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Post Info TOPIC: Fixing vision after crosslinking


Executive

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Date: Tue Jun 21 2:22 PM, 2005
Fixing vision after crosslinking
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its now almost three months after the operation and I continue to search for means of correctiing my vision.


I found that soft lens can correct one line at most.


A also found that toric lens does not work in my case. You may know that the toric lens depends on gravity to rotate and stay in place so that they can correct astigmatism. It turned out that the toric lens will not rotate on my cornea.


I spent this afternoon  in the office of an optometrist who did the best she can to suit me with hard lens. At the third attempt we found a lens that are acceptable. At that time, however, I did not ordered new lens, just recorded the fit. I will be waiting for two weeks. Then I will be going to the same optometrist and if I found that my corna is stabilized I will try again the RPG.


The vision with the trial lens were very sharp. I havent had such a vision for monhts.


Will keep you posted...


Valeri


 



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Executive

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Date: Wed Jun 22 11:40 PM, 2005
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Valeri


your story is great. I was looking for some after- crosslinking experience and, finaly, we've found yours. Well, actually, how fast was your KC advancing before crosslinking was applied and what is the perspective? How do you feel now?  It does interest me very much for I would also like to preserve my corneas from futher deformation.


Best wishes and regards,


yarsky


 



-- Edited by yarsky at 00:08, 2005-06-23

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yarsky
Anonymous

Date: Thu Jun 23 2:23 AM, 2005
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Yarsky...welcome to the forum and glad you found us...


I was wondering (due to this topic) If your kc was progressing and what stage is your kc at?


 It would also be good if you can tell us a bit about your-self and introduce yourself to us... It would be great to hear about where you live and if you use correction e.c.t There is a section for new members for that purpose... ...and you state "we've found yours"...who is we?


Good Luck



-- Edited by QuintriX at 00:20, 2005-07-18

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Executive

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Date: Thu Jun 23 8:16 AM, 2005
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Hello Yarski and welcome to our forum.


You can see my complete story in the Share your experiences section.


Anyway I will shorty answer your questions.


The keratoconus was progressing slowsly but persistently. I needed to change lens and I actually felt my corneas weak. Now, 11 weeks after the procedure  I feel good. My vision is not perfect and it cannot be because the corneas are highly irregular. Left eye is stronger but now I can watch tv, drive car, work with computer withouth any correction. That is something I hardly could do before the procedure.


I feel my corneas stronger, although tney are still recovering.


My personal oppinion, which by the way is shared by other people as well, is that the crosslinking is the only procedure that is actually do something to stop the keratoconus. So it may turne out that x-linking and VERY GOOD lens may be the best possible solution for now.


Anyway, talk to you soon.


Valeri


P.S Read the forum, you will be surprised how much information you will find here...



-- Edited by Valeri at 08:17, 2005-06-23

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Fil


Veteran Member

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Posts: 31
Date: Thu Jun 23 9:10 AM, 2005
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Hello Quintrix, Valeri and Yarsky,

Yarsky is in the french's site about keratoconus. He wanted to find some informations about cross-linking. I've told Yarsky to see the site kcfreedom....because kcfreedom is very interesting for cross-linking, and other technics...
I hope the best for all
Phil

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Executive

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Date: Thu Jun 23 10:22 AM, 2005
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Phil - great to see you here! Merci de me faire connaitre ce site!!!


I've read the forum: you guys have got really good information here. Thank's a lot!


Valeri,I've read your story. Thanks again for your experience. 


I learned about crosslinking last September. At the same time I learned about Boxer-Walcher. Recently I learned about Dresden doing this on a looks-like regular fashion. Probably, I will hit this road. I'm still hesitating. The questions are like this:


-how is the intensity of the uv controlled? how deep does the light penetrate into the tissu? does it influence the retina?


-what are the risks of the procedure?


All the best!


 



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yarsky


Executive

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Posts: 149
Date: Thu Jun 23 12:05 PM, 2005
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I understand very well your concerns, before the procedure I had the same question.. even I was thinking: What is the worst scenario that can happen. The truth is that I still do not know.


According to early reserach the ligh is absorbed at the first layers of the stroma and only few percent reaches the endothelium. They say that retina, lens and even endothelium do not get damaged.


My experience shows that as early one do the crosslinking the better. I can state as an example my eyes.


My right eye is the worst one. Two years ago it was good as  my left was just before the operation After the operation the left eye recovecer faster and it has sharper vision. The right eye was advanced so much that that now it has highly irregular kornea.


So If I have done the procedure two years ago, my right eye would be more regular and the left would be just perfect. Unfortunately there was noone to advice me about these things at that time even the Dresden professors already were practicing C3R.


That is my personal opinion, I would not like to urge you to do something because I cannot guarantee that my reflections are right also each case is uniqe. I think the best decision would be taken by prof. Kohlhaas who we respect very much and who I consider one of the world best doctors for Keratoconus.



-- Edited by Valeri at 12:09, 2005-06-23

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Anonymous

Date: Thu Jun 23 12:21 PM, 2005
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Thanks Phil.....Just interested in hearing from new members experiances...So welcome again Yarsky....

-- Edited by QuintriX at 13:56, 2005-06-23

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