hello again
am back after a long  pause!   life has been moving on with KC  need to cope up . keep fighting. dribble the odds make use of even that you experience


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Senior Member

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Posts: 143
Date: Tue Aug 12 3:27 PM, 2008
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Hi Vikram, I have read your posts, you did turn it around, and in life if its not one, its another... for us that one thing is KC

Keep well

K

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