All of us Vs Keratoconus


Members Login
Chatbox
Please log in to join the chat!
Post Info
TOPIC: Why Did Our KC Regress?
Anonymous

Date: Thu Jun 30 4:27 PM, 2005
RE: Why Did Our KC Regress?
Permalink   
 


Hi Yarsky... your guess is as good as any-body's... and you may even be correct...


It would be good hear all the points of views on this so that we can equate it somehow...


Personally i think it may be the case that after a while for some people that there kc "settles" and it is more noticable to those who wear glasses...


I beieve that the body can and does repair it self some-what... i also believe in the power of postive thinking works wonders too...


I just think that those who report to be kc experts don't really know or has never thought that this may be a possiblity and studied it... and also considering the fact that in medical school, student doctors are not being taught about the new things in kc...


All the Best 



-- Edited by QuintriX at 16:36, 2005-06-30

__________________


Executive

Status: Offline
Posts: 397
Date: Thu Jun 30 5:23 PM, 2005
Permalink   
 

It is very hard to estimate what is naturally happening to our Kc... As soon as we are diagnosed we generally correct our vision in some way, either with glasses or lenses... So who can really say what actually natuarally happens to our sight during this time. I remember speaking with Sajeev about control groups of people in poorer countries that cannot afford to correct their KC... it would be very interesting to see results of these kcer's who have never had any correction.


Hari



__________________


Executive

Status: Offline
Posts: 437
Date: Fri Jul 1 1:04 PM, 2005
Permalink   
 

I understand that, QuintriX.


My personal feelings are that my KC does better when I am at leisure...



__________________
yarsky
Anonymous

Date: Mon Jul 4 3:23 AM, 2005
Permalink   
 

Yarsky...are you saying that out of work, rest and play...that your KC effects you at work more or that at work you may need to see more, in detail and so notice your vision troubles more?


I don't know if there is a correlation but certainly since having kc  I purposly increased the rest and play side of my life a lot, and my KC regressing during that time can not be over looked as a side-effect to this... May be its due to having the time to live a more healthy life...



-- Edited by QuintriX at 06:58, 2005-07-12

__________________


Member

Status: Offline
Posts: 7
Date: Wed Apr 11 6:30 AM, 2007
Permalink   
 

My KC very significantly regressed.  I suspect with me it was mostly from diet.  I switched to a vegetarian diet with mostly raw produce, and I went from severe to a moderate case.  I was supposed to have a transplant eleven years ago, but know I'm seeing 20/25 in my bad eye. 

__________________


Senior Member

Status: Offline
Posts: 139
Date: Wed Apr 18 12:26 PM, 2007
Permalink   
 

Xo2159 

How did your kc regress? or what are your thoeries or your eye drs or opticiens thoeries ?

This topic is interesting

I had a brief /quick read at all the posts in these topics...as i am on college computer and short on time i could not take in every singel detail of all the posts so please accept my apologies

I guess i just thought i would say the following

1:
I have borderline underactive tyroid apparently and raised tyroid anti bodies but currenly do not need medication for it....i am to go to endocrinologist on 7th may to have tyroid re-checked and be retested for diabetes

2:

I have Eye-Q supplements...as i have poor concentration,behavioral problems despite being 25 and personality disorder according to the pschiatirst..[my main problem is a personality problem I feel too much anger] and obviously  poor eye sight [compared to people with 20/20 uncorrected thought compared to most kcers my sight is very good...people would not beleive i see as well as i do if they knew my diagnosis] and don't eat fish i thought they might be good idea. plus my brohters girl friends mother said they are good...but i am worred they will interact with prescription tablets for anxiery [75 mg effexor xl a day] and too lazy to ring my gp [no longer see pschiatrist] to check ..

