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Post Info TOPIC: Goin for IT@!! Finally........


Veteran Member

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Posts: 35
Date: Fri Jan 25 6:09 PM, 2008
RE: Goin for IT@!! Finally........
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Private message me.  I  am from Toronto, I know some a couple of Dr.'s in Toronto in Vancouver that might be able to refer you. 

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Simon


Member

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Posts: 23
Date: Sat Jan 26 5:19 PM, 2008
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I'm in Canada too.  We couldn't even find a doctor who had heard of the process until we got back from Germany.

We just packed our bags and got on a plane.

X-link first, and ask questions later.

-Gary

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Posts: 47
Date: Sun Jan 27 3:38 AM, 2008
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Simon123 I send you a private message.

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Veteran Member

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Posts: 35
Date: Sat Feb 2 8:20 PM, 2008
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Ok. IT's done.  I had the surgery on the 31st of January.

I decided to do the Partial Epi off Cross linking, Plus Dr. Swanson encouraged me to try one Intact on my worse eye to help stabalize my bad eye even more and to clear up the ghosting.  After much thinking, I went for it.  Thanks for the Private message from Quintrix to consider Intacts, this helped me decide too.

I don't have a follow up Topo yet.  I will be getting one soon.

The procedure consisted of me getting one Intact put in first on my right eye, this was fast, painless.  Then my left eye was abrased at 5 points.  4 corners and then one Epi abrasion near the top center.  The Intact eye had only two Epi Abrasion because the Intact entry hole would allow enough Riboflavin to pass.

The presoaking consisted of 30 minutes of 4 to 6 drops being applied every two minutes.  After thirty minutes of this, I noticed that my vision was somewhat yellow orange in tint.  Then, 30 minutes under the light with drops being applied every 2 minutes.  I found this to be interesting, because most doctors do every 3 mintues.  I guess I got extra riboflavin.

AFter the surgery I went to my hotel, only steps from the clinic.  Then the pain!!!!!!!!!  I did not know that it would be so painfull.  I gotta be honest.  I have never in my life experienced such pain..  I was on serious painkillers, at least 5 pills.  The pain was insane@!!!  I ran back to the clinc and they gave me numbing drops to try.  They worked, but only for about 20 minutes.   Then I had to reapply.  I took very strong sleeping pills, but was awaken every hour, then I took one numbing drop and the night continued like this.  24 hours later, the pain was mostly gone.  My intact eye still hurts, due to the inflamation.  I recommend anyone who is touching their epi, to take with you strong painkillers.  I mean strong!!!

I don't know if the surgery will work.  I still have some haze, but not much.  The doctor said he saw that the Cornea was fully soaked.  He said he has been doing this procedure for 4 years, but not everyone that does it stops progression.  I asked him about the 9 year follow up patient European studies.  He said he goes to the Congress every year and that the studies are good, but he also mentioned that they are very selective with whom they choose for those studies.  He tries to help all his patients, therefore he has a percentage of progression in his patiens.

I will post my pre and post operation numbers Soon.  And my progress in healing.

I am on 3 different drops now, 4 times a day for 15 days. 

I will be watching my progress every 2 to 3 months with New TOpos.  If I have any progression or thinning. I will redo the Cross Linking.  For now, I am hoping that the procedure was good. I drove 12 hours, spent good money and felt pain like never before, So I am praying that it's succesffull,

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Simon


Senior Member

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Posts: 148
Date: Sat Feb 2 11:06 PM, 2008
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Very well done Simon, you certainly bit the bullet there friend ! (took the bull by the horns as all KC patients should do)

All treatments must have guidlines, there are no treatment with out it. With in the guide-lines/parameters (having 400 microns or more is one example of this for the Crosslinking treatment. It is important for safety and efficencey, there needs to be something for the new links to attach to!! and at the same time being well with in the saftey limits of the treatment), and also before the cornea has become too steep or has too much scarring or opaqueness) it is so that the cornea can be "frozen" to the good enough state it is TO STOP IT GETTING TO THE DANGER ZONE OF END STAGE KERATOCONUS, and also so that a possible combined treatment can be also done to re-gain vision (Just like you have been able to do).

Once things has gone to far ...it is too far to come back... great work Simon that you have relised this from your research (anything can be expected with KC, from fast progression to it stopping suddenly and even possibly starting again at any time, its all just guess work, there is no way of predicting it, but it is absolutly true that its the case of "THE EARLIER THE BETTER" ALWAYS. AND THAT ANYTHING PREVENTIVE IS A GOOD THING, BECAUSE PREVENTION IS BETTER THAN CURE. So if there is any doubt that things are "slipping away" from you, then its time to act, just as you have done and not even letting international boarders get in the way of what is right for you, and you alone.

You done very well friend, glad I am here with others to hear your story. you are over the worst of the early recovery, things should get steadly easier now friend

K

-- Edited by Kane at 23:07, 2008-02-02

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Optometrist

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Posts: 67
Date: Mon Feb 4 1:13 PM, 2008
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congrats Simon, all the best for your recovery - I hope it's a speedy and successful one

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We all love Leeds!



Phase Two

Status: Offline
Posts: 484
Date: Mon Feb 4 5:36 PM, 2008
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If at any time you want to just plain old "talk" buddy just to pass the time you know you can count on this friend here.

You are in great medical hands over there and I'm only a phone call away, as it goes I'm thinking of getting my mobile phone somehow surgically attached to me !smile

Your very well written posts do stick out from the crowd ! Good Luck during this time... and no "From Dusk til Dawn" (as in the film) goings on while your over there across the border ok? smile

-- Edited by QuintriX at 21:31, 2008-02-05

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Veteran Member

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Posts: 35
Date: Wed Feb 6 6:07 PM, 2008
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Thanks Guys,  Haha. Ya the Tequila bars were very tempting. I had nothing else to do on Super Bowl Sunday, so I had a few shots.

Well over all, this is my 6th day after surgery.  I still have a little pain in my right eye (Intact PTK eye).  My vision is about the same as before surgery in that eye, plus a little haze and very dry.  The left eye seems sharper, no haze not as dry.  The left eye only had Cross Linking.

Im still on the drops, for another 9 days.  Steriods and some other antibodie drugs.

I reviewed my topography maps, but to be honest there is not too much change.  I expected this from reading the other posts here.  The topos don't change much, but usually the thickness.  The thickness on Pachymetry was quite noticable.  50 Microns on the left eye, and 100 microns ont he right eye, then the inflammation subsided and the right eye kept getting smaller reading.  Before I left it was at 60, but the Dr. said it will settle out around 40 to 50. 

I am very hopefull that the cross linking was a success. I guess we won't know for some months, maybe even a year or two.  I choose to do the partial epi, knowing that it might not be as successfull as the Full epi, but I had no choice because of the prior laser surgery. ANyway, I have a good feeling. 

I spoke to Dr. Mark Swanson about coming on this forum to anwer some questions and maybe gain some new patients from North AMerica, he seemed very happy to do it. I will be forwarding him the info today.  Also, I found out that he has 4 clinics in Mexico and he does cross linking in 3 different ones.  He has been doing this for 4 years.  But only two years ago he started doing the presoaking, before that he only applied the riboflavin directly.  he said his results have been much better the new way.

I have another few weeks of healing to do.  I hope that the right eye improves a lot more. I did the intact to gain vision, but so far the vision is the same as before surgery and the night halos, glare are still there.  Very try too.  Will keep you posted.

Much Gracias,

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Simon
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