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Post Cross-Linking Treatment (And a Summary of my Experience with KC)
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I see the forum isn't terribly active--and the category I wish to post in hasn't had activity for two years, but maybe someone on the board will see this (at least, that is my hope). Anyway, I would like to first summarize how my experience with Keratoconus started (before I even realized I had it), and...
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Varwulf
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16
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3700
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Increased ghosting (hazing) after CXL - What improvements can be made on this?
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Hi I am quite new here and only did a cursory look through previous threads so excuse me if this is something that has been gone through many times before. I have had my left and right cross linked 18 and 9 months ago respectively. My right was better before than the left and now worse, with much more prono...
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rob_s
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3
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76
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My story after PRK+CXL for both eyes
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Hello, I'm Ahmed, 29 from Egypt. I was diagnosed with keratoconus in March 2015 in both eyes (Right eye grade 2 - left eye grade 1). Background: I don't like to wear glasses so in the age of 23 I was supposed to wear one so I put it for like one month and then kept it in the home. But my vision started to go down w...
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AhmedElsayed
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3
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76
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Corneal neuralgia after crosslinking
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Thought I would share my experiences post epi off crosslinking on left eye. Basically there is a risk your doctors don!t tell you about. The debridement of the cornea that take place for crosslinking can and in my case did cause permanent nerve damage. for seven months now I have had pain in my eye, fee...
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Samcross
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1
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79
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Preparing for Cross Linking
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I've just come through my third cross linking operation and have decided to bring together pool of advice (retrospectively) to help preparations for people who have yet to undergo the procedure (also I'm sure it'll be useful again if, heaven forbid, I need a 4th operation!) If crosslinking is a pos...
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Clare
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4
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89
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infection after cross linking
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i am new to this and all forums so please be patient with me my 21 year old son had cross linking in both eyes 9th august and immediatly developed a very serious eye infection in his right eye discovered 3 days after procedure. they treated him for virus and bacterial infection after many tests and count...
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banditqueen
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12
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998
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Both the eyes x-linked...Stanz's story till now.....
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Although was thinking of going for the x-linking in both the eyes on the same day[as posted in the before x-linking section] but then Had my right eye x-linked on friday, 29th feb and the left eye after two days i.e on monday, 3rd march...... I will describe this in a bit detail.... The docs first used a sp...
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STANzboy
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23
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1678
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CXL results, preop to 20month postop
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Preop to 20month past CXL, values look nice, however still too irregular cornea to get something useful without RGP. I hope to buy a flatter RGP and by that improve BCVA. Do the orbscan pictures look as good as the figures? I find it a bit hard to get all useful information out of them.
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Zenke
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1
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524
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double (multiple vision) after c3r
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hi everyone, I had C3R treatment done for both the eyes in July 2008. I experienced haze (had do use sunglasses for 3 months) after C3R and doctor advised me some drops for 6 months and vision cleared gradually. but still I feel my vision was better before. now what i see is more of shadows / double triple...
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Dineshk
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1
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405
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Keratokonus and Pregnancy
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Hello All, I have had Keratokonus since I was a teenager. I had a cross-linking procedure about three years ago in Dresden on my left and most damaged eye! recently I tries to wear a contact lence only for the damaged eye but decided to count mainly on my right eye which as the doctor says is not progressin...
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Silviya
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1
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286
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confused and scared
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Hi,I am going to have cross-linking done , and am a bit confused. I am 45 and over the past year my KC has not got any worse-so firstly I really dont know the reason my doctor wants to do it, as I thought it was done to stop progression, and really thought I would be too old, especially if it looks as though it ma...
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juanita
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305
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Vision change after C3R
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Hello everyone,
I have keratoconus in both eyes. i underwent C3R in my right eye on 21st december 2007.
Here are my pre-op readings on 15th Dec 2007-
Power 46.2D(7.30mm)
SimK Values 48.62D@154, 42.00D@64
Here are my post-op readings on 7th Feb 2008(7 weeks past operation) -
Power 47D(7.19...
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ruchikagupta08
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16
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1321
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Corneal Haze After Cross Linking
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Hello everyone As I have mentioned in a previous post, I have done cross linking in both eyes. 4 months have passed for the right eye and 2 months for the left. Both corneas are still a little hazy. The haze can be noticed mostly at night when looking at light. The haze has remained the same, no noticeable...
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zk
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423
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please need help
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Hi every body, I discovered that I have KC only before 7 months ago, my age  is 24, dr told me you should do CXL in your right eye I toke appointment and did cxl in my right eye and after 3 months in my left eye, my right eye recovered and I can see same before operation, but my left eye after 4 months of treatmen...
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Tamer
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5
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269
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My story after C3R
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1 2 3 4 5 … 7
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I have been reading this forum for a couple of weeks now and I must say you guys are doing a great job maintaining and moderating this site. May god bless you all for a great effort.
A little bit about my story, I have moderate KC in my right eye and mild in the left one. Fearing the destiny of my good eye to be...
