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Post Info TOPIC: C3R vs X-Cross linking what is the difference?


Veteran Member

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Posts: 47
Date: Fri Aug 17 1:50 AM, 2007
C3R vs X-Cross linking what is the difference?
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When I was reading all of the things about C3R by Dr. Boxer Wachler and the X-linking in Dresden/dortmund gernay my understanding was they were different.

C3R =  no epithelium removal?
X-crosslinking = epithelium removal?

Is this correct?
 
I am trying to decide what to do with my eyes at the moment.

Orbscan from last week:

my left eye    = 45.5-46.4 D, cornea thinnest = 555um
my right eye  = 44.1-45.5 D, cornea thinnest = 575um

My left eye is having problems and I have just started to get constant minor  headaches above my left eye because of the smearing double, tiples.... My right eye is ok at the moment. I am thinking I wold like to get x-cross linking done in Dortmund, Germany.  I just want to make sure I understand everything. can someone compare the 2 procedures please or point me to where this has been done.

Thanks

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Phase Two

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Posts: 482
Date: Fri Aug 17 11:30 AM, 2007
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Cloudd.. Hi... good to hear from you again.

Honestly... I think we can keep thinking on this more and more with out much end to it. I think the best route is to go for a consultantion with both types of Dr's and then take it from there. Much of it is not just facts, but also what your belly tells you... as its you who must live with your decision... you must feel comfortable that your doing the right thing from start to finish.

Also you have to consider that the treatment is to stop progression, and that could be the indicator that is needed for you to consider this treatment more urgently. So if there is no urgency, you could see if your a candidate and eye ball your respected consultant/s, plus ask questions until there is no more questions to ask, and then take it from there.

-- Edited by QuintriX at 11:31, 2007-08-17

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Member

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Date: Sun Aug 19 10:40 AM, 2007
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As far as I understand, there is no diffrence between cross linking and C3R. C3R is just the registered name of the crosslinking treatment, so the names have nothing to do with de-epthilization or not (i.e. removal of the epthilieum).

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jr


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Posts: 33
Date: Sun Aug 26 12:38 PM, 2007
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Hello cloudd,
I have just crosslinked one eye in Dortmund, Germany. So far I'm quite satisfied with their approach. Yes, C3R and X-linking are the same. If you have any questions, please ask!

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Phase Two

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Posts: 482
Date: Mon Aug 27 7:03 PM, 2007
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Very happy to hear from you JR, I will be looking out for when your flying the Russian flag again on our map of userssmile, as I'll know then you have got home.

Glad you had the chance to met some very fine people. If i did not have KC I would never of know about how wonderful people can be.

Human kindnesses alone can even the score when the odds are out numbering anyone, in other words your traveling first class with us smile

Wishing you the best

-- Edited by QuintriX at 19:08, 2007-08-27

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Member

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Date: Fri Apr 30 10:13 PM, 2010
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In the United States C3-R stands for "corneal crosslinking - riboflavin with the epithelium on" Currently only one surgeon is doing this procedure in Beverly Hills. He has just renamed it "Holcome C3-R" in honor of Steve Holcomb, the Gold Medalist in the Winter Olympics whom he treated.

There are several other trials around the US in progress with CXL - which is is the nomenclature for "corneal crosslinking- riboflavin with the epithelium off"....

From all the research I've done, European physicians routinely seem to interchange the two, hence the confusion of which procedure leaves the epithelium in placevs. which scrapes it off. There should be standardization of the terminology.

I personally just had the C3-R (epi on) procedure after intacs placement in both eyes out in California. It has been a week and the progress is slow, but steady. My vision fluctuates from day to day but I can actually wear a pair of glasses with acceptable vision after not being able to do so for the past four years. Prior to this procedure I was totally dependent on my contacts and I was not willing to risk the chance of getting an infection in my eyes from the epithelium removal and then not be able to see at all. I could not afford to take a lot of down time for recovery either in my profession. You need to decide what is best for you. There are several good studies out there that state that EPI ON is just as effective as the EPI OFF procedure, in world wide independent research.

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Elizabeth


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Date: Fri Apr 30 10:22 PM, 2010
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Also, it is my understanding that the density of the riboflavin mixture (mixed in dextrose) is why the epithelium needs to be removed to penetrate the endothelium in CXL. (called CCL in Australia). In C3-R, the riboflavin is in a solution that is much less dense and crosses easily through the epithelium to the endothelial layer.

Best Regards

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Elizabeth


Executive

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Posts: 155
Date: Sat May 1 1:04 AM, 2010
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Thanks for posting Elizabeth, and thank you for telling us your situation, I hope your recovery will be speedy.

You see at first no one knew the epi was not getting taken off other than the Dr doing it and the patient, so it was the general short way to talk about the vast majority of treatments being done (the Epi off) by a few.

On the most part there are many ways being looked at to get the B" in through the cornea, and used for various reasons by letting the resuts of studies deciding, but this is by convincing other medical professionals and not by having to convince patients at all directly. The "thinner" solution how long has it been use by your Dr ? its a recently development (?) has it been presented and how many studies are there, and how many are doing it ?

Regards

Wayne

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