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QuintriX · Thu May 10 8:36 PM, 2007 by QuintriX

http://www.ophthalmologytimes.com/ophthalmologytimes/article/articleDetail.jsp?id=181088

dandymandy · dandymandy

Are there any Keratoconus patients in here that have implanted ICL lenses? Did you achieve the desired results? What is your visual acuity whith ICL alone? Were there any complications after the surgery? Would you recommend this to other patients?

leoabashidze · leoabashidze

I would like to ask you advice if UVA-Riboflavin Cross-Linking of the Cornea is possible method to treat 4 steps, advanced keratoconus or some other methods to avoid the cornea implantations. I am 28 years old; keratoconus had been diagnosed when I was 17 years. I wear RGP contact lens about 11 year...

sammathew · Thu Sep 29 6:11 PM, 2016 by sammathew

This links says... "This O.D. offers practical suggestions about keratoconus that all eyecare practitioners should know." (I think its a good read for a patient as well) Please Click Here -- Edited by Qui...

Hari · Hari

The following is an interesting article regarding surgery on thin corneas... I have recently been reading more and more that the tradional approuch... ie: Kc corneal thinness procludes surgery... Is now being amended (in some places)... it seems that there is much more to evaluate and that surger...

Pretty_Lil · Pretty_Lil

HELLO EVERYONE. I am writing to you with the hope to find any piece of good advice from the people undergone keratoconus and more or less cured from it. Who has done the surgery (I refer to the patients with stages III and IV) and what techniques did the doctor use?How many years have passed since the surg...

Kelly · Fri Jan 27 11:41 AM, 2012 by Kelly

Gabe posted the following: RE: KC Regression!!! "I'm the Gabe whose site QuintriX came across. I was recently invited by Sajeev to join this community. I'm glad to see there's a resource for all of us to come together and share our stories. For the record, I've never worn contact...

metallic2010 · metallic2010

Hi, as promised now please find attached my Topography (pentacam) of my RIGHT eye (OD), two days before my surgery at the Wellingtion Eye Clinic in Dublin. Surgeon: Dr. Cummings Surgery date: 26/05/2011 Costs: 100 € consulting / 2450 € (PRK+CXL) ____________ My LEFT eye (OS) is already crosslinke...

chechim · chechim

hi every one! I have't updated my case in a while. The thing is I was actually depressed by my results with the cxl treatment. My case started as usual, the first two months the vision was bad, but as expected on most cases. By the 3rd month I started to get worried, my vision wasnt close to what it was before...

LisaChicago · LisaChicago

I am a first timer. My son Zack is newly diagnosed with KC at an early stage. We live in Chicago and there is no crosslinging option for him here (there are some trials, but not for his age). I was able to reach Dr. Sporel in Dresden (I was amazed he answered his phone and we spoke - this kind of thing is not lik...

STANzboy · STANzboy

http://www.scribd.com/doc/91315/7-Vital-Facts-About-Keratoconus-Treatment

thomas · thomas

So i was reading an article pointed to on this sight that had to do w/ some wwII soldiers and how they were thought to have developed kc as a result of anxiety and such. This makes me curious as too how this relates too the destuction of coneal cell. And stress has been shown to disrupt many bio...

Yarsky · Yarsky

The below study concenrs a question I tried to understand some time ago: several methods give different results. Which one to believe more? Our corneas are liable to change their thickness as function of multiple factors. Even using the same method one may find different results during diff...

Valeri · Valeri

http://forum.keratoconus-group.org.uk/viewtopic.php?t=676

QuintriX · QuintriX

Complications after PK should be approached systematically "San Francisco—Serious complications can develop after penetrating keratoplasty (PK), including flat anterior chamber, pupillary block, wound leak, early broken sutures, suture abscess, wound displacement, glaucoma...

Vikram · Vikram

NOT ALL KERATOCONUS PATIENTS NEED GRAFT on diagnosis if you have just heard this shocking news that you have keratoconus , the first thing to do is to accept it bravely. you probably have been told by your ophthal that corneal graft is the only remedy ARE WE SURE ABOUT IT...

QuintriX · Sat May 20 9:27 PM, 2006 by QuintriX

Keraform a non-surgical way to re-shape your cornea....some excellent information on KC as well... Keraform, please click here! -- Edited by...

