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TOPIC: bluesfan's x-linking


Member

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Date: Mon Sep 24 2:49 AM, 2007
bluesfan's x-linking
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update no. 3

Went out at night and had few problems with light senstitivty in places where there were bright lights or too many white surfaces (I suspect that this is due to the wearing of the dilating drops which Doc told me to stop using if there is no pain, so I did).

Day 2 after x-linking:

Woke up today with far less tears in my x-linked eye compared to yesterday. Had some minor light sensitivity when. I left house today but otherwise my eyes adjusted quickly. Continued using tobradex (antiseptic) drops, systane drops by Alcon for rewetting and irrigating solution drops to keep eyes moist as the bandage lens gets irritating when eyes are even slightly dry. Generally doing much better than expected.

Will see doc on Tuesday to get bandage lens removed. As I metioned earlier Doc had advised that x-linking the better eye may not be necessary as the bodyís natural collagen x-links eventually as one ages (around the 40ís). I am a bit worried about that.


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Senior Member

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Posts: 103
Date: Mon Sep 24 4:10 AM, 2007
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Bluesfan,

If you can get routine check up's easily for your better eye then that might be the way to go, and if needed then proceed to crosslinking. Every one no matter what stage they are at or even those who don't even need glasses should do that anyway. Every should be students and also teachers. Also we must take our own health care needs in to our own hands, because we care about our eyes more than anyone who does not. After all its us who has to view through a Keratoconic cornea.

Thanks for the update, your in a great postion wearing glasses... to stay remaining in them... or even not needing them after the recovery has finished (I hope so!)

Take Care




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Senior Member

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Posts: 103
Date: Mon Sep 24 4:11 AM, 2007
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Bluesfan,

If you can get routine check up's easily for your better eye then that might be the way to go, and if needed then proceed to crosslinking. Every one no matter what stage they are at or even those who don't even need glasses should do that anyway. Everyone should be students and also teachers (which is like being yourself). Also we must take our own health care needs in to our own hands, because we care about our eyes more than anyone who does not. After all its us who has to view through a Keratoconic cornea.

Thanks for the update, your in a great postion wearing glasses... to stay remaining in them... or even not needing them after the recovery has finished (I hope so!)

Take Care


-- Edited by Kreading at 04:13, 2007-09-24

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Phase Two

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Posts: 484
Date: Mon Sep 24 4:22 AM, 2007
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I hope you all the best Bluesfan... a speedy recovery and comfortable recovery and also being able to get out of the medical loop so many people find themselfs in!

Have you got the link to the center doing Crosslinking in Spain? and please pass on our regards to them and don't forget you can upload your Topos on your post if you want to and in good time!

Best wishes

-- Edited by QuintriX at 09:39, 2007-09-24

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Member

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Date: Mon Sep 24 4:01 PM, 2007
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thanks kreading and quintrix for the replies, your encourgament is most appreciated.

the link to the Barraquer centre for opthalmology in Spain is www.barraquer.com

I still haven't received copies of any of my exams (topos etc.) I will ask for those when I see doc tommorrow.

I am doing well today. Eye senstitivty gone. cornea hazy as usual, no pain. All fine otherwise.

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Member

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Date: Tue Oct 2 3:58 AM, 2007
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Ok folks..

its 10 days post x-linking of one eye. Still using tobradex drops and BSS irrigating drops. Bandhae lens was removed exactly a week ago. Corneal haze still there as usual in my x-linked eyes but I am doing compeltely fine otherwise no pain or light sentivity whatsoever. is this normal? I seem to have had minimal problems with light senstitivty and pain unlike what has been reported by other x-linked follks on this forum, is this normal??

Will see doc again tommorrow and hopefully will have some numbers and topos to share with you (I didn't receive those yet)

I am obviosuly dependent on my better and currenlty un x-linked eye for the time being. It remains to be seen whether the doc will still reccommend getting it x-linked ina few months time (as he intitially suggested 2 weeks ago).

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Senior Member

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Posts: 148
Date: Wed Oct 3 11:20 AM, 2007
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Bluesfan,

Just wanted to add that from reading other people experiances the healing rate can vary initally in the recovery, and also vision can fluctuate more so in the early days. It looks like your over the main part of the recovery, its now just a matter of waiting for it to come to its end. Thanks you again for letting us be "a fly on the wall"

Best Wishes

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Optometrist

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Posts: 67
Date: Sat Oct 6 11:43 AM, 2007
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all sounds like things are going very well bluesfan (Birmingham or Chelsea? Or am I way off the mark?). I'm trying to read through a few of these stories as we don't hear a great deal about the outcomes of the cross linking procedures - just a little of the theory. Really interesting stuff, keep us all posted and good luck.

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