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Post Info TOPIC: My story after C3R


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Date: Thu Apr 9 4:54 PM, 2009
RE: My story after C3R
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How are things progressing, Henrik. I hope all is well.

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Date: Fri Apr 10 12:39 PM, 2009
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Hello thanks for asking, i think the CXLed eye is at preop now atleast, in some sense better atleast when i am in bright light. Still havent got time for new orbscan will call the eye surgeons, or try to, they are very hard to reach though. They do operations all day.

I played some tennis some days ago saw double balls coming at me :( , havent put in the lens yet so that was the reason :) I will try to buy new solutions for the lens and put it in this weekend i hope. I am a bit worried about how it will feel without it for one month, I expect a major itching in the beginning. I am also investigating how a soft silicon hydrolgel lens helps my best eye for ghosting etc, i tried a lens with wrong powers and i think the ghosting was reduced, will be nice to try with real power when my optician get it. I might also investigate RGP for the best eye, i suspect the vision can be really amazing with RGP on that one, because i go from like near blind to 7/10 vision on my worst eye. I just like to have the option to get really good vision when i want :)

However it will be very interesting to see how my visual acuitity is with the lens.

Will keep you updated. Fayz how is your eyes doing, have you seen any improvement? Have you thought more about RGP? I actally miss my rgp alot sure it itched a little but it gave such clarity.

Br Henrik.F




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Date: Mon Apr 13 2:14 PM, 2009
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Henrik, Iím glad you have reached the preop level. Epithelium healing takes two months so make sure you are careful with the hard lens. My eyes get red quickly..even with a slight contact of the finger, I canít imagine how they would react to a lens. Iím not sure if I am a candidate for Intacs or not yet but I will try a hard lens first. Iím getting conflicting feedback from Intac users so Iím not sure how good they really are over a regular RGP lens. The idea is pretty much the same i.e. to push the cone back, it doesnít really do any biochemical changes to the eye. I donít think there are many cxl+intacs people out thereÖmaybe weíll have better statistics in a few years. My only concern with RGP is a bad fit leading to corneal scarring but my optometrist is pretty confident that he can help me out so I will give RGP a try before intacs. I have heard some good feedback on synergeyes. There doesnít seem to be a one right answer..it seems like we have are faced with a disease which requires a lot of patience, trials and errors..

Driving at night is my only concern at the moment. The ghosting after cxl has just been unreal from driving perspective. I will get back in the gym more regularly nowÖI stopped lifting weights after the surgery but I think it should be safe now to do light weight workout.


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Date: Tue Apr 14 8:25 PM, 2009
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Hi yes aside from the pain and lack of heavy painkillers and possible eye infection i had first week it is really nice. The doctor was very satiesfied that i can have the lens so quick.

I am not sure but the lens is at least equally comfortable to wear, often i think it fits better, maybe the cone got a little bit more regular.

I suspected the same that the eye should be really sensitive but it gets less pink even after long rgp usage, i actually had it like 14 hours one day. Tennis outdoor in the sun, and movies on the evening.

On saturday i will try on a toric silicon hydrogel lens for the best eye, in order to see if glares can be reduced, if not i might try a rgp for that one too.

So still the glares is worse for you than before CXL?

I finally got in contact with the doctors today, soon i will get a new orbscan and also scan the better eye, they do not want to CXL it without and KC progress. It is so hard for me to decide if i shall push for it. Do anyone know if KC can stop be stopped for a while and then start?

I do not want to introduce more glares and problems to my good eye that is why i dont know what to do with it.

Yeah i think try rgp first, i think a big benefit besides a little pushing back, is that it floats on tears, masking the irregularities hence reducing glares. Without it looking at lights in dark makes no sense at all, with it, now it is close to as good as my spectacle eye.

I asked the doctors about scarring, they say that they seldom see it, i had the rgp for like 1.5 year and the cornea was in perfect clear health. I also have a friend who used rgp for years and had no problems besides the itching and getting pink eye after 10hours or so. If you try rgp, they will probaly call you for revisits and followups really often to see that it fits well and will not harm.

Long mail, intresting to discuss.