Yarsky · Yarsky

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Abstract&list_uids=16704706&query_hl=1&itool=pubmed_DocSumActa Ophthalmol Scand. 2006 J...

Hari · Hari

Bausch & Lomb Asks Stores to Pull ReNu Friday, April 14, 2006 Eye Fungus Outbreak in Contact Wearers ROCHESTER, N.Y. — ReNu with MoistureLoc was being pulled from U.S. store shelves at the request of Bausch & Lomb (BOL) amid concern the contact lens solution may be linked to a fungal eye inf...

Valeri · Valeri

Ever heard of this one? http://www.citrosept.net http://www.citrosept.co.uk We know that keratoconus is not standalone disease. It is connected to many other conditions. There are theories that it may is an infection, we have talked about the connection to the lime disease and so on. C...

Yarsky · Yarsky

Hi just in case somebody needs it when interpreting his/hers pachymetries tests: corneal thickness is not constant throughout a day: it chnages: thicker in the morning, less thicker in the evening. Range - some say about 20 µm, some say about 7% or 35 µm (if take 500 µm as average). Is there any specifi...

Tue Mar 7 8:02 PM, 2006 by

[url=http://www.helpoffice.altervista.org/riordino_documentazione/Microscopia%20Endoteliare%20OD%20Febbraio...

Vikram · Vikram

INTRODUCTION Keratoconus is an ocular disorder characterized by progressive corneal thinning and other corneal sequelae, in which the cornea assumes an irregular conical shape. It can be classified according to degree of conicity, and characterized morphologically by the shape of the...

Sat Jan 14 8:30 AM, 2006 by

http://www.eyeworld.org/article.php%3Fsid%3D2741&prev=/language_tools-- Edited by QuintriX at 02:20, 2006-01-11

Wed Dec 28 3:10 PM, 2005 by

Hello Guys....Please read the following posts from another forum... First KCers post I have to admit that these Boston Sclerals seem a bit suspicious.How can this scleral be so much different from others that it is a magical ‘cure’? If so, why isn’t its use more widespread? It wou...

Hari · Sat Oct 22 1:59 AM, 2005 by Hari

I wanted to bring this topic header to come up as i posted this with-in a related topic. This link is on the ESCRS web-site and in view for everyone to see it... so i think its important... The article is called... "Tear film changes can skew topography" [url=http://www.escrs.org/Esont...

Mon Sep 26 12:12 AM, 2005 by

From American Journal of Ophthalmology October 2004 (Volume 138, Number 4) Quality of Life in Keratoconus Kymes SM, Walline JJ, Zadnik K, Gordon MO; Collaborative Longitudinal Evaluation of Keratoconus (CLEK) Study Group American Journal of Ophthalmology. 2004;138(... >

Valeri · Valeri

http://www.agingeye.net/dryeyes/dryeyesdrugtreatment.php

Yarsky · Yarsky

Do you know that there is a powerful new methode of in vivo imaging of corneal structures? it is called Confocal Microscopie. I'm not sure, but il looks lke it was Prof. Guthoff from Rostok Uni (GR) who developed this method and first used it for corneal science. This is a short recent summury calle... < 400µm. 2. Contact lens wear. Here I cite" Contact lens wear is another very popular method of correcting refractive error that potentially can affect the cornea in myriad of ways. ...CM has been used to confirm the following known acute and chronic contact lens induced phenomenon: increased surface epithelial cell size, epithelial thinning, stromal folds, endothelial blebs and endothelial polymegethism....For example, superficial cell size increase is higher with high oxygen transmissibility rigid gas permeable lenses than soft lenses (high or low oxygen transmissiblility and epithelial thinning effects follow the hierarchy: high oxygen transmissibility rgp >>

Yarsky · Yarsky

Hello, just find it amazing...It's just that sometimes I feel my KC also depends on what I look at... ------------------------------------------ J Vis. 2003;3(7):456-63. Epub 2003 Aug 5. Related Articles, Links Change in corneal shape and co...

Wed Aug 10 1:52 AM, 2005 by

Hi Everyone... I've asked this question to those who report to know (contact lens support groups) about the below as there was talk of these new kc soft lenses not being that good for oxygen transmitting compared to rgps, by supossedly kc "specialists" that post this at contact lens support group...