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Fayz
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52
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2193
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Crosslinking in younger patients
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Hi All, I've been off this site for a year now, because KC was out of our life (I thought). My 14 yr. old son, Zack had C3-R in Munich last year at this time. Next week is his anniversary actually. He has had a full year of no progressive degeneration. (his procedure was epi-off). Our MD in Chicago thinks th...
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LisaChicago
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243
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Goin for IT@!! Finally........
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Dear Friends, After many many months of research, I have decided to go for it. I have found this site and people on it, extremly helpfull. However, my dilema was that I had PTK ( augmented PRK surgery) 11 months ago and I was asked by two surgeons to NOT remove my EPI for at least 1 or 2 years. This was a...
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simon123
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28
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how much time to end haze
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hi i had a crosslinking operation with my left eye and after 3 days the doctor took off the contact lense. But i could not see any difference and the haze still continues. though i can see with my right eye properly, i am curious whether my left eye will see an improvement gradually or not. some doctors s...
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bozo
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4
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323
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cxl post taking too long?
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Hi everyone! My name is Cecilia, Im from Argentina. I was diagnosed with mild Keratoconus in March this year. After consulting with several ophtalmologists, I decided the best option for me was c3r, since although the KC wasn't severe, it was evolving quite fast. I had the procedure done in both eyes...
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chechim
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PRK and cross-linking treatment
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Hello everyone,
First of all I want to thank the creators of this forum and all those contributing - I'm sure you have given hope to thousands and provided a great support.
I have been meaning to write on here for sometime but I've been slack, anyway I hope this helps.
I'm a 29 year old from New Zeala...
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Nick00
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423
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My crosslinking experience so far
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Hello everyone! My name is Julia. I have post-lasik extasia on both eyes. Diagnosed three months ago, all this time I've been considering crosslinking and going through regular check-ups to look for progression. Though my doctor said that by topography I had no significant worsening, I've been no...
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jr
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57
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2522
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Randomized to the FDA Trial today
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Thanks to all for your messages and sharing your experiences. My wife has post lasik ectasia and today will be randomized to the FDA Crosslinking trial. If she is in the experimental arm, she will have crosslinking in her left eye. If she is randomized to the control arm, she will have to be observed for...
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tomt
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584
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After cross linking Helens update
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Whoopee!! Had a follow up appointment today and have been told I can now drive again as I have 6/12+1 vision !! There is still some swelling in the central cornea but the k readings are lower in both eyes and the astigmatism is also reduced in both. Got to wait a further 3 months before having Intacs done ho...
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Helen
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9
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704
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Both corneas crosslinked
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Hello, so it's been 15 months since my right cornea crossliniking and about 7 months since the left. The right is stable overall and shows a visual acuity in the range 20%-40% (with 10%-20% before cross-linking). Helas, I do not have Orbscan done before the cross-linking of the right. The left shows s...
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Yarsky
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467
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bluesfan's x-linking
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I will be doing my crosslinking very soon (next Friday tentatively) at the Barraquer Centre for Opthalmology in Barcelona, Spain. Hopefully, if I am able to type I will be keeping eveyrone updated of my experience here on this thread! I know this might be a bit "out of the subject" but: how c...
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bluesfan
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After X Linking - Jan's story
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Hi there Sorry for not being so much online, but here I am again with a few finale words. I would like to describe my after-x-linking experience to all of you. My experience with this treatment so far is it is pretty harmless and you don't run any high risk by getting it done (if you are a candidate f...
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Jan84
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432
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Another battle won
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1 2
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(Preview)
Hi guys,
Today is a great day. I just went back from the optometrist and found that I get pretty normal vison using just an ordinary glasses.
I consider that the best success up to now... glases couldnt help me at ll before the operation. Here comes the parameters.
OD -2.0 60 deg
OS -0.5&n...
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Valeri
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737
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SoftPerm upon x_linked cornea
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Hi Guys!
I am writing this in order to not get too relaxed, asleep, calm, etc.
I went to my old ophtalmologist today, the one I saw in June 2005 a month before I decided to x_link. I told him I did it, he was probably impressed. He measured all things he used to measure for a KC. He could not print my scans f...
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Yarsky
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370
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Corneal topograhpy and corneal thickness scan
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Here comes the results. Note the three scans, one just before the procedure, one a month after the procedure and the last are 5 monts and two weeks after the procedure. The vision improvement I've been reporting lately is evident from the K-reading. Also note the corneal thickness value, handwritte...
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Valeri
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431
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Battle goes on
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Hi guys,
Its been five months since the crosslinking procedure.
This week I plan visiting my current optometrist. I will be taking lens metrics, wait for a week or two, then take metrics again. If parameters does not change I will announce that cornea is stabilized. If not... we will think...
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Valeri
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359
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My observation after crosslinking
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Here I share my experience and in some cases - my personal opinion.
I divide the post-crosslinking in several stages.
1. Right after the procedure
2. First days after the procedure
3. Closing of epithelium
4. Restoration of natural tear flow
5. Back to normal.
Its a little disc...
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Valeri
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624
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