I had a corneal transplant in Sep 2007 in my left eye. Following the operation my eye was subject to numerous infections, loose stitches and extreme dryness which resulted on months upon months of steroid drops. The stitches were removed March 2009 and to this day I am still taking steroid drops and l...
Hello everybody, somebody here that has experiences with the Wellington Eyeclinic? I was in intensive mail contact with Dr. Cummings and I am wondering to to combined PRK+CXL on my right eye there (SimCL). I am from Berlin Germany, and here in Germany it is difficult to find someone who has experienc...
Hi, Firstly I would like to introduce myself, I am Racheal, I'm an Aussie mum of 2 and I'm 34. My story started when I was 15 and I was diagnosed with having kc in my left eye and was given glasses to wear for reading and then at 18 I was told I needed to wear RGP lens in that eye as my right eye was perfect. All I can...
Hi, I am new to this forum and this is my first post. I am 57 years old and have had Keratoconus for over 37 years. I have tried multiple times to get contact lenses but to no avail. In fact I was a case study for the Boston Eye Institute. They would have me come in every Monday and they would try different lense...
Hi everyone, I recently went to enquire about laser eye surgery, a few days after my consultation they ring me to say that I'm not suitable as there are signs that I have keratoconus. What are the chances that I have this? Are there any symptoms that go with it in the early stages? I've never experienced h...
Hello there,I have a quick question for all of you. I recently went to see whether i'm a candidate for cross linking. The doctor has done the tests and over period of 4 months my right eye with keratoconus has decreased. Is that possible? My left eye continued to progress and needs to be done soon. Tha...
Hello everybody! I work as a helicopter pilot and the fear of losing my medical certifikat is painful. Trouble sleeping at night and just feeling worried all the time. I was diagnosed with KC in 1999 and so far has only affected my right eye. The maximum according to the aviation rule is -8 dioper. My la...
Hi all, sorry if i've posted in the wrong forum section Im new to this forum. Im 28 and was officially diagnosed with the disease in both eyes last year (even though i have suspected it for about 7/8 years). (just the people at vision express and specsavers didnt notice it until last year. I have seen ma...
I am pretty new to this site, and I really need some advise about my KC. I went to see my Dr. yesterday and my eyes have changed again. My topography was worse than the one I had not even a year ago. I was hoping that the lenes that I was using would stop the progression, but it has not.&nbs...
Hi,
I'm Rebekah from Australia. I'm almost 30.
I was recently told by an ophthamologist that I probably have KC. Right now I'm waiting to go to another ophthamologist for more scans.
I didn't take much information in from the first ophthamologist because I think I was in a bit of shock at the time....
HI there everyone, my name is Melissa, and I have had Keratoconus for roughly 15 years. I have it in both eyes and had a "fair share" of good days and my "fair share" of bad days over the years. I went days wearing a lens in only 1 eye, to days with no lenses at all, taking time off work...
As initially KC appears moostly in one eye so should we go for Crosslinking in both eyes or just the one with KC? We know that KC might never appear in your healthy eye or may be it will appear after many years so should CXL be done as a Preventive measure for the healthy eye? Also keep in mind that long term e...
Just going to list some symptoms I have and am curious if you have these or had these before correction/contacts/ and so on with your KC, or if these are not common. - Tracking problem. This is like trying to keep your eye on anything moving, but even talking to someone who is very animated with their hea...
Hello everyone
Can anyone help me with reading this topography, like what do all the values mean , like k1, k2? what are these? etc... I am having a bit of difficulty.
Attached is the right eye topography , 1 year post cxl.
Hello all, I am from India and I was digonised with KC about 4 years ago i am now 22. I am using semi soft contact lenses. During my recent check up the doctor has advised me to undergo TCAT plus Cross linking for my left eye as KC has progressed more in my left eye. Its on Oct 22 Well i have recently got a job and b...
I'm a bit reluctant to write here. Not out of fear, but out of ignorance. So, with that said I'll proceed and if I'm inaccurate all around then please tell me. My name is Matt. I'm 37, now, and I live in California. I was diagnosed with KC about 4 years ago. At the time I had Kaiser HMO, but no vision cover...
Hello all,I did cross linking for the right eye on August 10th of 2009 and the Left eye on September 24 of 2009 so it has almost been a year. Here is the current situation:My prescription has changed. My sphere power or myopia prescription went down from -6.5 to -5 in both eyes and the astigmatism presc...
Hello, im sure i have had this disease for years. In my left eye only thankfully, i was told i had it back in early 2005 and was told it was bad. Years later 2008 i went to get eyes lasered and was told there was no fix for my left eye. It was pretty bad at that point, recently just saw a ad in a magazine that Dr. T...
Hello everyone, this is an amazing fourm you have going, keep it up and thanks for everything! I just had a question about where the best place to get PRK & Crosslinking done in Toronto? I've just been told I have KC a month ago and I'm 20 years old. Anyone have any experiences with doctors in Toronto?...
Hi couple of questions 1)Are hard contacts able to control KC by keeping your eye under the wall of the lens or are they only useful for vision correction? 2)should you get contacts if your one eye is weak due to KC but you are able to do work normally with the help of your good eye ? comments and suggestion...
hi I just got Diganosed with KC ,I have were you can see like it looks like a extra lens on 3/4 of my eye ,but it looks like it has shifted ,father over ,I cannot drive at night and have to squit all the time I also have it if I look at the Moon I seem many of them ,I also see Ghost images all the Time they dive me nuts ,...