Br Henrik.F

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Date: Thu Apr 23 4:05 PM, 2009
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Today marks the end of Month 3. Half way done. I have an appointment with the Ophthalmologist later next week. Hopefully, there would be some good news. As per the instructions letter I got after the surgery, it says vision improves between 2-4 months. If by improve they mean pre-op level then I believe that is correct. It doesnít say anything about the glares which went in the other direction in my case. Iím interested to hear what the Ophthalmologist has to say about that.

Months 4-6 are actually when the real improvement in corneal shape occurs. As per the instructions letter it says corneal flattening could get better up to 2 diopters which is quite encouraging. Regardless, RGP is the next thing on my agenda. I meet my Optometrist during the second week of May to discuss RGP option.

It is interesting to see how epithelium cells regenerate. It is no less than a miracle for it to happen. Sometimes the theory of evolution sounds too easy to explain the complexity of human body. Not all cells have this ability to regenerate like cornea cells, however, the regenerated cells are weaker as compared to the original ones. I have heard some success stories with epi-on method but I guess time will only tell which method is the right one.


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Date: Fri Apr 24 7:31 PM, 2009
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Hi, yes, sounds strange if it introduces more glares and halos. My CXLed eye has still some haze, now it is like 5 weeks since operation, the vision changes every day, dont know if it is better or worse. With the RGP it seems to be the same, maybe better vision in bright conditions, a bit worse in dark, however not more glares, just less sharpness, could be due to haze.

I will get another orbscan in like two weeks, will be very interesting to see some values, also see if my so called "good" eye has gotten worse, dunno what to do with it then, if there is a really slow progression.

You guys who know alot i have† the old orbscan here:

values 1 month preop:

left (worst eye which now is cxled)

Sim Kastg -5,2D @ 133 deg
Max 50,7 @ 23 deg
min 45,6 @ 133deg

thinnest 393um, however the "manual" test they did at operation showed that it was like 420, apparently the scanmachine had some safety marginal, have you heard about that?

Are my values severe?

My "good" eye.

sim k astg -1,9D @82deg
Max 45,3D @172 deg
Min 43,4D @ 52 deg

How servere is that?

What is normal values for a non-kc eye?

Thinnest 422 um hope it is thicker here to due to safety margin.

Will get new orbscan which will be like 3 month after the first scan, and close to 2 month after CXL.

Yes i also read that the vision could be vorse for quite a while, Fayz i hope it will regress to the better, like 80% should get slighty improved vision, but what is improved vision, the snellen chart?

I tried i soft toric lens, i say that RGP lens is easier to handle and they last long.


http://grmc.ca/assets/files/collagen_crosslinking_2008_wolf_long-term-results.pdf

Positive, about changes to the better for a long time.

Br Henrik.F







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Date: Fri May 1 2:45 PM, 2009
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Hi Henrik,
Following chart gives some understanding of the values on topographies. Based on these figures, your good eye seem to be showing some degree of KC. I had very similar figures as your eyes in terms of K values and I went for the cxl in the good eye as per Ophthalmologistís advice.

Corneal curvature
Mild keratoconus 62D

Corneal thickness in microns
Normal cornea 543 Microns
Early keratoconus 506 Microns
Moderate keratoconus 473 Microns
Advanced keratoconus 446 Microns

Speaking of Ophthalmologist, I met him yesterday for my much awaited 3 month appointment. All I got was 90 seconds of his time. I had all the questions written but he was in such a rush that I forgot all of them. He came in checked my eye charts and said things are progressing well. See me in four months time.

As usual, I wasnít satisfied with the time I got but few of my main concerns were answered. I got copies of the maps and compared them to the ones from before. I am very happy to notice that K values have gone down slightly. Both eyes have shown improvement by 0.5 D. The astigmatism in the good eye looks improved by 0.5 as well. However, I noticed the angles have increased a little bit. I think a perfect eye should show closer to 180 degree. Mine were better pre-op than now and I am thinking maybe that is what is causing the glares.

Anyhow, the final result is still yet to come. The visit was encouraging. There is hope for eyes to improve further as the time goes on.


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Date: Fri May 1 2:49 PM, 2009
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My browser freezes when I edit the post. Below is the chart

Corneal curvature





Go to http://www.kcfreedom.org/ and click on Keratoconus for the source

-- Edited by Fayz on Friday 1st of May 2009 01:50:50 PM

-- Edited by Fayz on Friday 1st of May 2009 01:51:24 PM

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