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STICKY:
Article from CRS Today
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Dear friends, This a link of a very recent article about C3R http://www.crstodayeurope.com/Html%20pages/0607/f4_roundtable.pdf. This is very encouraging. Best regards. Act
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Action444
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Corneal cross linjking and topographic guided ablation- the Athens Protocol being performed in San Diego.
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Hello all. My name is Dr. Motwani and my practice is in San Diego. I am posting here as I perform topographic guided ablation combined with corneal cross linking to decrease keratoconus caused corneal irregularity and then strengthen the cornea. I believe I am one of the only people in the United Stat...
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Risks And Complications In Corneal Cross-Linking
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"I was diagnosed with Keratoconus last year. My left eye is perfectly fine but my right eye is blurred. When I first said this to my parents they didn't believe it. They were like: "don't worry it will go away on its own". Later my doctor diagnosed it. And he gave me a pair of hard contact lenses. It made e...
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Normajallen
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ghosting/halos/starbursts increasing despite crosslinking
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Hey people, i’m looking for some information bout my case. I’ve got diagnosed with KC at the end of 2016. My left eye has been treated with epi-off crosslinking (CXL), right one with epi-on. It’s been 13 months for left eye and 3 months for right eye. Despite been treated with CXL and confirmation fro...
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Epi off crosslinking in Houston clinical trial
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Hi all, I have had KC since I was 13 - 34 now. Left eye has always been worse, I can get by with regular glasses on right eye (very mild). Only hard contacts which I go through like socks on my left eye. Only my left eye qualified for the study and I pulled the trigger yesterday. The entire procedure took 30 mi...
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okhawaja
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C3R
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would C3R change your current prescription?
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bbrunsell
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Is Cross Linking FDA approved in US?
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I'm just starting to research, so forgive my ignorance... I've just learned (now that I'm legally blind), that my Ophthalmologist has led me astray in many ways the past 7 years, so I'm confused about a lot of things. One being - I was told Cross Linking isn't FDA approved, so it can't legally be done in...
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DancingInTheRain
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can X-linking cause cataracts?
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Hey, Just had my year checkup after x-linking (epi-off). Good news is the ectasia is stable. Bad news is I have developed cataracts. Being only 48, I'm thinking, hmm... UV rays cause cataracts... OH No what did I DO.. Well, the eye doc said the cataracts were coincidentally caused by the Hydrocortizo...
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jimmy manthey
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Differences between faster and slower crosslinking method ?
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Hello, Anybody have any idea what are realistic differences between the croslinkings: - the one what take more time (around 30 minutes) with less-power UV light - the other what take less time, around couple minutes with more-power UV light Thanks
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opposite
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When will insurance cover collagen cross-linking in the US ?
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Hello everyone, I will keep this short and sweet. I was diagnosed in 2010, ended up getting intacts in 2011. At the time I could not find someone near me (Denver CO) that did crosslinking and I wanted to wait a little bit to do some research. It seems to have stabilized but my corrected vision in my righ...
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MRT30
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Opinions on the way forward, orbscans of the "good" eye
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Hi, I need some opinions of what to do, because i have no clue and my eye doctor says wait :) I post 3 orbsscans of my "good" eye covering half a year, from the orbscans it can be said that KC is pretty stable, I mean changes of 0.1 0.2 D is too little for the eye doctor to do a CXL, since the orbscan see...
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Zenke
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Experienced X Link Doctor In Florida
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Can anyone provide me an experienced doctor in florida, or maybe just the best doctor to see for this procedure. I have always been fairly correctable 20/30 left eye, 20/50 right...right is my bad eye, but im noticing more and more ghosting in my vision and is getting hard to read things unless close u...
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richdib
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What after C3R?
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I underwent C3R last year. My eyesight has not improved, and I have stopped using lenses also as my eyes could not bear them. What should I do now as I feel I am progressively turning blind?
