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Post Info TOPIC: Who is doing epi-on cxl?


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Date: Tue Jul 6 7:44 PM, 2010
Who is doing epi-on cxl?
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Hi, I'm new here. I have advanced keratoconus. I've just found the new riboflavin drops ricrolin for epi-on CXL. I'm very interested, but don't know of any clinics using it. Does anyone know of any clinics using ricrolin?†

I know I could stay in Canada and get normal epi-off CXL but i'm concerned my epithelium is too thin (will find out later today at doctors visit).

http://www.oogroup.it/oftaht/en/md_ricrolin.html


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Executive

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Date: Tue Jul 6 9:40 PM, 2010
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Well the makers says its good, but by how much ? and for how long ? and where are the studies with this solution to prove it ? any prentations at any eye conferences by Drs using this ? (and by the multiple, from multiple centers). Its classed as only the sales men of the company saying this (?). It would be easy to find a place doing this in most places otherwise!

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Date: Wed Jul 7 3:59 AM, 2010
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That is why I'm asking for details about clinics using it. I'd like someone else to be the guinea pig.

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Date: Sat Aug 7 3:40 AM, 2010
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I briefly read up on this on another thread on this site. †The claims made for this treatment sound no different than Dr. Boxer Wachler's. †This doesn't sound like anything new.

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Date: Tue Aug 10 5:58 AM, 2010
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I spoke with a specialist in Vancouver today. He says he's friends with Dr. Wachler, and said even dr Wachler has given up on epi-on treatment. He's gone back to removing the epithelium.

Further, we discussed CXL and he made it clear it was really the removal of the bowmans layer that let the riboflavin really soak through the stroma. I'm still very interested in ricrolin-TE but I want to know how it works.

Also, I've read a comment from a Dr Aylin (Ertan) KlÁ in turkey saying an alcohol wash for 20 seconds before treatment is effective in removing the epithelium (no mention of bowmans).

The reason for my obsession is improved safety, fewer complications and deskilling the procedure. deskilling will also help lower the cost.

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Date: Tue Aug 10 6:09 PM, 2010
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I agree, i would go for preemptive CXL if it werent for the epi off. Scratching the epi off and the epi healing was the only disturbing thing about CXL for me. Furthermore my optician could notice minor "scratchmarks" on the cornea for up to a year.

If CXL-on would be as effective i would CXL my better eye even though it shows no or very minimal progression. It is a bit strange that epi on isnt investigated more?

Br Henrik.F


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Date: Tue Aug 10 7:52 PM, 2010
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It is curious, particularly because of the significant profit available there.

If a drug/medical company comes up with a workable epi-on cxl treatment it's very possible for it to become the standard early stage treatment and gain considerable market share. I would think that they'd be champing at the bit considering it's such low hanging fruit.

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Date: Tue Aug 31 5:05 AM, 2010
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I agree with what is said. I did the epi off cxl and a year later I still have a bit residual haze.

The positive thing is kc has stopped progressing and there is evident flattening of the cornea. Vision is good.

Haze causes bad night vision so if epi on is as effective as some doctors are saying then I wuld have done that for sure.

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