Fri Jul 15 2:41 AM, 2005 by

When is kc not kc?... where Interpretation of Topography Map's is concerned? Click on the "maps" on the link....and then look down the page... I still think that you can have kc WITH a completely flat cornea or when it has been missed because its so mild....as shown when elastia is induced due...

Valeri · Tue Jun 28 7:46 AM, 2005 by Valeri

I was reading a very small excerpt somewhere that someones kc specialist recommended them to wear soft contact lens and then to wear glasses as well...as an option to get out of wearing RGPs... Never tried it myself or know more...what do you think?...wanna ask your kc specialist about it?...it...

Hari · Fri Jun 24 7:02 PM, 2005 by Hari

Well...the following what I am going to write has always left me feeling cold from the very begining...However I kept it to myself and has been one of the driving forces which started this journey in this TANGLED WEB!!! Its been documented that the chances of having a corneal transplanation...

Thu Jun 23 1:48 PM, 2005 by

I thought I would start a new topic with a post I made on a previous thread... "So to me... it looks like once again that....for the fore-seeable future, the strenghtening effect of X-Linking plus a good fitting contact lens equals "a cure enough" from the kc loop... I am sure that th...

Valeri · Valeri

Corneal topography shows more than a pretty picture. Different types of topography maps can help you better evaluate the eye's anterior surface and fit contact lenses. By David W. Hansen, OD, FAAOhttp://www.clspectrum.com/article.aspx?article=12399

Sun Apr 24 12:39 AM, 2005 by

The title of the next article is called..."Spectacle Overcorrection Reduces Glare and Halos with Array IOL"... Please Click Here -- Edited by QuintriX at 00:12, 2005-04-24

Wed Apr 20 3:36 AM, 2005 by

A great article....It says that 60% of corneal transplant patients need contact lenses (contact lenses needed at this rate was alway suspected by me....but the percentage was always hard to find documented or was hard to get from your very own medical care team) ....This topic I think would com...

Reloaded · Reloaded

I am starting this new topic so that the truth about keratoconus can be highlighted if the question of truth regarding keratoconus is in question.....

Sandi · Sandi

http://www.revophth.com/1999/december_articles/1299%20contact%20lenses.htm-- Edited by QuintriX at 18:30, 2006-...

Topic		Started By	Replies	Views	Last Post

	STICKY: IMPORTANT STUDY-A must Read! (Preview) http://www.ophthalmologytimes.com/ophthalmologytimes/article/articleDetail.jsp?id=181088		6	2468	Thu May 10 8:36 PM, 2007 by QuintriX
	Visian ICL for Keratoconus patients? (Preview) Are there any Keratoconus patients in here that have implanted ICL lenses? Did you achieve the desired results? What is your visual acuity whith ICL alone? Were there any complications after the surgery? Would you recommend this to other patients?	dandymandy	1	91	Tue Mar 31 11:15 AM, 2020 by Randy
	advanced Keratoconus (Preview) I would like to ask you advice if UVA-Riboflavin Cross-Linking of the Cornea is possible method to treat 4 steps, advanced keratoconus or some other methods to avoid the cornea implantations. I am 28 years old; keratoconus had been diagnosed when I was 17 years. I wear RGP contact lens about 11 year...	leoabashidze	6	511	Thu Sep 29 6:13 PM, 2016 by sammathew

	Helping the Keratoconus Patient Cope (Preview) This links says... "This O.D. offers practical suggestions about keratoconus that all eyecare practitioners should know." (I think its a good read for a patient as well) Please Click Here -- Edited by Qui...		3	401	Thu Sep 29 6:11 PM, 2016 by sammathew
	LASIK and the Thin Cornea (Preview) The following is an interesting article regarding surgery on thin corneas... I have recently been reading more and more that the tradional approuch... ie: Kc corneal thinness procludes surgery... Is now being amended (in some places)... it seems that there is much more to evaluate and that surger...	Hari	5	420	Mon Aug 8 7:00 PM, 2016 by JimKC
	IS YOUR DOCTOR BEST? SHARE YOUR XP PLEASE! (Preview) HELLO EVERYONE. I am writing to you with the hope to find any piece of good advice from the people undergone keratoconus and more or less cured from it. Who has done the surgery (I refer to the patients with stages III and IV) and what techniques did the doctor use?How many years have passed since the surg...	Pretty_Lil	6	506	Sat Jul 2 12:54 PM, 2016 by dandymandy

