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Post Info TOPIC: Fixing vision after crosslinking


Executive

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Date: Fri Jun 24 12:39 AM, 2005
RE: Fixing vision after crosslinking
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Hello again Yarsky,


I see you have settled in and started to read the forum... It can take a long time but its well worth the late nights


regards,


Hari



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Executive

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Date: Fri Jun 24 2:32 PM, 2005
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yea, i'm reading it, thanks...It makes so hot. This temperature and air condition does not help. I think of two options available for me now 1)new lenses 2)crosslinking


current topic of interest are:


1)crosslinking after-maths


http://augen.uniklinikum-dresden.de/seite.asp?ID=154


2)silicon-hydrogel


http://lagado.net/silicone-hydrogels.htm


3)artificial cornea


http://www.cornea-engineering.org/uk/projobjectives.html


If something happens with the crosslinked cornea, will it be possible to change it, I mean, transplante a human or an artificial?


Do you know the differences in the procedure in an artificial cornea grafte and an ordinary one?



-- Edited by QuintriX at 03:01, 2005-06-28

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yarsky


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Date: Fri Jun 24 7:11 PM, 2005
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Good qustion Yarsky,


What is the information on post crosslinked corneas... I mean if the treatment is not succesful then what options are left open to us? (I'm sure that this has been answered elsewhere but this damn heat is making me lazy )


Hari



-- Edited by Hari at 19:33, 2005-06-24

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Anonymous

Date: Mon Jun 27 6:12 AM, 2005
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Hi Yarsky...Very interesting questions which I think has not been asked yet! So thanks for bringing them to our attention!


(BTW I fixed the link problems...the artifical corneas link seems to be a broken link)


Anyway you asked...


If something happens with the crosslinked cornea, will it be possible to change it, I mean, transplante a human or an artificial?


As far as any of the studies goes...no one needed a transplant after x-linking...


I spoke to a doctor doing x-linking by phone...and she said that "kc will not get worse" by doing x-linking.


Now...in the event of ever having a transplant if the effect ever does ware off, and then your kc does ever progress to a point that you need a corneal transplant...is not known about, as its never happened...however i think its a good question to ask by any takers...


Personally my view is the same as what the x-linking doctor i spoke to said...which is X-linking will not make your kc worse! in that, the worst that could happen is that you go back to what your kc was like before you had x-linking...so to me that leaves me open to all the options in treatments again! or even other new treatments to come!



Do you know the differences in the procedure in an artificial cornea grafte and an ordinary one?


I think artifical corneas are "in the works" and it has not been let loose on to the general public just yet...(The alpha cor artifical cornea is only being used if transplantion can not be done for what-ever reason, which is not useful information to know if your trying to avoid a transplantation in the first place)....the other types which is more useful to think about are the ones they are developing which "mimic" the properties of the cornea more because they are trying to replace corneal transplant as a treatment...


So artifical corneas of this type has to been pinned down before it can be compared to a corneal transplanation just yet as its still in the "works" being developed.


All the Best 



-- Edited by QuintriX at 23:47, 2005-07-17

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Member

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Date: Sun Jul 17 9:14 PM, 2005
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Valeri

Are you saying that your vision pre and post has not changed much with XLinking?

As it seems you cannot get a lens fit?.....or have I misunderstoood

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Executive

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Date: Mon Jul 18 12:18 AM, 2005
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kcparent1999,

you asked Valeri. He will surely answer you when he's back. I beg your pardon for the interference.

I know not much about what really goes on in the crsosslinked cornea. What I know about x_linking is that it aims not to improve the vision. It aims to stop the progression of keratoconus. I think, people might want to use lenses after the procedure. But fitting is not easy because the cornea is not stable for several months after it. It seems that it is in the process of flattennig during months.

My will to undergo this procedure is explained by three points:
- I can live without lences with what I have now (lences seem to be a nightmare to me)
- I do not want it to become worse
- There is a hope that it will become slightly better because of the flattening phenomenon that appears after additional links have been introduced into the cornea.



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yarsky


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Date: Mon Jul 18 1:26 PM, 2005
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kcparent1999 wrote:


Valeri Are you saying that your vision pre and post has not changed much with XLinking? As it seems you cannot get a lens fit?.....or have I misunderstoood


For sure, even recovery is not completed yet, my vision is better now.


I had a lens fit, but as I suspected, after a week cornea was changed so much that those fit was of no use. The optometrist said, judging by the lens and the flourescent model, that cornea is constantly flattening.


In that sense it is true that currently I cannot get a fit. I will be waiting for a few weeks and will repeat the procedure. I will go for a fit, will record the resulsts. Then will be waiting a week or two and will go again. When the cornea stabilizes I will ordering lens and will report the news in the forum.


Currently by my experience, I can say that 4 months after the operation the cornea is not fully stabilized.


 



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Executive

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Date: Mon Jul 18 1:39 PM, 2005
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Yarsky, you and I think the same way...


What I can say once again is that we do not know the longterm consequences of crosslinking. I just hope that there will be no negative impact. Once said that, I can tell you that the sooner the better. Sure there is improvement. I remeber, before the procedure I couldn't stand watching the tv withouth the lens. Now I go to movies, watch tv, drive a car, even now I am typing withouth any difficulties.


I think the best think one can do is to crosslink in the very first signs of keratoconus when vision is better and cornea is still regular enough.


 



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