I`ve just stumbled across this forum and pleased to be able to read other peoples experiences with KC and cross linking. I have just been informed of this procedure at my recent visit to the eye infirmary. If anyone could answer any of these questions - it would be most helpful!
1. I plan to get both eyes done - how long before your eye sight returns to a functioning state following the procedure?
2. Does the cross linking affect the physical appearance of the eye (colour etc)?
3. Does anyone have any indication how long this will hault KC?
4. I can`t find any risks via Google, should I be aware of any?
Thanks for reading and happy new year to everyone!
1. I plan to get both eyes done - how long before your eye sight returns to a functioning state following the procedure?
Around up to three months for vision to stablize to what it was pre-Crosslinking (so it's best to do one eye at a time), full recovery is six months (as the cornea gets more regular by then)
2. Does the cross linking affect the physical appearance of the eye (colour etc)?
No
3. Does anyone have any indication how long this will hault KC?
Its stopped KC up until now and they have been doing Crosslinking since 1998 If you have enough corneal thickness (above 400 microns) then this is with in the guidelines for the treatment. No one know when the effect will wear off... but as you age your body naturally will take over to stop KC because our bodies naturally Crosslinks with age.
4. I can`t find any risks via Google, should I be aware of any?
Follow your consultants advice in the after care, because any intervention has a small risk of infection, thats even has to be said about wearing contact lenses as well.
If by "functioning vision" you don't bean "back to normal", it'll be much quicker than that. My son had x-linking done on a Wednesday and we were able to travel home without much difficulty (airports and all) on Sunday (four days later). He took the next week off school, but was back the week after that with very dark sunglasses.
As Kreading says, it takes much longer for vision to stabilize, so you wouldn't want to chase the correction around with perscriptions for glasses during the first few months.
Risks? Most seem to settle down with vision as-good-as or better than before x-linking. Some seem to end up a little worse, so that may be a risk. We had a bit of difficulty gettong the epithelium on one eye to heal over, but all ended up well.
There is haze for a few weeks people report, but thats normal to expect during the recovery. Also if the "cone" is advanced then there could be movement of the cone to a more regular postion over the pupil, so helping with glasses or contact lens correction. Usually if there is an advanced cone then contact lenses is required, and after crosslinking you will most likeily STILL need contacts... but it will fit better due to the more regularty of your corneal surface after treatment. So with what Gray says with vision going down slightly in a small minority of cases (it is uncorrected vision not corrected vision we are speaking of, and uncorrect vision was very low to start with anyway, but corrected vision its completely opposite, with better correction got at), this happens for more advanced cones only due to what has been described above. This is why it is said to do crosslinking as early as posssible before the KC has progressed too far for treatment. There are limits to that can be treated successfully with any treatment. The aim is to stop advanced kc and the problems it causes. Therefore with in the guidelines for the treatment (and all treatments must have guidlines) there is no risks to speak off unlike what there is with other "treatments"
The earlier the better.
Best wishes, what ever treatment you decide on in the new year