All of us Vs Keratoconus


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TOPIC: Why Did Our KC Regress?
Anonymous

Date: Fri Mar 11 9:31 PM, 2005
RE: Why Did Our KC Regress?
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The acticle mentioned on the last post can be read in full by going to the topic "KC Theories"

I know this may be obvious....I think KC is a fairly rare illness due it having more than one cause....This is what Prof. Lombardi has been saying...he gives treatments specific to the person..You see for me it was well worth the trip to Rome where now...I don't get dry-skin/allergy after a bath or a shave...I'm not trying to advertise it....lol...I mean its only 200 Euros and a holiday...lol...to eliminate one of the associated links to kc and to which i can now see a change, I think this is well worth it....

Prof. Lombardis clinic gives you a list of things to avoid eating and the ones you should eat...as wel! !!!

As Like i said before all these things are link together (until eliminated from our enquiries)...for some its more different things linked together than others....I want to see if a forum let free....can point us to the answers!!!

Well done Guys....its really good to know we have narrowed down the same things from our own "Patient-Led" experiances

-- Edited by QuintriX at 06:17, 2005-03-18

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Veteran Member

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Posts: 30
Date: Mon Mar 14 9:51 PM, 2005
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OK guys....

Regresseion of keratoconus can be spontaneous. It tends only to be active for 10 years anyway, but can stop at any time and be present in one eye and not the other. We don't really know why.

Yes, reducing any oxidative exposure is good, as is NOT rubbing the eyes. My experience in Trinidad was that use of the new lubricant eye drop Systane made by Alcon actually WORKS to improve comfort as it increases epithelium cell repair. Inproved comfort means less temptation to rub the eye which is definitely a no no...

Blood pressure tends not to be linked directly to eye pressure but yes, checking eye pressure is a good thing.

Keratoconus is very much linked to allergies, eczema etc.....in fact I really don't know a keratoconic who does NOT have some allergy problems...

Actually what we want here is someo0ne good with databases collating all this patient driven info!

Lynn

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Executive

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Posts: 149
Date: Tue Mar 15 11:24 AM, 2005
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Reading the last posting I got a bottle of this Alcone Systane product and it really feels good... hope that it will have long term positive impact.

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Anonymous

Date: Thu Mar 17 2:10 AM, 2005
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Let us know how you get on with the drops Valeri...I heard they last long in the eyes...I wonder what they mean when they say its good for the cornea with repairing cells...will a user actually see the benifits...let us know if you do mate!!


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Executive

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Posts: 149
Date: Thu Mar 17 7:47 AM, 2005
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I use the drops for severa days now..


What I found about them. On the usage directions they state one can use as many time as needed per day... that is quite reassuring.


see this link, but this time look for systane (not crosslinking ;) )


http://www.revophth.com/archive/newsletter/RO021003.HTM


also this one:


http://findarticles.com/p/articles/mi_hb3403/is_200309/ai_n8160553


And here is the article about Systane and RGP:


http://www.revoptom.com/archive/op/op050503.htm


From my experience (I have tryed just one more kind of drops), I feel the Systane drops softer and it seems they really last longer.


 



-- Edited by valeri at 08:18, 2005-03-18

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Date: Thu Mar 17 8:10 PM, 2005
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What it means by repairing cells is this: cells have what is known as "microvilli" which under magnification look like a lot of waving tentacles, on their outer surface. When these get damaged is when the eye starts to feel uncomfortable.

So yes, the user feels the difference because the eye feels less itchy and irritable. The eye also feels less hot and also vision is improved because the corneal surface is smoother.

As an optom, my big problem is people with dry eyes.... its a minor problem in the grand scheme of things but it causes a lot of misery! For years we have had nothing but hypromellose and PVA drops like Liquifilm to recommend to patients but they need putting in several times a day and patients get plain fed up of using them.

Systane really does only need using twice a day.....so its really a good time saver as well!

Lynn

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Anonymous

Date: Sun Mar 20 5:03 AM, 2005
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Thanks Guys for the explaination and input...you know I found Omega 3 & Omega 6 supplements helped improve my vision slightly and the dryness of the eye...I think it gives you a thin layer of oily film over your eyes which helps with improving your vision and dryness of the eye...I tried it for a while...but generally speaking I don't have trouble with dry eyes so i stopped using it...but it is worth giving it a go....it takes about 2 weeks to kick in once you start taking the supplements...

-- Edited by QuintriX at 05:07, 2005-03-20

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Executive

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Date: Thu Jun 30 11:57 AM, 2005
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Hello guys!


regression of KC seems a miracle to me. I can not find ant physical explanation of it. If KC ressembles the aging phenomenon in colloidal or polymer systems (and to me it ressembles it very much) it is bound to be irreversible...If what you say is correct - it means that somenthing is missing in my picture. 



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yarsky
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