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Anonymous
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US Clinical Trials Accepting Patients
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Hi, If anyone is interested, as of March 12, 2010 I have found two NIH clinical CXL trials that are currently open and are accepting patients: Los Angeles Trial number NCT01081561 CXL with and without Intacs – random on Intacs Eye Surgery Center of Beverly Hills Dr. Yaron S. Rabinowitz http://www....
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Mark C
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Does Anyone Have Any Info on Bochner Eye Institute, Toronto?
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Specifically related to their corneal collagen cross-linking with riboflavin (C3-R) treatment? I am concerned it doesn't match the treatment developed in Dresdon, Germany. Any input is greatly appreciated. Thanks, Justin
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Who is doing epi-on cxl?
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Hi, I'm new here. I have advanced keratoconus. I've just found the new riboflavin drops ricrolin for epi-on CXL. I'm very interested, but don't know of any clinics using it. Does anyone know of any clinics using ricrolin? I know I could stay in Canada and get normal epi-off CXL but i'm concerned my epi...
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cessna
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has anyone one had a bad reaction to the cross linking like me???
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hi i had the cross linking done about 7 weeks ago in my right eye as that was a little worser than my left i paid £1000 after the op i was in real bad pain the pains gone but the eye is still blurry my eye swollen very bad and i was on steriod drops for 5 weeks after doc says my eye had a vigorus reaction to the cross l...
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kezza
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collagen crosslinking
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I am trying to get info on CXL for my 10 yr. old son with KC here in the USA. Any recommendations about Dr. Stein in Toronto? Thanks.
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sangi
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Boxer Wachler epi on C3-R treatment
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My Girlfriend who has mild to moderate KC is thinking about getting her c3-r treatment done by Boxer Wachler located in los angeles. He performs C3-R without epithelial removal. Has anyone gone through this type of treatment and found it to be effective or non-effective? Please let me know -- Edited...
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tjpannu
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Epi-On CXL
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At the recent ESCRS meeting in Budapest I was introduced to RICROLIN®TE (riboflavin 0.1% + enhancer). This is the first transepithelial formulation certified for corneal cross-linking in Europe. Sales reps said that it will be available within the next few months. Peter drgoren@hotmail.com
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drgoren
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C3R vs X-Cross linking what is the difference?
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When I was reading all of the things about C3R by Dr. Boxer Wachler and the X-linking in Dresden/dortmund gernay my understanding was they were different. C3R = no epithelium removal? X-crosslinking = epithelium removal? Is this correct? I am trying to decide what to do with my eyes at the moment. O...
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Possible post x-linking treatments
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Hi,
I'm currently starting gathering information on what are the possible treatments after x_linking that might improve vision? I have in mind things like
- Intacts
- Implants
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And of course I am talkiing about corneas far too gone in KC to be improved by glasses after x...
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Yarsky
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How painful is epi-off CXL method?
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Can someone please tell me how painful the epi-off CXL method is? What is the pain like? I mainly want to know the pain after anesthesia wears off.
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tommyboy
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Crosslinking in the US with epi off?
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My gf suffers from mild-moderate KC. We are currently evaluating our C3R options. We would ideally like to find a doctor in the US who performs collagen cross linking. Does anybody know of any opthamalogist who performs C3R with epithelium off in the US? Does anybody have any personal experience?
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tjpannu
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Crosslinking at the Turner Eye institute - SF bay area
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Does anybody have an experience with the turner eye institute in the bay area.
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tjpannu
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Has my crosslinking operation failed/
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Hi, I recently had crosslinking done on my right eye. Prior to my operation I had severe keratoconus in my left eye and the early stages of it in my right eye. In order to save the sight I had with my right eye (which was very strong and I hadno problems with sight except at night when my left eye would influen...