	Why Did Our KC Regress? ( 1 2 3 4 ) (Preview) Gabe posted the following: RE: KC Regression!!! "I'm the Gabe whose site QuintriX came across. I was recently invited by Sajeev to join this community. I'm glad to see there's a resource for all of us to come together and share our stories. For the record, I've never worn contact...		25	2001	Fri Jan 27 11:41 AM, 2012 by Kelly
	SimLC - Topograpy-guided PRK + simultaneous CXL ( 1 2 ) Crosslinking PRK topography (Preview) Hi, as promised now please find attached my Topography (pentacam) of my RIGHT eye (OD), two days before my surgery at the Wellingtion Eye Clinic in Dublin. Surgeon: Dr. Cummings Surgery date: 26/05/2011 Costs: 100 € consulting / 2450 € (PRK+CXL) ____________ My LEFT eye (OS) is already crosslinke...	metallic2010	9	1040	Tue Aug 2 1:14 AM, 2011 by DESK
	cxl not going as it should (Preview) hi every one! I have't updated my case in a while. The thing is I was actually depressed by my results with the cxl treatment. My case started as usual, the first two months the vision was bad, but as expected on most cases. By the 3rd month I started to get worried, my vision wasnt close to what it was before...	chechim	4	435	Mon Dec 29 1:32 PM, 2008 by Remo

	Crosslinking options in Europe (Preview) I am a first timer. My son Zack is newly diagnosed with KC at an early stage. We live in Chicago and there is no crosslinging option for him here (there are some trials, but not for his age). I was able to reach Dr. Sporel in Dresden (I was amazed he answered his phone and we spoke - this kind of thing is not lik...	LisaChicago	3	350	Fri Oct 3 12:13 PM, 2008 by leoabashidze
	7 vital facts about KC treatment... (Preview) http://www.scribd.com/doc/91315/7-Vital-Facts-About-Keratoconus-Treatment	STANzboy	0	363	Wed Mar 19 2:56 PM, 2008 by STANzboy
	kc and stress (Preview) So i was reading an article pointed to on this sight that had to do w/ some wwII soldiers and how they were thought to have developed kc as a result of anxiety and such. This makes me curious as too how this relates too the destuction of coneal cell. And stress has been shown to disrupt many bio...	thomas	3	434	Mon Nov 26 2:21 AM, 2007 by x02159

	Different methods of corneal thickness evaluation: a comparative study for KC eyes (Preview) The below study concenrs a question I tried to understand some time ago: several methods give different results. Which one to believe more? Our corneas are liable to change their thickness as function of multiple factors. Even using the same method one may find different results during diff...	Yarsky	4	480	Sat Dec 16 7:46 PM, 2006 by Yarsky
	The horror of the transplant (Preview) http://forum.keratoconus-group.org.uk/viewtopic.php?t=676	Valeri	4	426	Wed Oct 4 10:35 PM, 2006 by Yarsky
	Complications after PK should be approached systematically (Preview) Complications after PK should be approached systematically "San Francisco—Serious complications can develop after penetrating keratoplasty (PK), including flat anterior chamber, pupillary block, wound leak, early broken sutures, suture abscess, wound displacement, glaucoma...	QuintriX	0	240	Mon Jul 24 3:10 AM, 2006 by QuintriX

	is graft a remedy for kc ? (Preview) NOT ALL KERATOCONUS PATIENTS NEED GRAFT on diagnosis if you have just heard this shocking news that you have keratoconus , the first thing to do is to accept it bravely. you probably have been told by your ophthal that corneal graft is the only remedy ARE WE SURE ABOUT IT...	Vikram	6	401	Tue Jul 11 10:25 PM, 2006 by Rajat Abbey
	Keraform ( 1 2 ) (Preview) Keraform a non-surgical way to re-shape your cornea....some excellent information on KC as well... Keraform, please click here! -- Edited by...		10	679	Sat May 20 9:27 PM, 2006 by QuintriX
	Some news on corneal transplants (Preview) http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Abstract&list_uids=16704706&query_hl=1&itool=pubmed_DocSumActa Ophthalmol Scand. 2006 J...	Yarsky	0	267	Fri May 19 9:10 AM, 2006 by Yarsky

