All of us Vs Keratoconus


Members Login
Chatbox
Please log in to join the chat!
Post Info TOPIC: Goin for IT@!! Finally........


Phase Two

Status: Offline
Posts: 484
Date: Fri Feb 8 4:31 AM, 2008
RE: Goin for IT@!! Finally........
Permalink   
 


Simon, three things I wanted to ask/say to you

1) what did Dr Swanson say about the partial epi off to you, did he say it may be "the way to go" or does he think it has its uses ?

2) Tell Dr Swanson he is most welcome to join us for some "chat" while he is on his coffee break! smile that goes for anyone else too, so everyone invite another patient or professional to join up with us here, we should be carrying them on our shoulders... I think !

3) Did you see many Salma Hayek look-a-likes whilst you have been over there ? smile

4) And have you kept in touch with Dr Norton ? is there any news from her and what does she say about your patient case ?

Sorry for the questions, its just that I really wanted to ask them !



-- Edited by QuintriX at 04:33, 2008-02-08

__________________


Veteran Member

Status: Offline
Posts: 35
Date: Fri Feb 15 11:06 PM, 2008
Permalink   
 

Hello,

Unfortunatly no beautifull ladies at the hotel... HOWEVER!!  Dr. Swansons staff is all youg, well mannered ladies... So that was nice... I asked him why so many young ladies worked for him, and he said "Why Not" and laughed... 

I am about 2 weeks post op right now..  The ghosting is still there from the intac, it moves around up and down.  There is haze, some days are good and others the haze is worse.

To answer your questions, I don't think Dr. Swannson does a full epi removal.  He has 3 machines in 3 clinics, so I guess it must be working.  He did say that some of his patients regress, but he treats all types of patients.  Since he started doing the presoiaking of the cornea 2 years ago before the UV for 30 minutes he says his results have been much better...

I havent spoken to Dr. Norton.  I got the feeling that her clinic was not going,top promote my decision to do Cross Linking.  She said he could not. 

I will keep posting. I will have my post op results posted at the 3 month point.

Cheers

__________________
Simon


Veteran Member

Status: Offline
Posts: 35
Date: Fri Feb 22 2:45 AM, 2008
Permalink   
 

Hey All,

3 weeks post surgery.  Vision has improved a lot.  I finished the drops one weeks ago and about 6 days later vision improved in both eyes and much less haze.

However, I experienced some major pain, watering and redness for the last few days in my right eye... Intact and cross linking.    It seems to be subsiding.  Maybe I finished the drops too early.. Hopefully that's the end of it.

I spent the last few days in Nashville Tennasee playing guitar and trying to get a record deal.  Great city, great people.  Music capital of North America.  However all the clubs allow smoking, so maybe it was the smoke that irritated my sight, plus the dryness.

I still have most of the ghosting that I did prior to surgery, although it has subsided a bit and moved over to the top. So I see silouhettes in the day and different effects at night.  Kinda of annoying..  Some startbursting and haloing still around.  I think most of these things will go away after a few months, but the ghosting will probobly be a lifetime effect. I am counting on some good contacts to fix the ghosting..

Over and out. 



__________________
Simon


Phase Two

Status: Offline
Posts: 484
Date: Fri Feb 22 5:23 AM, 2008
Permalink   
 

Thanks for the update Simon!

The epi if its partially removed as with scratches should heal very quickly in about a couple of days, so there is no worry there with infection when it comes to the irritation. Sometimes the eyes can feel irritated even if there has neen no treatment done at all but there is no harm in calling Dr Swanson or a local Dr if it is bother you.

I think Tennasee has to be the music capital of the world! due to the one music giant that lived there!

Could you compose a (KC Freedom) tune or track for us buddy?
smile

Anyway hopefully your cornea will move more the right way, every other patient doing crosslinking will gain some more vision back. A contact lens should fit better too, you need a contact lens which will be stable in vision and otherwise so not to cause it to rub on the cornea too much, and as you mentioned Synergy eyes is a well designed KC contact lenses with a lot of thought gone in to it. Six months, it will take to know fully how the cornea has setteled down to, until then it is very good to hear your "walking in memphis" !!



