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Post Info TOPIC: Do it yourself C3-R Riboflavin/UVA?


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Date: Wed Dec 10 11:36 PM, 2008
Do it yourself C3-R Riboflavin/UVA?
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I've been suffering from Kerataconus, Very mild.  I am able to get buy with soft lenses and glasses.  I've been doing a ton of research about the C3-R procedure and it seems so stupid I can do it myself.

I've heard of some people doing this with success and Im wondering if anyone has heard the same.

The procedure basically drops riboflavin into eye drops every 5 minutes then exposing UV light to the cornea foro 30 minutes resulting in instant results.  

Simple right?  but the problem is...im poor and the procedure is expensive.


Can't I just purchase some riboflavin drops...same ol drops they use in pets like dogs and cats such as OcluVet and use them 3 times a day.  Exposing my eyes just by daily exposure to sunlight (uv light)?? Maybe the process will be more gradual instead of instant...but for a 100 bux... could it really be any different????

Maybe some doctors will hate this, but I mean... Any questions, comments would be appreciated.


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Sam


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Posts: 113
Date: Fri Dec 12 1:54 AM, 2008
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Dont know, but I know best crosslinking involves removal of the epithelium, then the uv exposure has to be at acertain level, or lens can suffer causing cateracts and othe diseases. I know there is crosslinking with epi-on but epi-off is most successful and proper way I believe.

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Date: Fri Dec 12 7:43 PM, 2008
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Even with the epi-on, there is some cornea scratching. I don't think you could have some improvement with this but try to find a clinical trial for crosslinking and maybe you can have this performed for free.

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Date: Fri Mar 5 11:58 PM, 2010
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Where are you from, if you are from uS they provide free of cost as they are doing clinical trials.

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Anonymous

Date: Sat Aug 21 7:10 AM, 2010
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Hi,
I have just had cross-linking done and asked the same -3 .Firstly the riboflaving has to adminitered in the correct amounts at the correct times-..Secondly the UV light isnt UVA light (as from the sun) or it would cook your eyes-Its UVB light0that is safe for the eyes in the correct amount for the correct time....Wouldnt recommend doing it yourself AT ALL as it was a really in depth procedure and I wouldnt risk my eyes with doing it hap-hazardly!!

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Member

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Date: Mon Aug 23 7:59 PM, 2010
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Hi sungminz,
It's an excellent thought you've had, but sadly it won't work. At least not how you envision it. The riboflavin has a high weight which the epitheilium will block.
I think I've read it to be something like 400vs the epithelium allows molecules of about 150 through.

There are some treatments which use a chemical to loosen up the epithelium allowing the riboflavin to permeate through the cornea without removal. Ricrolin-te is one. The other method is alcohol - though I've read conflicting comments on that.

Finally, what I was discussing with my optometrist (Which has several KC patients) is an ultra low dose every day for life. It's possible with regular saturation you may get some riboflavin past the epithelium (nothing is foolproof after all). But then you run into two problems A) riboflavin breaks down in light - you /must/ keep it in a dark place. and B)
riboflavin has a shelf life and must be kept refrigerated, this would get expensive fast.

http://www.oogroup.it/oftaht/en/md_ricrolin_te.html

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Anonymous

Date: Wed Aug 13 4:36 AM, 2014
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The OcluVet eye drops shown here: http://www.californiapetpharmacy.com/ocluvet-solution.html say to store at room temperature and do not refrigerate, so that seems to refute the "must be refrigerated" rule.



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Veteran Member

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Date: Wed Aug 13 11:37 PM, 2014
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I had CXL and I don't think this would work, this procedure has been well researched & finessed with specific amount of drops, exposure to drops & to UV light. Also the riboflavin has to saturate a certain depth of the cornea. Further, Ii was in a very controlled environment during the procedure. Also I checked into a US trial study several years ago and they wanted me to pay $2500/eye. Which is comparable to what I paid in Ireland for T-prk + CXL. I understand about being poor, this has been a real strain financially for my family but I wanted to avoid a transplant at all costs. Maybe since your KC is a mild case if you do have progression at that point it will be covered by insurance.

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