	ReNu with MoistureLoc recalled! (Preview) Bausch & Lomb Asks Stores to Pull ReNu Friday, April 14, 2006 Eye Fungus Outbreak in Contact Wearers ROCHESTER, N.Y. — ReNu with MoistureLoc was being pulled from U.S. store shelves at the request of Bausch & Lomb (BOL) amid concern the contact lens solution may be linked to a fungal eye inf...	Hari	0	272	Fri Apr 14 10:16 PM, 2006 by Hari
	Citrosept (Preview) Ever heard of this one? http://www.citrosept.net http://www.citrosept.co.uk We know that keratoconus is not standalone disease. It is connected to many other conditions. There are theories that it may is an infection, we have talked about the connection to the lime disease and so on. C...	Valeri	0	376	Thu Apr 6 8:22 AM, 2006 by Valeri
	Corneal thickness daily fluctuations (Preview) Hi just in case somebody needs it when interpreting his/hers pachymetries tests: corneal thickness is not constant throughout a day: it chnages: thicker in the morning, less thicker in the evening. Range - some say about 20 µm, some say about 7% or 35 µm (if take 500 µm as average). Is there any specifi...	Yarsky	0	372	Sat Apr 1 3:09 PM, 2006 by Yarsky

	Pictures of Endolithium Cells (A must see!) (Preview) [url=http://www.helpoffice.altervista.org/riordino_documentazione/Microscopia%20Endoteliare%20OD%20Febbraio...		4	502	Tue Mar 7 8:02 PM, 2006 by
	Categorizing Karetoconus (Preview) INTRODUCTION Keratoconus is an ocular disorder characterized by progressive corneal thinning and other corneal sequelae, in which the cornea assumes an irregular conical shape. It can be classified according to degree of conicity, and characterized morphologically by the shape of the...	Vikram	2	330	Fri Feb 10 8:19 AM, 2006 by Vikram
	Women report more keratoconus (Preview) http://www.eyeworld.org/article.php%3Fsid%3D2741&prev=/language_tools-- Edited by QuintriX at 02:20, 2006-01-11		1	239	Sat Jan 14 8:30 AM, 2006 by

	Transplants cheaper than lenses!! (Preview) Hello Guys....Please read the following posts from another forum... First KCers post I have to admit that these Boston Sclerals seem a bit suspicious.How can this scleral be so much different from others that it is a magical ‘cure’? If so, why isn’t its use more widespread? It wou...		3	354	Wed Dec 28 3:10 PM, 2005 by
	Tear film changes can skew topography (Preview) I wanted to bring this topic header to come up as i posted this with-in a related topic. This link is on the ESCRS web-site and in view for everyone to see it... so i think its important... The article is called... "Tear film changes can skew topography" [url=http://www.escrs.org/Esont...		3	292	Sat Oct 22 1:59 AM, 2005 by Hari
	Quality of Life in Keratoconus (Preview) From American Journal of Ophthalmology October 2004 (Volume 138, Number 4) Quality of Life in Keratoconus Kymes SM, Walline JJ, Zadnik K, Gordon MO; Collaborative Longitudinal Evaluation of Keratoconus (CLEK) Study Group American Journal of Ophthalmology. 2004;138(... >		2	345	Mon Sep 26 12:12 AM, 2005 by