-- Edited by QuintriX at 07:47, 2008-02-22

__________________


Veteran Member

Status: Offline
Posts: 35
Date: Fri Feb 22 9:14 PM, 2008
Permalink   
 

Thanks for the reply Quintrix,

Nashville is amazing... First time there.  I was lucky enough to hook up with a songwriter from Memphis and have been playing lead guitar for him for a while.  We were able to play and impress a few folks in the business.  I;ll be flying back in April to do a showcase and maybe get a record deal.  Once that's done a song about my vision struggles would be great.! :)

My concern with the right eye right now is this... When I had the laser surgery a year ago, I was on drops for 3.5 months.  After intacts and crosslinking I am off the drops after 15 days.  I still have slight pain in that eye.  There was no pain while I was on the drops. Im wondering if I should go back on them.  Dr. Swanson's office said to go back on them for 10 more days, but I don't have the drops anymore and no prescription.  The pain is minimal and seems to get better every day.  But I wonder if there is a risk to not being on the drops.

Why the long period for drops after laser and not Intacts.  I know one reason is to avoid permananet haze, but what about infections?  My vision is getting better everyday so I don't think I have an infection, but you never know...


__________________
Simon


Phase Two

Status: Offline
Posts: 484
Date: Sat Feb 23 7:07 AM, 2008
Permalink   
 

In PRK and with the Epi off a relativily large surface area is opened up and its easier for infections to take hold (not that it has been reported with Crosslinking yet, but it does not mean it can not happen, so be strict and take the Drs advise and this risk will only be a precaution)

I was reading that with PRK there is a one in 1000 chance of infection, like with many things early on ...it is treatable to reverse it. The benefits out-weight the very small risk. To balance it up there is a greater risk of infection with contact lenses which are worn daily.

Please take your Dr's orders, there is no two ways about it (I know you know you should)

Complete recovery from KC is not here yet (thinking about what you said about the ghosting) but it can be managed by the range of treatments there is. The secret is not just check ups... but diagnostic testing, which every KC patient should do no matter what stage they are at in treatment, as part of there usual six month/one year routine examination they have due to having KC. These tests its to see where their cornea is at. A pentacam/orbscan and the ORA would be a good thing to do at regular intervals, because Kc can be contained. As we age (over 35 and above) we naturally crosslink, so at least that something.

Please upload any artistic work you do and share it here Simon, we need a famous KCer to fly the flag for us, that would be great to see, for 100 years things stood still for us!!

-- Edited by QuintriX at 07:08, 2008-02-23

__________________


Senior Member

Status: Offline
Posts: 148
Date: Sat Feb 23 2:41 PM, 2008
Permalink   
 

Simon, can you get the drops names from Dr Swanson and get them from another Dr close by ? Just to be on the safe side. There may be no need to, but its only this time you can avoid something that you can. It is only a matter of going that extra mile, there is no harm in being too sure!

-- Edited by Kane at 20:46, 2008-02-23

__________________


Veteran Member

Status: Offline
Posts: 35
Date: Thu Mar 13 12:58 AM, 2008
Permalink   
 

Another Update,


Almost 6 weeks since the operation.  I had to go see a recommended Dr in L.A.  He quickly gave me pred Forte and anti biotics.  Within 1 day the light sensitivity and pain was goine.  I guess I got off the drops too early.  Now I am on the drops once a day and everything is fine.  I just did an experiment though, went off the drops for 3 days again and noticed the light sensitivity returned.  Eye started watering.  Anyway, I will stay on them for another week or two.

Good news though, the intac, Cross linking eye is seeing almost 20/20.  As of Today.  The crappy thing is that the ghosting is still here in both eyes. I see triple images at night to the bottom and to the right. I have decided that this is probobly going to be a permanent sideffect of KC and only good contacts will fix it.

I hope the ghosting will shrink with more time..  I will be getting my suture removed in the next month.  Then I will take topos and pachymetry. Will post pre and post results..  6 month to 1 year will probobly be better.

Over and out...  Good luck to all that are Cross Linking..

__________________
Simon
«First  <  1 2 3 4  >  Last»  | Page of 4  sorted by
 
Quick Reply

Please log in to post quick replies.

Post to Digg Post to Del.icio.us

www.kcfreedom.org

Knowledge Works