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Post Info TOPIC: My story after C3R


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Date: Thu Feb 19 5:43 PM, 2009
My story after C3R
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I have been reading this forum for a couple of weeks now and I must say you guys are doing a great job maintaining and moderating this site. May god bless you all for a great effort.

A little bit about my story, I have moderate KC in my right eye and mild in the left one. Fearing the destiny of my good eye to be the same as my right one, I decided to go for C3R three weeks ago as apparently this is a promising and only defense against kc progression. I had the usual post surgery drill of one day of pain, bandages off on the fifth and haze for two weeks. Prior to the surgery, I hardly noticed distorted images in my right eye as my left eye was quite dominant. Post surgery, I see distortion in both eyes. The right one is so out to lunch that it makes me laugh and cry at the same time. The left eye which had started showing me doubles is now showing triples. It made me really nervous until I read more about the healing processes on the internet and reviews on this forum.

I just wanted to make people aware that if you are going for C3R in both eyes, make sure you have contingency plans, vacation or disability leave taken care off. You may or may not be able to go back to work in two weeks. You may need new pair of glasses. It takes six months to see the final state of your cornea. Prepare for the journey before you get on this ride.


-- Edited by Fayz at 17:44, 2009-02-19

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Date: Mon Feb 23 12:13 AM, 2009
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1 month post surgery.

No noticeable haze.
Astigmatisim in the left eye is worse as compared to preop
Astigmatisim is the right eye is supposedly slightly better than preop as per the Optometrist.

Can get around..do my job with the glasses, however, not too comfortable with driving during the night time.


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Date: Mon Feb 23 2:53 AM, 2009
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Fayz,

Recovery is in stages, by 3 months things will settle down more and by six months you can say recovery is over, but the cornea going the right way can continue for a year (be it slightly at that time)

If you can get in to soft toric lenses (of the daily disposable type - which is an added bonus), then thats really good news, to get the best possible vision. But CXL is not used to improve vision, only to stop progression. You corneas should get more regular though.

Keep us postedand good luck

Kane

-- Edited by Kane at 02:55, 2009-02-23

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Date: Mon Feb 23 2:07 PM, 2009
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Thanks Kane. I would be happy if I get back to the pre-op level. My next appointment with Dr Stein (Toronto, Canada) is on April 30th. I am looking forward to the topographies.
I will keep this thread updated with the progress. Yours and other members discussion has been very helpful for newcomers. Please keep up the good work.

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Date: Thu Mar 5 5:02 AM, 2009
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Fayz,

Your story is the EXACT same as mine.  My right eye has been virtually useless for years and recently I was noticing my left eye to show double vision as well (especially at stop lights).  Fearing Corneal Transplants or losing my drivers license if my left eye progressed to the point that my right is I started researching C3R.  

I live in Kentucky and travelled to Canada on January 28 to have the C3R done at Bochner Vision in both eyes.  My vision is still worse than preop, my left eye now show 3-4 images at stop lights rather than just double.  I have to squint to read anything and driving at night has become downright dangerous (shhh...  don't tell anyone!)  I keep telling myself that if this is the worst my vision will ever be I can deal with it, not knowing the future before the C3R was my biggest fear.  

I just realized that you may be Faisal from Facebook?  If so that is funny and we will certainly have to keep in touch, we are in the same boat.  Have you expressed any concerns to Bochner and if so what are their responses?  I have been real bad lately about not putting moisturizing drops in, do you think that affects the healing process?

Good hearing from you if thats you Faisal, and nice to meet you if its not Fayz


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Date: Thu Mar 5 2:13 PM, 2009
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Guys, what did your Surgeon say to the lenght of the recovery ? in the early months, there will be swelling and corneal maps will be "all over the place" but by six months things should settle down, and even a year after the treatment you can get some more improvements in corneal shape better than before. However CXL is not use to improve vision only to stablize it.

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Date: Thu Mar 5 5:34 PM, 2009
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Hi Clay,
Yes, we have talked before. Good to see you around man! We live in a small world which is getting even smaller now with the internet. I found some good KC stories on this forum and they have been helpful with respect to what to expect during the recovery phase. Unfortunately, people haven’t been much active in this particular section of the forum so I thought I will update my story for whoever runs into it.

It has been 40 days since the surgery. The ghosting that settled after 2 weeks of surgery is pretty much what I have right now. Some days are slightly better than others in terms. Kreading, I understand that this surgery was not to correct the ghosting or refractive error but to see it getting worse is not what I had prepared myself for. It is still hard to come to terms with the change as it is quite sudden. I have never worn glasses because my left eye was quite dominant but now I do. Since the astigmatism in the good eye jumped from 3D to 4.5D, the glasses became necessary to get me by and do my job. If I had known I would have taken some disability time off from work but I was back at my desk after one week’s of sick leave and one week of vacation. The glasses turned out to be a life saver. My Optometrist is a good guy, he has been quite supportive throughout the process. Much more than what I have heard from Bochner so far. I have made them aware of the change in my vision but I have been kind of pushed back since nothing can be done other than being patient for a few more months.

The quality of vision has improved in terms of regeneration of k cells and epithelium healing but the ghosting has been a real turn off. On the bright side, I hope that this is the extent of deformation of cornea and we are only going to get better now.

It is unfortunate to see that it is a young people’s disease…people who have only just started to build their lives. Some of the stories are really hard to imagine. It is sad to see teen agers postponing surgeries due to financial reasons. CXL should not be thousands of dollars worth of surgery. Heck, mine wasn’t even completed by the surgeon himself. After the epithelium is off, there isn’t much skill or knowledge involved to complete the surgery. But that is just me venting! I hope people who are not aware of cxl get the news sooner than later and surgeons bring their cost down for the youngsters.


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Date: Thu Mar 5 7:45 PM, 2009
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Hi hehe you are making me nervous for my CXL, i am having the epi off CXL in 11 days. But from the reading here i am thankful that the surgeon will start with the worst eye since it progressed the most (even though my better eye is the one getting me depressed with minor changes)

One good thing here in sweden is that they seem to start suggesting CXL for progressive KC, this as a free treatment or hmm will be like 150£ total with all visits. But the drawback of this is that i dont know what to do with my better eye, i am scared to loose vision from CXL and on the other hand if i just wait KC might take the vison, tricky decisions, too bad i read to much about it myself and cant just obey the doctor and dont bother more with it.

But from reading all studies it seems like noone lost more than 1 line after 6 monts and some reports even say noone lost anything, all stayed the same or improved, what to believe?

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