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Post Info TOPIC: helen's crosslinking experience


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Date: Sat Jul 14 6:40 PM, 2007
helen's crosslinking experience
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Had my worst eye done yesterday at lcrs. Found the worst bit staring at the lights for an hour wothout moving! The drops stung a bit as they were put in. Did'nt like the effect of the anaesthetic wearing off - made me feel very odd. The first night was nowhere near as bad as Mr Dory told me it would be - I actually slept. Have had the bandage lens out today which has made things a little more painful it's easier not to open my eye at all! Pre treatment was upset to hear my vision is only 6/24 in my better eye and 6/36 in my other one - a  lot better than some of you out there I know but I'm not looking forward to being unable to drive. Also Mr Dory thinks I will probably find it difficult to return to my career as a fashion designer even after Intacs so that's a bit depressing. Having my second eye done next Friday - it's a lengthy process !!
Helen

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Senior Member

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Date: Sat Jul 14 10:09 PM, 2007
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Hi Helen,

Thanks for typing a post out for us (you should be resting!smile), and you mean Dr Jory don't you, not Dr Dorysmile

The full treatment done now lasts one hour, 30 mins for the UV to active the B2 and before that 20/30 mins for the B2 solution to soak in to the cornea fully.

Glad that your now well on your way to your recovery. It's a good time to do crosslinking when the condition gets to a clinical stage for contact lenses, there is a small chance you may be able to get away with just glasses or more so soft lenses, but comfort may increase if it is RGP's thats needed. Then there is Intacs (they are removable), which again gives you an even better chance of just needing soft lenses or even glasses. But it can all wait until your corneas are made bullet proof!

While your waiting Helen you could look in to what doors may open for you with your career where maybe work could be more managerial in nature or be more self employed, i'm sure your consultant will help you acheive your visual goal, any treatment for KC is lenghty to get just right, it does take the best surgical hands to get the best results. I am feeling very confident for you Helen.

Good Luck and keep us posted!

-- Edited by Kane at 22:12, 2007-07-14

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Member

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Date: Mon Jul 16 6:44 PM, 2007
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day 3 after treatment and no pain just a bit of irritation vision still very blurred easier to keep eye closed ( mum typing for me ) Iris has changed colour slightly - weird !

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Phase Two

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Date: Mon Jul 16 9:09 PM, 2007
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Hi there Helen and Mum!

It's sounds as if your well on your way to your recovery. The skin lining of the cornea must have healed over by now. The haze shows the treatment is working as documented, and clear's gradually soon enough.

It must be a nice feeling to "bullet proof" your cornea's!smile

Every good wish to you both

-- Edited by QuintriX at 21:10, 2007-07-16

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Member

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Date: Thu Jul 19 5:55 PM, 2007
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having second eye done tomorrow - first eye still has quite blurred vision but no pain now which is good. Managed to sit out in the garden today and enjoy the rare sunshine - my wrap around sunspecs are great so no problem with the glare.

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Date: Sun Jul 22 11:00 AM, 2007
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had second eye done yesterday. With first eye can now read an extra line on the chart. Second eye was much easier pain wise for some reason. I can already open it but can't see a lot !

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Senior Member

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Posts: 148
Date: Sun Jul 22 5:41 PM, 2007
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Glad to hear that you have benefited already Helen, and its still early days in the recovery. An experianced Dr knows who makes an idea candidate, this is why a consultation with an Trained Experianced Corneal Expert is so very important, it looks like you have done your home work Helen, and it looks like the ways its going, your ship has come in!

Keep us posted...

And...

WELL DONE!!

-- Edited by Kane at 18:00, 2007-07-22

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Member

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Date: Tue Jul 31 9:37 PM, 2007
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Quick update. It's now 2 weeks since my first eye and 1 week since the second. In the last few days I have begun to feel recovered but light is still a bigger problem than before - everyone is fed up of sitting in the house with the curtains closed! It was a beautiful sunny day today but I couldn't stand to be outside in it even with sunspecs. Seeing the consultant tomorrow for a follow up - think my corneas are still quite swollen and still have quite a lot of haze.

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