All of us Vs Keratoconus

Members Login
Chatbox
Please log in to join the chat!
Post Info TOPIC: Keraflex KXL by Avedro - anybody in the trial?


Member

Status: Offline
Posts: 6
Date: Tue Dec 13 7:55 PM, 2011
RE: Keraflex KXL by Avedro - anybody in the trial?
Permalink   
 


I know from other person in germany (done by Dr. Paulig, Cottbus, same month as my son) where keraflex was not successful. In german board http://forum.keratokonus.de there was a lot of discussion  about keraflex procedure.



__________________


Executive

Status: Offline
Posts: 155
Date: Fri Dec 16 4:37 PM, 2011
Permalink   
 

Dr Paulig has gone back to doing the orginal crosslinking as Avedros Accelerated KXL (3-5 mins) in her experience has shown to be not as good.

But a 10 mins crosslinking of the IROC machine may be as good as studies are underway on it from early lab tests.

Avedro is pushing their machines as something even non KC patients could have (with out studies to prove it)... when really Keraflex is worth a try before a transplant...not early on or to replace laser surgery for ordinary corneas.



__________________


Member

Status: Offline
Posts: 6
Date: Sat Dec 17 10:27 AM, 2011
Permalink   
 

Thank you for this information.

I also think that Avedro's fast crosslinking didn't be sucessful for a few patients from Dr. Paulig in Germany and maybe other medicals . (my son, too). We payed a lot of money for a bad not stable avedro keraflex/crosslinking treatment. 



__________________


Veteran Member

Status: Offline
Posts: 97
Date: Sat Dec 17 4:00 PM, 2011
Permalink   
 

Have a read about Dr Waxler

His site is:

http://www.waxlerfda.com/

 



__________________
Luciano

Date: Mon Oct 8 12:10 PM, 2012
Permalink   
 

Spotix can you write to me? My name is luciano and i did Keraflex and didnt work. I tried to contact avedro and they also ignore me. They dont care about the pacients. luciano.documentos@gmail.com

__________________
spotix

Date: Tue Oct 9 8:05 PM, 2012
Permalink   
 

I will write an e-mail to you. I also sent a lot of mails to avedro. I never got an answer. I hate, that my son had done keraflex and avedro fast crosslinking. 18 month after keraflex he had the scar in his eye because keraflex procedure. 



__________________


Member

Status: Offline
Posts: 6
Date: Tue Jan 8 4:19 PM, 2013
Permalink   
 

Hello, I found this study of Keraflex procedure. It seem fast cxl is not good in any case:

http://www.rmsolutions.net/rmfiles/ESC2012/005007.pdf



__________________
Deb


Veteran Member

Status: Offline
Posts: 96
Date: Wed Jan 9 9:27 AM, 2013
Permalink   
 

Thanks Enhiro for posting that link. It does seem like doing Crosslinking after the cornea has returned someway after Keraflex holds the cornea longer. The very fast, the few mins Crosslinking is new and its getting studied with the longer and established 30 mins Crosslinking. The optimum amount of mins that works best (in effect) and is the quickest (for that) will be know in longer studies.

Best wishes

Debby



__________________
«First  <  1 2 | Page of 2  sorted by
 
Quick Reply

Please log in to post quick replies.

Post to Digg Post to Del.icio.us

www.kcfreedom.org

Knowledge Works