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Post Info TOPIC: How many days of haze????


Senior Member

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Posts: 124
Date: Wed Jan 9 3:28 PM, 2008
RE: How many days of haze????
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Hello guys

I think that you are giving the best example in here with your posts.Just giving and taking back advice and visual experience.I think thats amazing to happen.Thats the reason this forum was built.We have faced a difficult situation but with the crosslinking our FATE HAS CHANGED.And we should be very happy for that.

As for the haze mentioned before the powerful time will do its magic and it will disappear.Its just a matter of time but feeling those stress emotional situation its difficult to be optimistic because you are seeing through haze wright now but it WILL CLEAR UP.

Another point is that after a few time of the treatment topographies taken out will show you how your cone is or even if it has reduced.Watch carefully the Kreadings and if they are reduced.With the limited topography guided PRK and crosslinking i am at right eye 41.1 before i had 44.9 and in my left eye i have 40 now and before 43.7.My cone at my left eye which was smaller has vanished after six months and in my right eye which was bigger has reduced and it is more below to the periphery.

I am saying that because with reduced cones and in my case in my left eye there is nothing such a cone i had before my vision is very clear.With specially reshaping the cornea and crosslinked it you are escaping from night problems because the cones that produce distortion are very very small.

In my opinion,CROSSLINKING is our best weapon we have for now but i moved a step further and correct the abnormalities in my cornea which kc has developed since that time.I think it will be a routine treatment for kc people this because you are getting rid of kc a lot and if you are an early stage you wont have to wear anything to your eyes.

Keep exchanging opinions and experiences because everybody among the world should hear every possible treatment and how efficient it is.

All the best,







-- Edited by Zeus at 15:34, 2008-01-09

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Posts: 13
Date: Thu Jan 10 1:41 PM, 2008
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Yeah, I found that this website made a big difference to the decision of whether or not I went for CXL. It is now day 20 and still the right eye is hazed up, little to no difference in a week. The hardest thing for me, at least, is that I always relied on my right eye to see as my left is the one that has KC progressed. In a few days I am having my left one done, then I will really be screwed with my vision until the right clears. This is the hardest thing to deal with, the when will it clear, will it go back to 6/9.5 as it was before and how long.

I am currently on the sick at work whilst I have the eyes done, however my job demands good eyesight, thankfully it allows aided vision and Im pretty sure that I will have to have a medical before being allowed back to work.

When ppl say that their vision changes over the next 6 months of CXL just how much of a change day to day do they mean??

Im currently finding it hard to tell if my CXLd eye is seeing double or is it just the haze, I look a the standby light on the tv in the dark and see a much wider circle of red, however when i look closer i 'think' i see that it is made up of tiny bits of red (presumably the haze) and two lights ...... makes me wonder if im seeing double. Bear in mind this eye was my good eye, it does concern me.

Went to see a consultant, nhs, yesterday and during the vision test, my right eye cudn't see any letters clearly, i explained about day 20 since CXL which they didnt seem to know anything about. Then they gave me a black bit of card with small holes in to hold infront of my CXLd eye. I could then see more or less all the way down the board ......... was this just clearing away the haze or is the pinhole effect????

Cheers for any replies

Paul

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Senior Member

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Date: Thu Jan 10 6:55 PM, 2008
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There is less "shatter" of light so its the pin hole effect work there.

Get an appointment if you want someone to "take a look" and give you medical advice which will be more helpful to bring down the worry you have at this time, which is only natural if you havn't been seen for a while.

I hope you can get more of an answer from your medical team who will know from measurments taken of your eye, however it does take time after an intervention in what ever form to the cornea.


-- Edited by Kreading at 18:59, 2008-01-10

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Member

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Date: Thu Jan 10 7:25 PM, 2008
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Cheers for your reply, seeing the medical team on Monday and possibly CXL the other eye (if I'm brave) and I am trying to keep an open mind, just hard since i had 6/9 in the eye and now I cant even read the top letter due to the fog!!!

Will be posting when have their advice.

Cheers again,

Paul

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Senior Member

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Posts: 124
Date: Fri Jan 11 1:51 AM, 2008
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Hi Paul

Dont you worry my friend.As soon as the haze clear you will see for yourself that your vision will become the same you had or a slighty improvement or slightly worse.But it is slightly.No such big difference either good or bad.So,there is nothing to worry.I can say that the haze needs at least 1month to clear and with days dropping by you will be able to see that it is eliminating.

Are you taking any Vitamin C?You should ask your doctor about that.

Also,you should see the pre op topographies taken of how big were your nipple cones or what stage kc was.With this you will see the effect had taken place at the following topographies.

All in all,i believe that a mid settlement of the cornea to stabilize is a period of three months.Then you should look closely your tpographies to observe the xlinking effect and how flat the cornea has become.

Also,you should be aware of this that in no circumstances you MUST NOT rub your eyes at all.Dont you rub them for no reason.Its an important SOS rule for our problem.

By perfoming crosslinking you have solved big time your eye problem as for most of the people in here.The main thing is that if someone has above 50K then crosslinking should be combined with something else because the curvature of the cornea isnt providing close to normal vision.

Intacs is a well-known choice with pioneer doctors suggesting it and as for me combined CXL with limited topography guided PRK.Another choice is the new KERA-SOFT3 lenses specially made and a stable value of usibg High Index Aspheric Glasses.

For the best is the Topo PRK because you are seeing normal without glasses and the result is safe and stable.

All the best,

P.S With the crosslinking we have saved and maintain our precious corneas.We must be all happy about that.



-- Edited by Zeus at 02:02, 2008-01-11

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Member

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Posts: 13
Date: Fri Jan 11 1:45 PM, 2008
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Hi Zeus,

I must admit the comments from this forum are great at support, makes me feel much better to hear about ppl's previous experience and their thoughts. I was originally only going to post once everything had been sorted so that I could right a full account for other ppl to benefit, however I have been shocked and worried three weeks into the recovery just how much my sight is hazed but as everyone says to hang on in and the haze will go.

Think I will have my left eye, the one that is 6/36 done on Monday despite my worries about then being more or less blind until the right improves and the haze drops away, I will be seeing the doctor on Monday and before anything getting him to check my right. MIght aswell get both done and be recovering both eyes at the same time and means less time off work. Just find it hard to keep faith with bad vision that before the CXL I didnt have (ish)!!

Cheers again everyone who has posted, I will be keeping you all updated.

Paul

PS in regards to rubbing of eyes, I remember only just over a year ago rubbing my left eye and then a few months later the KC had started in the left only, right is there but only really visible on the topography so im a huge believer in under no circumstances to rub my eyes!!!!!!!!!!! Already made that mistake!

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Optometrist

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Posts: 67
Date: Fri Jan 11 1:47 PM, 2008
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the pinhole effect is often marked in KC patients as it largely negates areas of scaring or irregularity along with removing general spectacle blur. The link below explains things ok - partic the box with the diagrams - please take everything on this website with a pinch of salt as a breif skim shows it to be otherwise largely sensationalist and sales-y ("miraculous" should never be used on a scientific website).

http://www.vision-health.net/how.htm

Please note - I in no way reccomend Stenpeic Glasses

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Member

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Posts: 13
Date: Fri Jan 11 4:13 PM, 2008
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Cheers mate, does answer one of my questions, lets just hope it doesnt come down to that just yet!!!!

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