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Post Info TOPIC: The horror of the transplant


Executive

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Posts: 149
Date: Thu Aug 4 1:30 PM, 2005
The horror of the transplant
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The horror of the transplant and why should we try to avoid transplant.


Please click below:


http://forum.keratoconus-group.org.uk/viewtopic.php?t=676



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Executive

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Posts: 397
Date: Thu Aug 4 5:24 PM, 2005
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Hi Valeri,


Its going to take a major attitude change for the medical community to change the 'official line' on graft. It is often said that only a small % of kcer's ever have to have PK. But that is not the point... the point is that the graft is portrayed as something that it is not, the numbers are manipulated to its best advantage and worst of all we are not told of the alternatives.


I have been told many time that there arent any alternatives!!! Both you and I know that is not true (see mini ark--crosslinking) The pity is that many others are left ignorant of the facts. This is no fault of their own... it is firmly the fault of a stubborn medical establishment. One that operates by a criteria that is unmanageable and one that passes over anything that does not fit its idea of 'good medicine'...


Its pleasing to see that cross-linking is getting its time in the sun... that the slow wheels of medical progress are finally getting to grips with this exiting new technique. Lets just hope that it is not corrupted but instead offered up as another viable option in the fight against KC.


Hari



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Executive

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Posts: 437
Date: Thu Aug 4 11:36 PM, 2005
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O yes!
The static paradigme of keratoconus, Diagnosis - Lenses - Transplantation - ..., should be broken!

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yarsky
Anonymous

Date: Fri Aug 5 6:02 AM, 2005
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....and after the transplantation it is more than likely that you will still need contact lenses!!....


Now consider what is a person who is intolant to contact lenses in the first place is ment to do, when after the transplantation they still need contact lenses to see?...


Patients are told that if contact lenses are of no use, then go and have a transplant?... when they fully know that contact lenses are more than likely still needed after the transplantation?


I think the pain that comes with contact lens wear is more severe with people with kc... as their eye are more sensitive when they have a weakened cornea...


...(and many suffer in silence with this)... 


...and so this medical loop has to be broken like yarsky says...


This medical loop just will not end until patients are put first... I believe the most important person in a hospital or a health care center is the patient!!...


...the task to educate the unwary kcer is a hard one... but its a worthy challange... if there ever was one...


 



-- Edited by QuintriX at 06:03, 2005-08-05

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Executive

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Posts: 437
Date: Wed Oct 4 10:35 PM, 2006
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Have found this reference on the French Forum. About CREUTZFELDT-JAKOB possibility in tranplanted corneas. Shocking.
please clik here
CREUTZFELDT-JAKOB and corneal graft

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yarsky
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