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Post Info TOPIC: Your opions, Haze problems, CXL with rather minor KC?


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Date: Sat Feb 21 6:15 PM, 2009
RE: Your opions, Haze problems, CXL with rather minor KC?
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Hi how long ago was it since you did CXL on that eye? So so far your good eye got a bit worse after CXL? Maybe it will become better in a while?

Thanks for the answers. As i understood the cornea might change for years after CXL, so hopefullt it becomes better.

Br Henrik.F

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Date: Sun Feb 22 3:05 AM, 2009
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CXL's objective is to stop the progression, not necessarily improve visual accuity. In some cases, visual accuity might drop 1-2 lines.
The main reason I am telling you to wait for your good eye is because you might have problems such as dry-eyes symptoms, mostly because of the epithelium removal.If you do see a progression then you can surely benefit from this but otherwise you could wait. Your doctor is the best to provide you with the answer you want.

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Date: Mon Feb 23 12:05 AM, 2009
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I had my cxl done last month. It will be 30 days tomorrow. I am just hanging in there since most of the members on this forum have suggested that things get better with time. As kcgreek mentioned, you do get dry eyes after the surgery. I had dry eyes pre-op and now they are more noticeable. You do need both eyes cxl'ed for sure but timing is important. Ideally, one eye should be functional before you touch the other one.

You mentioned you wear Rose K lenses. What has been your experience with them. I have heard RGPs are uncomfortable to wear. I would like to know what options I have to correct the refractive error. My doc suggested intacs prior to cxl surgery but if I can live without any more surgeries that would be more comforting to know.

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Date: Wed Feb 25 6:24 PM, 2009
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Hi, i use the rose-k lens for the worst eye.  I just put it in and it feels great today, rainy outside just give a big visionboost.

My vision goes from like 1/10 to 6/10- 7/10 with the rose-k ( i cant have glasses with the needed cyl -6 for that eye) thats how all this stuff started and i got to know about my KC. :(

At first I had real issues putting it right, the tears flooded, but now i put into place in 2 sec.

However it  can start to itch in cold dry weather, in front of the computer too much ( unfortunately i work with computers) :) I also realised that it is extremely important to take good care of that lens, i used some month old cleaner for it and it degraded the performance alot, probable some mini scrap on it that irritated the cornea.

But in moist weather and after like 8 h wearing sometimes i forget i even have it so i could absolutely recommend it.

So so far i use it in weekends for spots and other activies and when i get home from work. But now my "good" eye starts to get worse so thats why this CXL project is starting. But first we decided to take the worst eye in hope to stop it before it gets too thin and we also hope that maybe the lens will fit better (seems like many reports suggest that) And ofcourse i also hope for the 1-2 BVCA improvement that 70-80% some reports suggest. But i know i shall only hope and see this CXL as a securing of the 6/10-7/10 something  i get with the rose-k.

I still have problems with nightvision with the lens, but i can make out what things are however i am a bit scared about doing CXL on the best eye, because it is rather dominant. But is a future problem.

You said that your astigmatism so far got worse in one eye after CXL, do the doctor have any explanation for that?

I read some italian results of CXL like 3 of 33 hade visionloss ( 2 lines worse) for the 3 first months, but late time at 6 month i think noone had any noticable vison degradation.

Br Henrik.F







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Date: Thu Feb 26 1:59 PM, 2009
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1/10 to 7/10 is pretty decent. Is it good enough to work on computer? If that is the case then you should not delay cxl on the good eye for too long. I would also suggest getting a second opinion while you are waiting for the good eye to be operated on.

I am getting a little skeptical about the way Ophthalmologist are operating. Since CXL is a relatively new technology at my end of the world, there is a lot of debate on how it should be performed and in what sequence. Since it is a ‘safe’ procedure, surgeons want to do it…but I feel patients should be treated on a case by case basis.

In my case, ghosting and halos increased but it is still early to make any conclusive comments. The vision quality felt better yesterday. Day time is certainly better than evenings. The good eye is doing well with glasses so far.


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Date: Thu Feb 26 5:53 PM, 2009
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Hi I will be the first CXL patient on the regions hospital, but the surgeon seems really good. She said we do the bad one first and see how you react, we will carefully monitor the better one, if it gets worse then we do CXL too. If it doesnt progress then she will skip CXL.  ( I am thinking about this part as i understand KC can stop and then start, would it be worth to stablize it once and for all)

Hmm i think i can work at a computer with the lens, maybe i will have to move the screen closer or lower the resolution a bit.

Yeah I agree its too many different ways, some say do CXL then do PRK or Intacs or do it in the same procedure. Some doctor do the epi on and say it is as good or better and some say that epi on is worthless.

I think mine will do the exact orginal procedure as it has had no complications. Maybe she will thicken the cornea a little.

Today i read about some lenes which the benefits of the rigid lens, ie the good vision and the fit of a soft lens. Sounded really interesting, it should also move around less than a rigid, which would be really good, cause the vision fluctuate as it moves a tiny bit.

Link:

http://www.synergeyes.com/ourlenses/synergeyes_kc.html

Br Henrik


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Date: Sat Feb 28 11:52 PM, 2009
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Thanks Zenke. I will check out Synergeyes website.

When are you scheduled for cxl? You will get a good idea how your eye reacts to the surgery and then you will be able to decide better for the second eye. Good luck and keep us posted.

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Date: Sun Mar 1 11:41 AM, 2009
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Hi 16th March, yes that is my plan to see how it feels. I will keep you updated. How is your vision status, continously changing?

I planned for one week sickleave hopefully that is enough, since i manage with my other eye.

The good part here is that CXL is in sweden getting accepted as a treatment for KC in the official hospitals.



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