Hi everyone.I have keratoconus, and a week ago today, I underwent corneal crosslinking and topographical PRK, and I thought I’d share my experiences so far.I’m hoping I’ll be able to continue logging my experiences over time.I found people’s experiences on this forum to be the most useful reso...
My PRK & Cross-linking Surgery in Athens, Greece
COST - 4500€ per eye
Doctor: Anastasios John Kanellopoulos
Location: Athens, Greece
Website: Laservison.gr
Email: info@laservision.gr
Phone: (30 210) 7472777
Hotel: The President Hotel
Website: www.president.gr
Locatio...
Hello my friends.From the minute i enter this site i consider you all my friends.I am writing and i want to cry...From all over the world we have been together here and this problem has united us like a fist to the heads of those who claims penetrating keratoplasty is the answer and the industry of ^bad do...
Hi all.........Just got home from Athens today. My left eye has cleared up enough to post this message to let you know I will be posting my story and results from the procedure with DR,K in Greece. My right eye is still very blurry and I will be taking some rest time.
For the main part, the procedure was q...
Good day to all.... It is with my profound pleasure that I first of all thank all members for their continue effort in keeping this endeavor true to its very important purpose. As this troubling disease has laid residence with me for the past 13 years, I've found myself riddled with frustration, sorro...
In my last medical exam my keratoconus regressed. I already experienced an improvement in the last months, but my last exam in june has confimed my keratoconus condition improved. The previous exam was in october and until that time my keratoconus always worsened. For many years I was searching an a...
Hey everyone, I was wondering if this was consistence with kc... Basically If I am looking straight ahead my vision is normal. When i go to move my eyes, i basically get some symptoms of kc: monocular diplopia, polyopia, and streaking. The streaking and multiple images seem to be worst in certain si...
hi guys i am am optometry student in ireland . i have kc in both eyes wear piggy back lenses on le little trouble va good. re bit of a mess hydrops through central area of descemets bit of a mess scar wise. i am due to have my op o n the 16th of june but i must return to hospital placement 3 weeks later , is this an un...
I have KC for years. I went to Dr to Dr to Dr and they could not figure out what was wrong with my eye. I finally came to the point that I was gonna be fully blind in my left eye. I was moreless there as is. I ended up going to Walmart Eye Center to get new glasses and low and behold she told me what I had I then went bac...
I have a history of several diagnosed eye conditions: Keratoconus both eyes mild to moderate, history of optic neuritis one eye, and astigmatism both eyes.
Sounds awful?
Not really. ....
After getting epi-on cross linking in both eyes, an intac in one eye, and PRK in the other eye, I am able to s...
Hi all, After serious doubts whether my healing proces from my Cross-linking treatment was normal or not, I decided to do an international search on this subject to find reviews about people who had gotten the same treatment (as Dutch reviews are VERY hard to find and mostly very limited) It's now 2 m...
Anyone been to Brian Boxer Wachler in Cali? Many claim he is really good but its a epi on cross linking and many say epi off is better. I really would prefer to do epi on. Can anyone help me and share experiences? Nerve racked over this.
I have moderate keratoconus in both eyes. My cones ride low below my corneas giving me manageable vision in glasses, but with awful ghosting, haloing, and starburst that get worse at night.I first tried RGP lenses for 2 days and while vision improved, the ghosting and halos remained and the comfort w...
Keratoconus patients I found an interesting site http://www.keratoconus.psychic-heal.com/ there is no surgical intervention and you have nothing to lose. there is also an e-mail address: psychic@psychic-heal.com Good luck!
Here, everyone who wants, will give advice for comfortable RPG lenses. (wiki: http://en.wikipedia.org/wiki/Rigid_gas_permeable). I begin: I am 26 - 27 years old, I hope that keratoconus does not develop anymore... From 18 years old, my eyes have seen only with RPG lenses. Fortunately, with RP...
I had epi on done for ectasia here in the states on me left eye nearly 6 months ago and am having some really bad side effects.
They put riboflavin drops in eye for an hour with a sponge on top of eye to help absorption and than put the uv light on eye for 30 mins.
Unlike the epi-off I had done on other eye 2 ye...
Hi everyone! Did my CXL on both eyes 2-3 years ago, and the results were good. Problem is that the last year or so my eyes get red and irritated more or less every single day, even when i haven't used my contacts for weeks. Eyedrops help some days, but can't find a more sustainable solution. Any advice?
Ch...
Hi everyone, I would like to share my very recent diagnosis and hope to get some feedback.I just got diagnosed with keratoconus last week at the age of 27. My right eye shows corneal scarring and has developed rather intense streaking of light over the last 5 months: a pin-shaped light source emits a s...
It was a cold and dank December morning. Upon being awoken by the incessant chirping of some birds outside, I set my gaze once more on my bedroom windows, which present the characteristic "streaking" effect associated with keratoconus. To my dismay, the doorknobs even streak.... as do s...
I've had KC really bad in my left eye since I was 18 if I can remember correctly. I'M currently 25 and was told it was progressing in my right eye. So I did a lot of research like most poeple with this condition do and in my opinion the TPRK and CXL was the best treatment for me. I was guided towards Bochner EYE i...
