All of us Vs Keratoconus


Members Login
Chatbox
Please log in to join the chat!
Post Info TOPIC: Advise needed.


Member

Status: Offline
Posts: 6
Date: Sun Jan 13 7:43 PM, 2008
Advise needed.
Permalink   
 


I've attached scans which I've taken for Topopgraphy, Pachymetry, Custom Vue. I believe I surffer from PMD and might have caught it in its early stages.

On 06-14-07 I had a .25 Intac placed at 150d angel in my right eye, and 01-11-08 is my last follow up scan. According to the scan It appears that my cornea has had some flattening, but I still cannot see anything and I'm still not able to be fitted for glasses.

PRE: 6-14-07
SIMKS:
48.35D (6.98) @ 0d
46.58D (7.23) @ 90d
dk 1.67D (.25)

POST: 1-11-08
SIMKS:
46.61D (7.24) @ 0d
45.00D (7.50) @ 90d
dk 1.61D (.26)

Can anyone please explain the DK values?



-----------------------------------------------------------------------------------------------------------------------------

On 01-10-08 I had a scan done with a Custom VUE made by VISX. It appears I have a astigmatism of +.68DS -3.43 x 76D @12.mm, I'm currently not 100 percent what these values stand for, But I'm sure it's pretty bad.

Can anyone please explain what these values stand for?


-----------------------------------------------------------------------------------------------------------------------------

On 01-10-08 I also had a pachymetry done and was pretty surprised to see my lowest corneal thickness was around 495, which was good.


-----------------------------------------------------------------------------------------------------------------------------

Given the data which I've compiled I've considered getting Conductive Keraoplasty done first and followed immediately by c3r treatments. I believe my biggest reason why I cannot see more then 1 foot in front of me is because of the astigmatism. I know CK treatments are temp and revert back to the orginal cornea, but I'm hopping with C3R treatments that it will make it more stable.

Given the data which I compiled can anyone please offer there opinion.




-- Edited by tremedy2c at 19:45, 2008-01-13

-- Edited by tremedy2c at 19:46, 2008-01-13

-- Edited by tremedy2c at 20:01, 2008-01-13

Attachments
__________________


Senior Member

Status: Offline
Posts: 148
Date: Mon Jan 14 2:10 AM, 2008
Permalink   
 

Tremedy good to welcome you,

Can I ask what your Dr's saying about the readings? If your going to do crosslinking (and which type are you having?) your thickness are good, as you say. Thats the main thing.

I am not sure more than you about the readings you mention from the machine that you was tested with, where you are not too sure about it as well. I think it's brilliant you are keeping note of the measurments, and then able to monitor your progress in what ever you choose to do.

Please let us know how thing go for you

Regards

-- Edited by Kane at 02:13, 2008-01-14

__________________


Senior Member

Status: Offline
Posts: 124
Date: Mon Jan 14 9:49 AM, 2008
Permalink   
 

Hello tremedy,

By joining this forum i think you will be able to learn a lot of things about keratoconus and pmd which is actually more or less as kc.

First of all my friend,you need to make out topographies by CYTTING EDGE EQUIPMENT such as PENTACAM,ORBASCAN||.This state of the eye technology topographies will evaluate your problem and even will recognize the condition you have either kc or pmd.Your doctors opinion of course matter but you will have the chance to cross it for yourself.

Your Kreadings arent very increased and that is very positive.I can say to you because your complaing about your astigmatism that you must know from the measurements and your doctor should explain to you about Topography astigmatism and about Refractive astigmatism.Your thickness is well enough for the CXL(Corneal Cross-linking).

I havent asked you.How old are you?This is an important question when we are dealing with primary corneal problems.Age is a fact that plays a role.

Our weapon and of course your weapon is to perform collagen crosslikning.With this you will treat your problem and make rigid and strong your cornea as steel(300%).The progression will stop and your cornea will be frozen for 10 years and you wont worry anymore.

I dont think its a good idea that conductive keratoplasty you mention.These techniques my friend are old fashioned and frankly with no guarantee results and safe and scientific publications from scientists.

If you like you can go at my post named United We Stand and read it.If i were you i would definetely contact with Doctor Kanellopoulos.I want you to search him and ask your doctor about him.Gather all the information you have and all the options and decide.Certainly you will perform cross-linking and secondly an option to maximize your vision BUT with safety and stability.

All the best,

P.S An another member from this forum named Cloudd(Mark from Canada) performed the same treatment as me and he sees 20/20 and lines from 20/15 without anything to his eyes.Myself and Mark we were early stages of Kc and this treament for me is the Best as we speak right now.I would ask as many doctors and scientists about Limited Topography Guided PRK and CXL(Collagen crosslinking) combined together.


__________________
nothing else matters


Member

Status: Offline
Posts: 6
Date: Tue Jan 15 3:10 AM, 2008
Permalink   
 

Thanks all for welcoming me, I'm happy this forum exists because I'm able to share and obtain information regarding our conditions freely. I've tried a few others and found a lot of censorship; which makes it difficult to find solutions and speak freely on our opinions for our eyes.

