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Post Info TOPIC: Going for it! Helen's story


Member

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Posts: 20
Date: Wed Jul 11 8:44 PM, 2007
Going for it! Helen's story
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thanks to brill info on this site and replies have decided to take the plunge. Am going to LCRs tomorrow for consultation and possibly treat the first eye on Friday, followed by the second eye in a weeks time . At the moment have 6/12 vision in my better eye but only 6/48 in my worse one. Can't wear contacts (GP ) and struggle on a daily basis with computer work, tiredness, light sensitivity. My expectations? If it means I can wear ordinary contacts or glasses and the progression stops then I'll be happy. Not looking forward to the pain!

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Phase Two

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Posts: 482
Date: Thu Jul 12 2:22 PM, 2007
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Hi Helen,

Any time you feel like messaging us, you just go ahead and do it, rain or shine we will be around for you during the time you need us.

Here are some things that come to mind which I would like to tell you about:

1) Any patient must feel they are able to "take their gloves off" and feel comfortable that the leastest, most minimal treatment is being considered at a given point in time, including keeping as many options still open to the patient in which ever treatment is being opted for.

2) Once contact lenses can not be worn then to correct vision it is surgery that is needed. You are in a great situation, as you can still get around with out contact lenses. So if this situation can be "frozen" then that would be ideal. With more uniformaty, correction will be easier to apply. I very much also feel, once the cornea has settled you could very well stay out of RGP's.

3) We consider this place as a place where you can come and do your own research, get support, meet new friends, and then get back to your old pre-KC self as much as its possible... and out of the medical loop that exists in KC. Come back from time to time and help others though;)


Great to hear from you


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Member

Status: Offline
Posts: 20
Date: Sat Jul 14 6:44 PM, 2007
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thanks. Have had my first eye done so have posted on the next section.
The assessment at lcrs was very thorough and I had over 2 hours to ask as many questions as I needed. I felt really confident that I am doing the right thing and was not nervous on the day at all. Am pretty confident Mr Dory will be able to improve my vision overall which will be great. Just need to be patient.

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