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Post Info TOPIC: Keraflex KXL by Avedro - anybody in the trial?


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Date: Thu Dec 8 5:37 AM, 2011
Keraflex KXL by Avedro - anybody in the trial?
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Hi

I have heard for Keraflex KXL trials in Europe during a consultation with Dr. Hersh in New Jersey CLEI.

Has anybody on this forum gone through the procedure?

Is this a commercial procedure in Europe now?

 

Any information would be great

 

Thanks

Tesh



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Executive

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Date: Fri Dec 9 10:27 AM, 2011
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Hi Slysurfz,

I havn't heard of trials that can be enrolled for.

However the fornt runners in Keraflex are:

Dr Cummings in Ireland

Dr. Paulig in Germany

Dr. Rahman in the UK

Dr. Yilmaz in Turkey

Contact them and they will let you know where they are at with it.

It depends on your situation (for example if you are contact lens intolerant) and if you elect to have it, and are suitable for the treatment (for example if you have central scarring then this would need to be addressed first I guess). But the Drs would know more on the details from their experience.

Remo



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Date: Sat Dec 10 7:45 PM, 2011
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My son (14) had done keraflex and avedro short crosslinking in May 2011 in Germany, Cottbus by Dr. Paulig.  It wsn't successfull. Before the treatment he had kk status 2 now six month later he hat kk status 3. The crosslinking wasn't stable. I asked avedro two times via webform why avedro crosslinking did't work but i never got an answer. Five month later after avedro crosslinking in cottbus my son got a second crosslinking by another dr. in south germany (classic crosslinking).

For me and my son keraflex / cxl by avedro wasn't a good idea.



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Date: Sat Dec 10 7:47 PM, 2011
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The price of the kxl/cxl procedure is high.



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Date: Sun Dec 11 3:47 AM, 2011
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I have had crosslinking done 5 years ago in Dresden Germany.

Its pretty stable

I get 20/25 vision using Acuvue daily disposables.

I heard that keraflex can take off 4 diopters, I have -12.0 in both the eyes which is not a full prescriptions obviously.

I have no scarring, I was hoping i could cut down on diopters and get flattening on the cornea so that night vision is better

I recently had an eye infection couldn't wear contacts for a while

lost out on a lot of pay and was handicapped with my thich glasses not doing anything for my vision.So started researching keraflex and its results.

 

Thank you all for the feedback. I would definitely want to know more.

Dr. advises that I dont need it as I am fine with the least optimum lens solution at this point. I however am not fine with it as there are problems I face in everyday life just  like any other KC'er so am in the everlasting quest for improving vision to the next level

 

 

 



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Executive

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Date: Sun Dec 11 4:00 AM, 2011
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Hello Spotix,

Sorry it hear your not happy with your sons treatment.

From discussing about Keraflex, its best to not do crosslinking at the same time but to wait a week. Its the way to get the most corneal flatterening. This was something they did not know about early on.

Keraflex will come undone if no Crosslinking is done. The heat ring created will go away over time in any case.

When I say Crosslinking I mean the orginal method, not the fast mentod (as there is no study results to say if it just as good as the orginal method).

A university in Ireland has got the ethics approval to study the faster Crosslinking, we await for the results.

Remember, the real test for us KCers is vision in low light and in the night time, and with many treatments your day time vision may improve, but night vision problems still may continue to disturb you by some way or it may get worse. So it might be worth thinking about just opting for something new (a new treatment) on one eye only (the worst eye). Obviously stay with contact lenses if your doing fine with them.

Wayne



-- Edited by Wayne on Sunday 11th of December 2011 04:17:27 AM

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Date: Sun Dec 11 3:35 PM, 2011
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My son got fast crosslinking (original AVEDRO KXL fast crosslinking - CE BASED cry  ) four weeks after avedro keraflex treatment (May 2011). A few weeks later the keratokonus was more advanced as before the keraflex treatment, done by Dr. Paulig in Cottbus. It was not stable. Now 7 month later our new Dr. in Germany thinks that the keraflex scar will not cure.



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Date: Sun Dec 11 6:09 PM, 2011
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Spotix,

Its CE marked but there is no study done on the fast Crosslinking. Thanks for reporting it to us that it hasn't worked.

For a 14 year old, Intacs was not an option or other surgeries. A corneal transplant as you know is invasive. So Keraflex was worth a try (?)

Did you try diferent contact lenses and even a scleral lens ? you can still do this now ? I hope you can get your sons vision corrected this way ?

Watch this video - there are 7 parts. The Avdero owner (David Muller) has a history. Is history repeating it self ?



-- Edited by Wayne on Sunday 11th of December 2011 06:12:04 PM

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