	Aftifical Tears complete catalog (Preview) http://www.agingeye.net/dryeyes/dryeyesdrugtreatment.php	Valeri	4	289	Mon Sep 19 12:46 PM, 2005 by Bethaniej
	Confocal Microscopy (Preview) Do you know that there is a powerful new methode of in vivo imaging of corneal structures? it is called Confocal Microscopie. I'm not sure, but il looks lke it was Prof. Guthoff from Rostok Uni (GR) who developed this method and first used it for corneal science. This is a short recent summury calle... < 400µm. 2. Contact lens wear. Here I cite" Contact lens wear is another very popular method of correcting refractive error that potentially can affect the cornea in myriad of ways. ...CM has been used to confirm the following known acute and chronic contact lens induced phenomenon: increased surface epithelial cell size, epithelial thinning, stromal folds, endothelial blebs and endothelial polymegethism....For example, superficial cell size increase is higher with high oxygen transmissibility rigid gas permeable lenses than soft lenses (high or low oxygen transmissiblility and epithelial thinning effects follow the hierarchy: high oxygen transmissibility rgp >>	Yarsky	1	235	Fri Sep 2 12:06 AM, 2005 by
	Corneal curvature as a function of distance to the object. (Preview) Hello, just find it amazing...It's just that sometimes I feel my KC also depends on what I look at... ------------------------------------------ J Vis. 2003;3(7):456-63. Epub 2003 Aug 5. Related Articles, Links Change in corneal shape and co...	Yarsky	3	271	Thu Aug 25 11:15 PM, 2005 by

	New KC soft lenses (Preview) Hi Everyone... I've asked this question to those who report to know (contact lens support groups) about the below as there was talk of these new kc soft lenses not being that good for oxygen transmitting compared to rgps, by supossedly kc "specialists" that post this at contact lens support group...		0	335	Wed Aug 10 1:52 AM, 2005 by
	When is KC not KC? (Preview) When is kc not kc?... where Interpretation of Topography Map's is concerned? Click on the "maps" on the link....and then look down the page... I still think that you can have kc WITH a completely flat cornea or when it has been missed because its so mild....as shown when elastia is induced due...		0	298	Fri Jul 15 2:41 AM, 2005 by
	Soft contact lenses with glasses? (Preview) I was reading a very small excerpt somewhere that someones kc specialist recommended them to wear soft contact lens and then to wear glasses as well...as an option to get out of wearing RGPs... Never tried it myself or know more...what do you think?...wanna ask your kc specialist about it?...it...		1	319	Tue Jun 28 7:46 AM, 2005 by Valeri

	Chances of a Transplant? ( 1 2 ) (Preview) Well...the following what I am going to write has always left me feeling cold from the very begining...However I kept it to myself and has been one of the driving forces which started this journey in this TANGLED WEB!!! Its been documented that the chances of having a corneal transplanation...		9	455	Fri Jun 24 7:02 PM, 2005 by Hari
	"A Cure Enough"? (Preview) I thought I would start a new topic with a post I made on a previous thread... "So to me... it looks like once again that....for the fore-seeable future, the strenghtening effect of X-Linking plus a good fitting contact lens equals "a cure enough" from the kc loop... I am sure that th...		2	279	Thu Jun 23 1:48 PM, 2005 by
	Evaluating the Eye with Corneal Topography (Preview) Corneal topography shows more than a pretty picture. Different types of topography maps can help you better evaluate the eye's anterior surface and fit contact lenses. By David W. Hansen, OD, FAAOhttp://www.clspectrum.com/article.aspx?article=12399	Valeri	1	326	Thu May 12 10:45 AM, 2005 by

	Spectacle Overcorrection Reduces Glare and Halos (Preview) The title of the next article is called..."Spectacle Overcorrection Reduces Glare and Halos with Array IOL"... Please Click Here -- Edited by QuintriX at 00:12, 2005-04-24		1	344	Sun Apr 24 12:39 AM, 2005 by
	60% need contacts after Transplant (Preview) A great article....It says that 60% of corneal transplant patients need contact lenses (contact lenses needed at this rate was alway suspected by me....but the percentage was always hard to find documented or was hard to get from your very own medical care team) ....This topic I think would com...		0	248	Wed Apr 20 3:36 AM, 2005 by
	The TRUTH about Keratoconus ( 1 2 3 ) (Preview) I am starting this new topic so that the truth about keratoconus can be highlighted if the question of truth regarding keratoconus is in question.....	Reloaded	22	1151	Tue Apr 12 1:05 PM, 2005 by

	Keratoconus and the Informed Patient (Preview) http://www.revophth.com/1999/december_articles/1299%20contact%20lenses.htm-- Edited by QuintriX at 18:30, 2006-...	Sandi	2	272	Sat Apr 9 12:07 PM, 2005 by
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