A really good article about "the facts about the cornea and corneal disease" (there is a section on dry eyes)
Please Click Here -- Edited by QuintriX at 03:15, 2005-06-27
I was diagnosed with kc in 1991, then 23 years of age. At that point I was studying for my BSc and my friends were pointing out that I must have a problem. I was sitting in front of the class and still having trouble to see. My optician looked at me for one minute and said what was the problem and that I have to go...
Hi everyone! I am new to this forum as I have started the journey of KC researching. I have been diagnosed with KC in both eyes since 2004. My left eye has progressed faster than my right and yesterday I was told that I would be a candidate for the corneal transplant. I'm seeing 20/60 with my contacts (...
Hi, I've had one of my grafts for 20 years, is there anyone else out there who has had their graft for this length of time or preferably longer? I know grafts don't last forever and I do get scared sometimes. I want to know there are people out there who have had them for 30-40 years. If you have please just le...
Hello all, First of all - this board has been a great find. I only just found it tonight, but I think that with some more reading I'm going to learn quite a bit and hopefully move forward with my situation. I am 26, and I developed KC when I was 14. I have 20/20 vision in my left eye, and in my KC right eye extreme...
I was dx with KC at age 22. I'm now 44 so I've had 22 years to live with it.
I must admit I have put my KC condition on the back-burner because I have had MORE pressing ISSUES in my life that have taken over.
I feel badly that I have neglected my vision/condition.
I had a partial corneal transplant in 2002...
I don't know what to think....this is really weird. First, you'll need some background info: To get fitted for new Keratoconic RGPs every so often, I first have to take out my contacts for 3 days and just wear my glasses (so the cornea goes to it's most unnatural state). I go to an Opthamologist...
I am 20 years old I was Diagnosed with KC when i was 13. It was like all of the sudden i couldn't see anything anymore and they quickly found out why. When I got my hard contact it was the most uncomfortable thing ever, and i simply delt with it being young until i reached the age of 18 and my doctor told me about...
HEY! My name is Cinzia I am fromMilan and I am an associated member of the Italian ASSOCIAZIONE MALATI DI CHERATOCONO ONLUS http://www.associazionecheratocono.it I would like to share with you the video that I have created and that I have linked on YOUTUBE here is the related link http://www....
Hello I am new to the forum and just have a few questions. Has anyone here had crosslinking AND intacs done? I am thinking about getting this done and was recommended by my opthamologist to get it done in my right eye. Will there be much of an improvement in my vision? My average keratometry values is mid f...
Hi, I have keratoconus and heard about Collagen cross linking , now i am 30. I got keratoconus at the age of 15, i have been using Hard lenses from that time, but suddenly my eyes became intolerant to hard lenses. Now i want to go for collagen cross linking and when i saw the criteria They said that thicknes...
Hi, Can somebody shed some light on which device provides the most accurate/reliable corneal thicknesses? I had scans done using 3 different devices (ORBSCAN II, Pentacam, Ultrasound Pachymetry) and all show different values.
Hi i have following questions on cxl procedure.if any one of you knows the answer you can email me ramanarao.kommi@gmail.com 1.CXL is approved by CE by Europe and by canada.is this approval for cornea <400 microns also? 2.How long people in Europe is been doing cxl for cornea <400 microns 3.I...
Hi, I have keratoconus, diagnosed aged 17yrs now 40yrs old. I wear glasses due to now being RGP intolerent. I have not worn lens for 1 year. Visual acuity best correction is: Left 6/15, right 6/12. I wondered if anyone had any ideas? My eyes have been stinging and my left eye has lately been feeling gr...
I was diagnosed with KC about 2 years ago at age 26. For a year or two before diagnosis, my vision seemed to change from day to day. On a good day, it was fine but on a bad day, I had considerable blurriness in my far vision. It was initially described as a convergence insufficiency due to heavy computer work...
My name is Sid,I live in Athens,Greece.I am 35 years old and discovered that i suffer from KC when I was 30.When I was diagnosed my cylinder was around -3.50 and I was really lucky because the center of the cone was very low on the cornea so my vision in both eyes was around 20/20 with glasses and simple soft...
I moved from Australia to the US in 2002. Within the same year I found myself with KC, only I hadn't known back then. I didn't have the insurance nor was I aware of my vision impairment. I thought it was just a temporary body deficiency causing my eyesight to get worse. However, it continued to get worse an...
HI, I have a dilemma: I'm wearing hard contact lenses and I can see quite well with them. Recently, I went to a doctor, who said that even though I can see with the lenses, I should do a Cornea Transplantation, because he sees that my KC is pretty advanced and I'm only 20 and therefore I will probably have t...
Registered Members: 11,316 Topics: 1,370 Total Posts: 7,793 There are currently 0 member(s) and 5 guest(s) online. 122 user(s) visited this forum in the past 24 hours The most users ever online at once was 2875 member(s) and 8204 guest(s) at Tue Jul 24 5:40 PM, 2012