I'm living in Mississauga and would like to have this procedure done ASAP. I would appreciate if anyone has any experience with TLC in Mississauga to share. Thank you.
Hi everyone I was hoping to get a response from anyone who has been wearing Scalera lenses right now I'm in a pair that's not exactly right for me because I have scarring on my corneas which they are trying to heal up of course it's not the right prescription or fit at this moment but it's making me very depr...
Hi everyone I was hoping to get a response from anyone who has been wearing Scalera lenses right now I'm in a pair that's not exactly right for me because I have scarring on my corneas which they are trying to heal up of course it's not the right prescription or fit at this moment but it's making me very depr...
I'm curious... in terms of skin care, what risks to things like facials, plastic surgery, botox, etc pose to people with KC? Are there certain things/procedures to be avoided? It seems like men and women are being bombarded to take better care of their skin. Or maybe it is just living in Los Angeles. Ag...
I have often wondered if other people suffering from KC also have auto-immune conditions and if there is any correlation between the two.
I was diagnosed with KC in both eyes and underwent my first transplant in 2002 in my left eye. Visually, there is a good improvement. Just prior to m...
Hi, I got diagnosed about 5 months ago and I wrote about my slight improvement in the past 2 months and bigger improvement in the past 1 week. My reddit thread is here: http://www.reddit.com/r/Keratoconus/comments/37yndr/i_think_you_can_beat_keratconus_naturally_without/ Let me know if...
I thought that I would post this to try and get people's experience with how sports effects their keratoconus. For years I have been a gym enthusiast including powerlifting and weight lifting. I also play rugby quite frequently. I am aware that these activities will raise the Intra Ocular Pressure w...
For anyone battling with vision issues or pain and discomfort associated with RPG's you should really consider laserfit sclerals. They are super comfortable and do not sit on your cornea at all. Laserfit lenses are non rotational, so its possible to counter in the optics even the most minute cornea...
Hello everyone, I had blurry vision in my left eye since 2011 but did not go to the doctor. i was diagnosed with keratoconus in january 2015. i had moderate keratonus in my left eye and mild keratoconus in my right eye. my left eye was far worse than my right. my vision got slightly worse till july 2...
I figured I would share my keratoconus experience thus far as it may be of help to others dealing with this ailment. I was diagnosed with KC about 6 years ago when I was 19 and living in Florida. At that time the recommended treatment was a hard contact lens. I never picked up my contact lens and opted to...
Hello all,I have been following the Medical Medium diet (loosely) that is basically low fat gluten free plant-based. I am also following his recommendation for anti-viral supplements. I notice when I take raw garlic, or monolaurin my eyes get much better. Sometimes I wake up thinking I have my len...
Four years ago, I was diagnosed with Keratoconus and this is my main vision issue. My symptoms have progressed to a point where I don’t feel safe while driving at night. Could this change be related to my computer work? If this is non-progressive, can I get LASIK eye surgery done? I am interested to kno...
Hi all, diagnosed with keratoconus in 2014... vision 20/20 (but some ghost vision, bad contrast etc). Eventually got a RGP lens (Rose K2), contrast insanely good (photos for example seem unnatural to me with lens in the eye) but could never really achieve nowhere near the vision with "eyes only" in t...
Hello everyone, I thought I would share my story with you all in the hope that I get some opinions and understanding with my story. After much obsessing about the whole keratoconus issue with my family I thought I would share it with the people that will relate to me as my family cannot understand. I am a 2...
Hi All, As a new member, from the sunny south coast of the UK, with a relatively new diagnosis of KC, I thought I would share my experience and choice of treatment to manage the condition. I am 34 and up until a year ago, had perfect vision and never needed any form of correction. I then started to notice th...
kc was diagnosed when i was 13 , i was doing well with one eye that is my left eye which did not need correction till 1992-93 , i used to wear spec which did not give me 100% good vision but my auto-refract-or reading used to come over 6.00 cyl and when i used to wear my spects one could see wrink...
Hi everyone, reading everyone's experiences on this board has been very helpful in preparation for my CXL + PRK procedure next week. I decided to write about my upcoming experience as I go through it in case someone is in a similar situation as I am. I was diagnosed with form fruste keratoconus back i...
Hi all, my situation is nowhere as bad as most here (yet), luckily, but still causing me a bit of a scare due to nature of this disease. A few years ago, I started having problems with vision, mostly near vision - looking at computer screen - eyes got tired in the evening to an extent where I couldn't focus a...
Hi all, I have done the intact procedure in my right eye last week, however my left eye is very weak and I see absolutely nothing. My right has been in the beginning of the process of keratoconus, so it was the best option to operate the right eye to save it from getting worse. However I am super worries sin...
Registered Members: 11,316 Topics: 1,370 Total Posts: 7,793 There are currently 0 member(s) and 5 guest(s) online. 123 user(s) visited this forum in the past 24 hours The most users ever online at once was 2875 member(s) and 8204 guest(s) at Tue Jul 24 5:40 PM, 2012