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dinnigan
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Nitrite ions solution for xlinking the keratoconic cornea
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A new treatment for xlink the corneas? Please read the link http://www.wipo.int/pctdb/en/wo.jsp?WO=2008070185&IA=US2007025126&DISPLAY=STATUS
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Juanito
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Collagen crosslinking with riboflavin and UVA-light in keratoconus
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Collagen crosslinking with riboflavin and UVA-light in keratoconus Reduced corneal mechanical stability in keratoconus and similar corneal diseases can be treated by photooxidative crosslinking of the corneal collagen. This method is currently undergoing clinical evaluation worldwide...
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Crosslinking studies going on
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Collagen cross-linking shows encouraging results in French study
PARIS — UV corneal collagen cross-linking is showing encouraging results in patients with keratoconus and post-LASIK ectasia, according to the results of a study conducted at two centers in France.
David Touboul, MD, and Pi...
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Juanito
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Who is performing x-linking?
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I have the link to the hospital in Dresden, as well as Dr. Boxer Wachler's site.... who else specifically is performing this around the world. I have heard that it is also being performed in Mexico and trials are starting in various other places (Italy, France, UK), but I haven't been abl...
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Chrism
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Eye damage and RGPs..wat after c3-r?
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I am StaNz from india and will go for the c3-r with in ten days from now. I am wearing the RGPs since last one year. I was not comfortable wearing the lens in my right eye as when i used it for extensive periods say 12 hours or so my eye usd to get red ,swell and pain a lot....so wenever such swelling took place i u...
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STANzboy
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Epithellium removal necessary or not?
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hi guys i was surfin the net and got this article which shows the study on two groups of people.One with epithellium removed and one without...which is may be the difference between the c3-r and x-linking..... http://www.eyeworld.org/article.php?sid=3797
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STANzboy
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Have had Keratoconus for years - but little helps
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Dear all, I have had Keratoconus since I was 16 or so (am now 35). I have struggled with various contact lenses - that have proven uncomfortable and leave my eyes read and sore. To be honest - I have more or less abandoned the use of contacts for probably 10 years or so. I have basically just been getting by ....
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monicakalia
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Trials beginning to recruit in US!
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Crosslinking Trials at Emory University
I just googled "keratoconus+December+2007" and found this news. I don't have time to investigate whether it is epi on or off, but this...
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JNewman
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3rd International Crosslinking Congress
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3rd International Crosslinking Congress: Corneal Cross-Linking Congress Zürich (7. - 8.12.2007) Communicating and understanding the technology of Cross Linking www.ccl-congress.ch Renaissance Zurich Hotel Talackerstrasse 1 Talackerstrasse 1 CH-8152 Zurich-Glattbrugg CH-8152 Zuric...
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New IROC Site
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"Transplantation of corneal tissue (keratoplasty) is the most frequent type of organ transplantation with more than 40'000 interventions per year in the US and Europe. The number of available donor corneas is significantly lower than the corresponding demand in the clinics - in germany al...
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QuintriX
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An article from Profesor Seiler
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On pubmed.gov, it has just been added this article from Theo Seiler [Therapeutic Cross-Linking of the Cornea Using Riboflavin/UVA.][Article in German] Koller T, Seiler T.Institut für Refraktive und Ophthalmologische Chirurgie, Zürich.BACKGROUND: The method of cross-linking of the cornea...
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Action444
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Some studies about C3R
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Hello to all, These are some studies about C3R that I have just found on pubmed.gov or the site of ESCRS Meeting 2007. Best regards. Act ==== Collagen cross linking for keratoconus: a prospective trial Purpose: To present preliminary safety data from a prospective, one eyed trial with regards to the...
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Action444
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work and kc
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Am interested to know other people's experiences of working with kc and whilst recovering from treatment. Have just had C3R done and there is no way I can cope with my usual job of fashion designer. It was always difficult before C3R as using computer made the eyes hurt, headaches, feeling very tired....
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Helen
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Presentations from the CCL Congress 2005, 2006 & more
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Here's something I got from my Dr. Lots of crosslinking results and statistics from different doctors and countries. May be of interest for anyone who is considering crosslinking. Personally I can say that looking through all this made me more cautious. Having done research on the internet befor...
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