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Post Info TOPIC: Need some advice before x-linking.......


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Date: Wed Feb 27 2:37 PM, 2008
Need some advice before x-linking.......
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Guys i will be going for the x-linking the day after tommorow.....Well my pachymetry was done and i have got my right cornea thinnest at 434 microns and 436 microns in the left......The machine my docs will be using is some where related to 'theo seiler'...[as told by my doctor]....the pachmetry reading came from a PALM P2000 device produced by the Micro Medical devices...I just wanted to knw are these devices good enough before and after the treatment...[i mean are they standard?].....What do u think bout my pachy readings???coz my doc was saying that these readings are the thinnest of a whole cornea and they can be  above 500 or more in other areas of the cornea....

From the experience of the people who already had this treatment done....can u people, please tell me should i go for both eyes on the same day or one after another  with a gap.....

Will put my story after the treatment.....

Regards
sTaNz


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Date: Wed Feb 27 3:51 PM, 2008
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Hi Stanz,

You thickness sounds good enough, being they are the thinnest points only. There is a margin of error bulit in to the minimum thickness needed (of 400 m) That means if someone is close on to 400 m they will be safe, the cut of is 400 m and even if some people have lower than this the cornea can be thickened for a time so that the treatment can be done.

With respect, Is there a rush to do both eyes ? Can you get support if you do both eyes at once ?


-- Edited by Kane at 15:52, 2008-02-27

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Date: Wed Feb 27 4:16 PM, 2008
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Thanks for the reply kane.Actually i am undergoin training in an organization for my final year Project....I dont wanna loose too many days and coz if i go for both the  eyes on the same day i can save that bit of time for healing....and after that can continue wid my training and project work.....but then will i be able to cope with the pain or say discomfort in both the eyes???wat say???

Hey guys Need more of ur valuable thoughts about the equipments..........

StAnZ



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Date: Thu Feb 28 1:31 AM, 2008
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Stanzy,

I wanted at add... What has your Dr said to you about your thickness? does he give the go ahead ?

And you do know it can vary in the time it takes to recover your vision, what has your Dr said about that?

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Date: Thu Feb 28 2:43 AM, 2008
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Hello Stanz,

I havent read your exact story.Could you tell me how is your vision acquity now?Are you wearing glasses,contacts.Are you having night problems?

Also, the most important have you made out a corneal topography?In that you will see your pachymetry readings and the stage of your keratoconus disease.

Ask nicely your doctor how many people has treated with collagen crosslinking.Find out about his epxerience and tell him to give you a phone number of a patient or patients to communicate with them to see what was the treatment after.Days of recovery,success etc..

Certainly,very important principle of crosslinking are playing the riboflavin drops ant the removal of the epithelium.There are a few riboflavin drops out to the market and i dont think afterall all of them have the same success.I think the original german medio-cross riboflabin solution is a global standard.

As for the UVA machine from my reasearch i think the UVA-X machine(Germany) with double energy and the Keracure prototypic device(United States)-This is doing both eyes at same time-an advantage of comfort i think- are the best for success crosslinking.

There are a few others from Italians etc.Most of them have CE approval but this for me doenst say much.CE has my mobile phone either.It doesnt mean that it is safe.Anyhow,this is a big subject.The FDA organization is far more investigating and brings out the weakness and the faults of a product-or thing as drug etc..Thats why is so difficult sometimes when you have a product to take an FDA approval.

Just make sure your surgeon is highly experienced and with the best technology in order to perform crosslinking.

All the best,


P.S Doctors should play it safe and stick to Theio Seiler principles and rules for Crosslinking.I dont think it is right to change from that unless the doctor is considered also a SCIENTIST.Anyhow, the balance to these things is very tricky.







-- Edited by Zeus at 02:58, 2008-02-28

-- Edited by Zeus at 03:03, 2008-02-28

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Date: Thu Feb 28 5:40 AM, 2008
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Thanks for taking interest kane and zeus.... My doc said that yap the thickness is fine and that it is not a problem but i dnt think he is experienced enough in terms of this treatment[but then this treatment is available in india since last 1.5 years only and with my doc for the last two months or so...].The reason for me going with this doctor is that he has been treating my problem since it was diagnosed by him only some 1.5 years ago....And may be coz of that i rely upon him....he has till now treated only 3 patients out of which one came from the US...He told me that he is doing this treatment on the basis of standards and research papers and the way the treatment is done all over the world....I went to him yesterday and  got to knw that the machine he is using is the UV-x ......Talking about my visual acuity my right eye is 6/9 and left one is  6/18 with specs.....I was using the RGPs since last one year which gave me a visual acuity of some way near to 6/6 in the right eye and near to 6/9 in the left.....In the night i do feel that my vision goes down and things which are far  are not seen by my eyes whereas in the day time it is far better.....My specs numbers in the right eye are -6.00[cyl],-1.25[sph] with a axis of 65 degrees.in the left its again -6[cyl] but no spherical with a axis of 115 degs....

I had my topo done last in December and will go for it again tomm before the treatment[as i am thinkin of goin for it tomm...]....The topo macine is from 'schwind' which doesnt provide the pachy readings thats why it was done on the p2000 as mentioned earlier....I have a orbscan report also but then it was done only when i tryed to reconfirm that i had KC in my eyes other then my doc.it was done in  ZYPOTIX[baush and lomb]...at that time my left eye had -5.5[cyl] and the right eye was actually very good in comparison -3[cyl] and same sphere.but the right eye's cylinder has now increased like anythin....I had problems wearing the rgps in the right eye and i think my current cylinder in the right eye is due to that irritation and discomfort only....


wat say guys???Am i goin right??
Or there are still things needed to be considered???

Will wait for ur invaluable comments and experiences....
Reagards

sTaNz



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Date: Fri Feb 29 2:32 AM, 2008
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You may want to Have a good pair of rap-around sunglasses handy, as your eyes will be sensitive to light, which can happen during the recovery

Good Luck

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