All of us Vs Keratoconus


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Post Info TOPIC: KC Parent


Member

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Posts: 9
Date: Sun Nov 18 10:55 PM, 2007
KC Parent
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Hello Mariya,

Thank you for your message. It is very good to hear that your boyfriend has had treatment from Dr Jory. I am pleased that all is well at the moment for him.

It is very reassuring that you only paid for the treatment on its own. As we are very new to KC we are in a position that we really don't know what lies ahead, and if my son would be suitable for crosslinking. I really hope that he Emails me soon to see if he would treat a child. As you can imagine it is a very difficult road for us. A road maybe with several roundabouts! London seems like a world away to us as we live in the countryside in a small village, However I think I would travel the world for his treatment.

Thank you again my friend

Kind Regards

Linda.



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Newbie

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Posts: 1
Date: Thu Sep 24 7:56 AM, 2009
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hi Linda

my name is Donna and im from Australia,

My son James was diagnosed in july 2009, he is 9.

he has kc in both eyes his left one was worse, it only took a month for his right eye to deteriorate and match his left eye.

We were put on to a wonderful doctors who is running trials of corneal cross linking, and James was the youngest child he knows of to undergo bilateral crosslinking.

one month on and his right eye has seem to stablise, but his left eye is going to give us grief, he will be fitted for contacts as they can't get the right prescription for glasses.

I have heard, and have been warned off the intacts.

James was in discomfort for about 4 days after the crosslinking, and is sensitive to light.

it is such a huge decision and so hard to see your child in pain.

we are just taking one day at a time, at the moment.

Hoping everything turns out good whatever the decision you make




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Posts: 22
Date: Thu Dec 3 3:09 AM, 2009
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Hi Donna,
I was reading your post and was wondering how your son was doing coping with the rigid lenses. My son (15) has been struggling with them sice May.  By the end of the day his eyes are blood shot and swollen.  Its really quite scary to see.  I hope your son is doing good.  Let me know how your experience is going.....
Joanna

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Newbie

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Date: Thu Dec 19 12:59 AM, 2013
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I have son of 22 who was diagnosed three ears ago with kerataconus august 2012 he had bilateral cross linking but caught infection in right eye immediately after procedure. this lead to severe scaring. he was fitted for a contact in the right eye but he has struggled to fit it. today the consultant said it was basically a waste of time the contact (in so many words) and he should now consider a corneal graft I am frozen with fear but realise I have to do as much research as possible which I failed to do for the cross linking and on refection should not have allowed two eyes to be done at same time any feedback appreciated



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Veteran Member

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Posts: 62
Date: Thu Dec 19 11:45 AM, 2013
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Its not common to do surgery to both eyes at the same time...do you feel you was pushed into doing this ? The Clinic was trying to same time by doing both eyes but what was the rush ?

On the infection and scarring - sometimes in other cases they actually use crosslinking to treat infections and to bring the scarring down.

Infections are a very rare complication but with contact lenses there is this risk, and with any surgery.

Have they discussed what type of transplant it is ? will it be a partial or full graft ? but before this, can laser be used to remove some of the scarring ?



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