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Post Info TOPIC: Has my crosslinking operation failed/


Member

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Date: Wed Jun 13 10:48 AM, 2007
Has my crosslinking operation failed/
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Hi,

I recently had crosslinking done on my right eye. Prior to my operation I had severe keratoconus in my left eye and the early stages of it in my right eye. In order to save the sight I had with my right eye (which was very strong and I hadno problems with sight except at night when my left eye would influence ghosting and halos) So I had crosslinking done on my right and went through the usual recovery over a few days. However, after a few days of my sight coming back to normal it suddenly reversed and has no deteriated significantly. I can no longer recognise people 5-10 yards away and everything is a hazy blur. I've lost a few lines of sight in my right eye and reading has become near impossible. Before crosslinking i could function perfectly. I visited my doctor, but could only see his partner as he was away on holidays. I am now in America for three months on a a J1 visa and cannot have my eyes checked until i come back. I was operated on the25th of may and am at the stage i am at now. I was wondering if hazy vision for a few weeks after crosslinking is a common issue or perhaps a rare one or unheard of? The doctor I did see was confident that it was part of the healing process and could see no rason for the haziness. He said it was due to the eyes reaction to UV lights and th strengthening of the crosslinking that happens as a result. Anyone reassurance or information would be greatly appreciated.

Thank you

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Veteran Member

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Posts: 39
Date: Wed Jun 13 5:06 PM, 2007
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Hello,

I haven't had crosslinking done yet, but hope to do so soon. My vision is very good at the moment and I only wear glasses when I'm tired or at work. When I spoke to people about the various recovery times and problems, haziness was mentioned by nearly everyone. Haziness is normal and can last up to a number of weeks. I think you should call the clinic where you got your treatment done and ask to speak to the doctor who performed the procedure. Explain to him/her exactly what you are experiencing. I'm sure its normal but better cafe than sorry. Also, I haven't heard of anyone who's eyesight has gotten worse after crosslinking so I'd say your ok. But maybe somebody who had it done might shed some better light. Have a look through previous posts. Your bound to find something there.


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Phase Two

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Posts: 482
Date: Fri Jun 15 1:10 PM, 2007
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Dinnigan welcome, glad you found us ...It's always a pleasure to hear from a KCer, I have to say!

Patient to patient, there can only be support!

Your experiance so far I can say, is consistant with the studies and patient reports.

And as an exclusive, through the support we gave to Medical Professionals and Patients, I would like to post the next link in honour to them and their dedication.


http://www.opticianonline.net/assets/getAsset.aspx?ItemID=2474



-- Edited by QuintriX at 14:03, 2007-06-15

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Member

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Posts: 20
Date: Sat Jul 21 4:58 PM, 2007
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Hello Dinnigan

Thanks for your message here. I hope you are recoverng well and feeling better :) Could you update us on your condition? Has the haze gone? and how is the C3R results so far?


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Member

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Posts: 5
Date: Mon Jan 5 8:51 PM, 2009
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Hello everyone,
Sorry for the late response.

Yes, the hazing eventually went with time and both eyes (I had the left crosslinked after the summer) eventually settled, and improved very very slightly, and have not deteriorated since. It definitely stops KC's progression, that much is for sure.

I would recommend however for those yet to get crosslinked to seriously consider laser surgery prior to crosslinking if at all possible. I had wished to do so prior to crosslinking my right eye, but my doctor was uncomfortable with the idea as it hadn't been performed much when I desired it. 

I then tried to get laser surgery before crosslinking my left eye, but its cornea was too thin for surgery. It does seem that laser surgery, if your cornea has enough thickness, followed by crosslinking is a borderline cure(very effective fix) for KC.

Anyway, just thought I'd pop in and say that the burred vision after surgery will go and things will settle to how they were before surgery. I'm still searching for lenses post-crosslinking that reduce halos and ghosting, but at least I'm safe in the knowledge that my keratoconus can't get any worse.

As a side note... My right eye has more than enough thickness to perform laser surgery post-crosslinking. Is there any data on following crosslinking with laser surgery once the eye has settled? I'm a bit unnerved about hte prospect because the laser surgery would be literally cutting into the crosslinked cells, but I believe it has worked in some cases? If anyone can point to to information on that method i'd really appreciate it. It'd be great to only have to deal with one lens instead of two!

If anyone has any questions about my crosslinking experience feel free to ask!



-- Edited by dinnigan at 20:53, 2009-01-05

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Senior Member

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Posts: 101
Date: Mon Jan 5 9:23 PM, 2009
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Hello Dinnigan,

Glad your doing well !

The best people to ask would be the members who had PRK and CXL. I think its prefered to do PRK before, but not impossible afterwards.

You can read four members stories here, mostly they have posted in the
"share your ex[periances" section. Dominic is the latest member, he has had a rocky recovery, but you can still ask him or the member calle "Cloudd" he is doing well and is fully recovered.

On their topics you will find the Dr's contact details who they went to see. Dr K has the most experiance, he actually has used this combined treatment for some years now and he is located in Greece.

There could well be a Dr in the UK (i think), please Private Message "Quintrix" and he will give you the details as he would know.

Best wishes


-- Edited by Kreading at 21:34, 2009-01-05

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Member

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Date: Fri Jan 9 1:05 PM, 2009
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Happy new year to everyone in this forum! I hope 2009 will be better for all of us.

Dinnigan, I have performed prk+cxl here in Greece and I know that dr. Kanellopoulos used to perform cxl and prk afterwards when he tried this combination at first, so he has some experience with this. I have read a paper about this, I'll try to find it. You should visit him and ask his opinion about it.



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