I havenít shared this information with my doctor as of yet, he specializes in Lasik and Intac placement. He does have a vest amount of machines which I can use to take measurements for my eyes. My attention is to collect information and send an email to Dr. Boxer Wachler and see what he thinks. My understanding the machine he uses to do c3r is the only machine which is FDA approved. I havenít heard of anyone mentioning any other doctor with a FDA approved machine, so this is the reason why I'm going to follow up with him.

I havenít been able to find a Doctor in New York which has a PENTACAM or ORBASCAN, but I'm still looking around. I've looked into Limited Topography Guided PRK and am afraid to use it, the reason I looked at CK was because it doesnít cut the cornea, just shrinks it so to say. I understand this can be bad, for an example itís like cooking chicken in an oven, once the meat heats up it becomes tighter. I'm still in the early stages of research and will take a while to make a decision.

Zeus I'm very pleased with your results/optimism and I do hope I can share the same results. I'm unaware of the differences between Topography and Refractive astigmatism, but I will do more research on them. I heard the results are the same concerning having C3R with the epithelium removed or not. Given where the slope is in my eye, I believe having the epithelium removed would be more beneficial.

Zeus do you remember your astigmatism reading, I will look into your post and Doctor Kanellopoulos. I'm currently 28 years old and found out I couldnít see anything in my right eye around 1 in a half years ago. I've tried RGPs, but my eye is way too sensitive to wear it. I had an Intac placed in my eye around 8 months ago and still havenít been able to be fitted for Glasses or RPGs any better. Given the data I compiled I donít see any reason to have it removed.

I still have lots of research to do and will keep in touch.


__________________


Senior Member

Status: Offline
Posts: 124
Date: Tue Jan 15 9:03 AM, 2008
Permalink   
 

Hello tremedy again,

I am very glad that you are living in New York.You will have the chance to ask other doctors about Doctor Kanellopoulos because Dr K is a professor at the Medical University of New York and a doctor at the Manhatan Eye Ear and Throat hospital.

In my opinion Dr K is a leader and a step forward in kc from the rest of the doctors.The treatment i have performed and Mark from Canada is a routine treatment right at the moment.It has started since 2002-2003.When i am visiting the institute for my follow up topographies and i am talking with Dr K i hear and learn very interesting things.A navy pilot from USAirforce which had Lasik and turn into ectasia has been sent by Americans to Doctor K.United states which have millions of doctors have sent him here in Greece because Dr K is considered the best at keratoconus and ectasia.I dont want to write all the time about my doctor but believe me guys i think he is way beyond at treating corneas with problems.

I think you could visit an another doctor at New York,Doctor Donnefeld.I am not sure of his exact name.He is a famous doctor at New York city i think.Ask him about Dr K and his treatment about keratoconus.

I want everybody in here to know that many other patients Greeks and from other countries which had keratoconus or ectasia have amazing results meaning 20/20,20/25 or 20/30 without glasses or contacts.The only thing guys is that i am the only one and now Mark which i dedicate time from my life to spread the news in here.The rest are continuing their lifes and kc is a past problem because of this innovative treatment.

In my opinion, i wish patients from the institute had their will to join here in this forum and talk about their new vision.I think the greatest thing in the world is to help someone when it has a need with your experience and your knoweldge.

All the best,

P.S I read about Conductive keratoplasty.Are you having hyperopia and not astigmatism?Because with this you are treating hyperopia only.Anyhow,ask your doctor about these things.

-- Edited by Zeus at 09:25, 2008-01-15

__________________
nothing else matters


Member

Status: Offline
Posts: 6
Date: Wed Jan 30 6:47 AM, 2008
Permalink   
 

Dr. K is no longer in New York, but I've scheduled a consultation for the 14th with the office that he worked with. Once I have more information I will share.

Knowledge is our weapon. =)

__________________


Member

Status: Offline
Posts: 10
Date: Wed Jan 30 11:28 AM, 2008
Permalink   
 



Dr Peter Hersh in NJ has a pentacam and is conducting the FDA Crosslinking trial.

__________________


Senior Member

Status: Offline
Posts: 124
Date: Wed Jan 30 10:02 PM, 2008
Permalink   
 

Hello to everyone,

Tremedy as far as i know Dr.Kanellopoulos is from months to months to New York City.Because he is a professor there but he is not permanetly staying.He has opened his Institute here in Greece and he practises most of the time here.But he comes at United States very often.

So,listen if i were you my friend i would go and search a doctor at NY who has the PENTACAM TOPOGRAPHY MACHINE and then i would send by email the topographies here in Greece in order Dr K to see your topos and tell you what is the best for your eyes.I think its a nice move.

As Tomt said,i think that the topographies which are from the pentacam are very crystal clear about someones kc.Its the best technology for making out 3dimensionals corneal maps.I think its the best weapon to detect everything to the cornea.It also has an amazing feature by recognizing the specific disease that has someone to the cornea and in what stage it is.Very helpful for every doctor.


Hope for everybody the best coz we are achievers just for trying to find out the best treatment there is no matter what the cost is,


-- Edited by Zeus at 22:07, 2008-01-30

__________________
nothing else matters
1 2  >  Last»  | Page of 2  sorted by
 
Quick Reply

Please log in to post quick replies.

Post to Digg Post to Del.icio.us

www.kcfreedom.org

Knowledge Works