3:

i also bought  memordica whcih contains cinnamon, chromium and other stuff to lower blood sugar [though no substitute for diabete meds] ..as i am terrified i am diabetic and used to drink cola by the gallon..i try to stick to sugar free and diet fizzy drinks now( for past few months I would say i have drunk five litres in past six months of full sugar cola] I am worrried they [the memordica supplements] would screw up the results[fasting blood glucose tests 2 and a half years ago, a year ago and last july were normal} of my diabetes retest so my plan is to if the retest comes back fine is to ask if i need glucose tolerance test as well as fasting glucose retest ..if all is well i will then take supplements to minimise my long term risk of getting diabetes
.. I have severe diabtetic symptoms but three fasing glucose tests over three years ok

4: [most relevenat]
i wear tight fitting rgps over daily disposables to prevent popping out...does flat vs tight fitting contacts influence kc progression

5:
Do alcone systane drops help kc? do they prevent itcy eyes? are they prescription drops

6:
are they any cataract drops  ? what are the name of them..what do they contain that clears the lens or worses cataract progression[cataracts are much more severe than kc ]  It's such a pity i did not see that richard and judy show![and i cannot get the drops but lol its what i deserve] ..I do not see eye specialist until march 2008 unless my opticien feels it nesicary or there is an emergency situation and i need to go to eye casualty

good luck to you all



-- Edited by Geraldine at 14:00, 2007-04-18

__________________


Member

Status: Offline
Posts: 15
Date: Wed Apr 18 5:07 PM, 2007
Permalink   
 

I've never heard anything on KC regression. As far as I'm concerned, until they link regression to the use of vitamin supplements, lifestyle changes, etc., it's a myth.

Diabetics have thicker or stiffer (I can't remember which) than normal corneas. If you are diabetic, or close, I would think your KC would be done progressing. I can't say for sure though. Since you have developed diabetes-like symptoms, I don't know how that compares to someone born with those symptoms.

I've heard that tight-fitting RGPs are not good for KC. They shouldn't be suctioned on there. They should be able to glide along your cornea.

Alcon Systane drops are just lubricating drops, or artificial tears. It's good to keep your eye well lubricated. If your eyes are a little dry, you should get your tear drains plugged. Restasis also can induce your body to produce more natural tears. Alcon Systane drops are not prescription. Restasis is.

__________________


Senior Member

Status: Offline
Posts: 139
Date: Thu Apr 19 12:48 PM, 2007
Permalink   
 

Ok

I do have diabetic symptoms ....but fasing blood glucose ok..so technically not diabetic..i have never had glucose tolerance so cannot tell if i am pre-diabetic ..my kidneys are perfect.."all bloods normal, definately no kidney problems[chronic renal failure ruled out despite fact i have small kidneys on ultrasound]  or diabetes insipidis [think they said thats medical term for kidney hormone problems ]and fasting blook glucose ok , most  probable explanation for poly urea is excessive fluid intake by the patient" ]  and i agree there is probablly nothing wrong with me and i my mind is playing tricks on me but still worry i am diabetic or pre diabetic that did not show up ..i will have to check all this out with endocorinologist in May but they seem to think i do not have diabtetes but i will be retested in may as well as tyroid retest . I am releived so far tests for diabetes  ok...

On balance i really really hope that fasting glucose tests are right and i am not diabetic..but fasting glucose can't detect pre diabetes and i am not sure if i am pre diabetic..I am even saying novena to st jude. as even if diabetes or pre diabetes meant kc stabilisation or regression i still would rather the most rapidly progressing kc than diabetes

Being diagnosed with a cataract recently[and a cataract is only low down on the scale of eye probs but far worse than kc] has shown me how minor kc really is. And diabetes causes blindness unlike kc[and even cataract is operabe i think in most cases] that is untreatable and pernament ..My mam's best friends husband is pretty much blind from diabetes and he couls lose his ability to perceive colour in his good eye at any time[all the vision he has left] ..he went from Dublin to drs in Harley street and nothing can be done for him[he's a former lotto executive] ..when i feel distressed with kc i msut try to force  myslef to think of him


My kc progress is slow but not gone..i did need stronger prescription for unoperated eye after 9-10 months of no change recently but that is the least of my worries ..

I am just debating crosslinking for unoperated eye..as i do not want it to get to stage of needing a graft...then again i cannot tell if i am progressing or stabilising . I seem to be borderline. I have scarring but not that bad

I did/ do have to wear tight fitting rgp unfortunately [but i am not sure if that is relevent now i piggyback] due to popping out

-- Edited by Geraldine at 12:53, 2007-04-19

-- Edited by Geraldine at 12:55, 2007-04-19

-- Edited by Geraldine at 13:50, 2007-04-19

__________________
«First  <  1 2 3 4  >  Last»  | Page of 4  sorted by
 
Quick Reply

Please log in to post quick replies.

Post to Digg Post to Del.icio.us

www.kcfreedom.org

Knowledge Works